The ASAN (finally, an organized enough self-advocacy organization to get things like this done) are putting out this video on the offensiveness of using ‘retard’ as an insult:
Author Archives: Mel Baggs
“Internet eugenics.”
The Trolls Among Us is an article about Internet trolls. Whose actions descend into the unethical and illegal more often than you might realize if you’ve never been the target of the more serious stuff these people engage in.
Weev, the troll who thought hacking the epilepsy site was immoral, is legendary among trolls. He is said to have jammed the cellphones of daughters of C.E.O.’s and demanded ransom from their fathers; he is also said to have trashed his enemies’ credit ratings. Better documented are his repeated assaults on LiveJournal, an online diary site where he himself maintains a personal blog. Working with a group of fellow hackers and trolls, he once obtained access to thousands of user accounts.
I first met Weev in an online chat room that I visited while staying at Fortuny’s house. “I hack, I ruin, I make piles of money,” he boasted. “I make people afraid for their lives.” On the phone that night, Weev displayed a misanthropy far harsher than Fortuny’s. “Trolling is basically Internet eugenics,” he said, his voice pitching up like a jet engine on the runway. “I want everyone off the Internet. Bloggers are filth. They need to be destroyed. Blogging gives the illusion of participation to a bunch of retards. . . . We need to put these people in the oven!”
What interests me about that quote is not that he spews forth the usual hate speech that trolls are famous for. It’s the extent he’s gone to harm other people for his own gain and amusement, far more than most people realize when dealing with the assorted insult-fests online:
Over a candlelit dinner of tuna sashimi, Weev asked if I would attribute his comments to Memphis Two, the handle he used to troll Kathy Sierra, a blogger. Inspired by her touchy response to online commenters, Weev said he “dropped docs” on Sierra, posting a fabricated narrative of her career alongside her real Social Security number and address. This was part of a larger trolling campaign against Sierra, one that culminated in death threats. Weev says he has access to hundreds of thousands of Social Security numbers. About a month later, he sent me mine.
Trolls have also done things like go onto epilepsy forums and post rapidly-flashing images. Which Weev claimed to be uncertain about the morality of. (But supporting genocide, disability hate speech, libel, hacking, extortion, and who knows what else? No problem.)
Some other interesting quotes from the article:
Is the effort to control what’s said always a form of censorship, or might certain rules be compatible with our notions of free speech?
One promising answer comes from the computer scientist Jon Postel, now known as “god of the Internet” for the influence he exercised over the emerging network. In 1981, he formulated what’s known as Postel’s Law: “Be conservative in what you do; be liberal in what you accept from others.”
[….] The human equivalent of this robustness is a combination of eloquence and tolerance — the spirit of good conversation. Trolls embody the opposite principle. They are liberal in what they do and conservative in what they construe as acceptable behavior from others. You, the troll says, are not worthy of my understanding; I, therefore, will do everything I can to confound you.
For what it’s worth, I do believe that rules are compatible with free speech. In my country, even the people who built freedom of speech into our highest set of laws believed that. I’m never too comfortable (in fact, I’m highly uncomfortable) with an absolutely rigid set of rules, because ethics can change drastically based on the situation and the rules can never be written in as detailed a way as to account for all situations. So maybe I’d say that limits are compatible with free speech, and I have no ethical problem at all with limiting what people can post here.
Such limits aren’t censorship (I don’t even control their ability to post anywhere else). In fact, I don’t think that there would be a whole lot of free speech on here if I allowed in every sociopath who tries to come on here and mess with people’s minds enough to scare them off. There’s an implicit threat in that kind of behavior, and that threat prevents people from speaking their minds. I also moderate posting to protect innocent posters from such people — people who post overly personal details about themselves or other people, such as telephone numbers and other such information, I’ll edit out, or else (if the thing seems to be written to me like a personal email to me) reply in email and delete the whole thing. Usually I note that I’ve edited it. One time a long-time poster tried to unknowingly point a stalker to information about their victim that I knew would be misused, and I sent him a long apologetic email in private and deleted his comment.
Basically, it goes back to what my school principal told the class during an assembly one day: “Often when children are sent to my office they say, ‘Well it’s a free country.’ And I say ‘Yeah it’s a free country, but that doesn’t mean you’re free to punch him in the face.'” Except that, apparently unlike my principal, I have no illusions about the USA being a free country (or the entirety of the Internet — it amazes me how many people talk about the “first Amendment rights” of Internet users in general, without apparently realizing that not all of the Internet is in the USA). Most people who’ve been on the wrong end of oppression in this country know that, and it’s even penetrating into the minds of the mostly-privileged lately. But that’s a whole different tangent.
I also don’t (anymore) allow people to come here and post the overused arguments designed to shut down attempts by disabled people to advocate for our rights. I’ve given a summary by Jim Sinclair of those arguments in my about page, and I’ll put it here as well. It’s from xyr History of ANI. After xe describes an attempt by some members of the Autism Society of America to spread false rumors about xyr not being autistic (even though some people on the ASA board had seen Jim’s records and testified under oath that xe was autistic), and even to attempt to interfere in xyr friendships with other autistic people, and notes that Donna Williams was getting the same kind of slander campaigns and harassment after her book was published, xe writes:
Only several years later, while researching the history of self-advocacy by disabled people (Sinclair, 1996), did I learn of the long history of similar opposition to attempts at self-advocacy and self-determination by people with a variety of disabilities (Kugelmass, 1951; Putnam, 1979; Williams & Shoultz, 1982; Van Cleve & Crouch, 1989; Lane, 1992; Shapiro, 1993; Christiansen & Barnartt, 1995; Dybwad & Bersani, 1996; Kennedy, 1996). Any attempt by a group of disempowered people to challenge the status quo–to dispute the presumption of their incompetence, to redefine themselves as equals of the empowered class, to assert independence and self-determination–has been met by remarkably similar efforts to discredit them. The discrediting tactics used most frequently are:
1) If at all possible, to deny that the persons mounting the challenge are really members of the group to which they claim membership. This tactic has been used against disability activists with learning disabilities and psychiatric disabilities as well as against autistic people. As people with these disabilities often look “normal” and the disabilities are all defined in terms of behavior rather than empirically measurable physical differences, many of us have been told that the very fact that we are able to express ourselves, object to the ways our freedom has been restricted or our rights violated, and demand change proves that we cannot truly be autistic, or learning disabled, or psychiatrically impaired.
2) If there is incontrovertible evidence that the activists are members of the affected group, to aver that they are rare exceptions who are so unlike typical members of the affected group that what they have to say is irrelevant to the group as a whole. Michael Kennedy, who obviously and indisputably has cerebral palsy, explains the destructive impact of this tactic:
When people tell me that I am “higher functioning” than the people they are talking about, I feel like they are telling me that I don’t have anything in common with other people with disabilities. It’s like they are putting me in a whole different category and saying that I don’t have any right to speak. It upsets me because I take it that they don’t want to give anyone else the opportunities I have been given, and that what I say can be ignored because they see me as more capable. It is a way of dividing us and putting down those who have more severe disabilities or who haven’t had the opportunities to experience different situations in life. (Kennedy, 1996)
3) If it is not possible to deny that the activists are authentic representatives of the affected group, to appeal to the very prejudices and stereotypes the activists are seeking to overturn, and use those prejudices and stereotypes to claim that the activists are incapable of fully understanding their situations and knowing what is best for them. Often this approach incorporates the belief that disabled people need to have their freedom restricted for their own good, to protect them from coming to harm through their inability to act in their own best interests.
These strategies to undermine credibility are not new, nor are they limited to situations involving disability. Frederick Douglass was a nineteenth-century African American who escaped from slavery in 1838 and became a well-known abolitionist writer and speaker. In his 1855 autobiography My Bondage and My Freedom, he recalled that at the beginning of his career speaking to white audiences about the evils of slavery, he was presented as something of a curiosity. Most anti-slavery lecturers where white; lecturers who were themselves fugitive slaves were a rarity. As the novelty wore off, people began to doubt that he had ever been a slave. He was suspected of being an impostor because he was too educated and too well-spoken to fit prevailing stereotypes about the ignorance of slaves. He also expressed frustration with white abolitionists’ demand that he confine his speeches to simply recounting his personal experiences of slavery, and allow white people to elaborate on what they meant: “Give us the facts, we will take care of the philosophy.” Eventually Douglass stopped working for white abolitionists and started his own anti-slavery publication.
So I won’t allow those tactics on here, provided that I notice them. And I offer no guarantees of perfection in noticing them. (Someone once noted in comments that some of my earlier posts and comments to them violated my current policy, and that’s correct. I don’t always go back and modify things, and even when I do, I can’t catch everything. I’m also human and therefore not remotely immune to the problem of sometimes being unable to live up to my own standards, and unable to notice this about myself.)
I also (although this is trickier because things can be subtle) have an anti-gossip policy and try to take that pretty seriously. As Laura Tisoncik noted, “Gossip is the enemy of all communities.” Same caveats apply though from the previous paragraph.
Even though that’s all quite an extensive list of things I don’t tend to allow, there are more things I do allow than things I don’t. I don’t post things from people who are trolling or engaging in other predatory activities online, but those tend to come in clumps and most of the time there’s almost nothing to delete. Then for a week there’ll be a ton of it, then nothing. I have only had to use the anti-gossip policy and the thing about disallowing tactics that shut down self-advocacy discussions, on a handful of occasions. The vast majority of the things I delete are when people unintentionally post private information such as phone numbers and street addresses. That’s unless you count spam.
I do allow disagreement, and not just calm disagreement but most angry disagreements too. I don’t see anything wrong with disagreement within certain limits. (I’m obviously not going to post something where someone’s saying that nobody here is autistic enough to involve ourselves in autistic self-advocacy.) I don’t see anything wrong with people being pissed off at me. Sometimes if people don’t yell at me I don’t know I’m doing anything wrong. I can sometimes get defensive and irritated in response (some of my friends might say that’s an understatement at times), but that’s my problem, not theirs. Frankly I get much less nervous around people who are willing to call me on stuff, than people who act like I can do no wrong. With the second group of people I always wonder what’s going to happen when the pedestal drops, and what would happen to my ego if I acted like these people were accurate in their assessment of me.
And if your post doesn’t show up — most of the time that means it’s fallen into my spamtrap, which gets overzealous. My spamtrap also likes some people more than others for some reason, as Andrea Shettle knows way too well by now. I try to search through it for people’s stuff, but it gets eaten a lot. One time there was some minor drama because someone who was pissed off at me already (see previous paragraph) thought I’d deleted his posts because of that, but it turned out they were in my spamtrap all along.
Anyway, basically… there are predators online ranging from people who engage in mild bullying to people who try to systematically destroy people either mentally or physically, and I’m not going to decide in the name of free speech to give them a space to comment here. I think such people do more to stifle free speech than to promote it, and I no more allow them on my blog than I would allow them in my front door.
Which might explain why they instead periodically hack into our server.
Back to the article:
Fortuny calls himself “a normal person who does insane things on the Internet,” and the scene at dinner later on the first day we spent together was exceedingly normal, with Fortuny, his roommate Charles and his longtime friend Zach trading stories at a sushi restaurant nearby over sake and happy-hour gyoza.
I wouldn’t call the things he does insane. I would call them cruel. Cruelty is in many ways normal, and often tolerated or even encouraged. And people who get labeled insane are no more likely to be cruel than anyone else, but are far more likely to be the victims of cruelty. But the wonders of ableism make ‘insanity’ a synonym for cruelty, and ‘retard’ the ultimate in dehumanization and the ultimate excuse for talk about eugenics and genocide.
Plus, even most sociopaths (who I don’t consider ‘insane’, but I do consider very very cruel) are said to look normal, even charming. Not all do, but many do. I’m not saying all trolls are sociopaths, but their behavior can be identical, even if they’re just ‘normal’ people spurred on by some unholy union between the dehumanization of the Internet, the dynamics of groupthink, and societies that more or less encourage cruel people to flourish. (And unlike a lot of people, I don’t consider ‘sociopath’ a medical category, just a convenient and recognizable word for people who are consistently and alarmingly unfettered by conscience.)
I’ve seen the websites (ones not even mentioned in the article) of organized trolls before, and they read just like a horrible playground conversation. These people create sites that openly state their intent is to mock people and to laugh about it. And as evidenced by the conversations in the newspaper article, they don’t care what damage they do to their victims. Some of them rationalize it, others are just happily and unashamedly nasty.
But not all trolls are open about it. Many attempt to appear earnest, even creating entire false personas to drag people in emotionally, either to obtain private information for harassment or blackmail purposes, or to convince naive people to defend them in arguments. Others don’t find that worth the hassle and create sockpuppets instead.
What’s alarming are the things they use (if anything) to justify their behavior:
As Fortuny picked up his cat and settled into an Eames-style chair, I asked whether trolling hurt people. “I’m not going to sit here and say, ‘Oh, God, please forgive me!’ so someone can feel better,” Fortuny said, his calm voice momentarily rising. The cat lay purring in his lap. “Am I the bad guy? Am I the big horrible person who shattered someone’s life with some information? No! This is life. Welcome to life. Everyone goes through it. I’ve been through horrible stuff, too.”
[…]
[someone said that trolling the epilepsy forum with flashing lights was crossing a line]
Fortuny disagreed. In his mind, subjecting epileptic users to flashing lights was justified. “Hacks like this tell you to watch out by hitting you with a baseball bat,” he told me. “Demonstrating these kinds of exploits is usually the only way to get them fixed.”
“So the message is ‘buy a helmet,’ and the medium is a bat to the head?” I asked.
“No, it’s like a pitcher telling a batter to put on his helmet by beaning him from the mound. If you have this disease and you’re on the Internet, you need to take precautions.” A few days later, he wrote and posted a guide to safe Web surfing for epileptics.
[…]
The willingness of trolling “victims” to be hurt by words, he argued, makes them complicit, and trolling will end as soon as we all get over it.
These are the same excuses used by people who fail to do anything about bullying in schools, and the same excuses used by many child abusers towards their victims: It’ll toughen them up enough to be prepared for life’s cruelties.
But they’re BS excuses. Just because the world is a cruel place doesn’t mean you have to be. The answer to cruelty isn’t more cruelty. I’ve been to hell and back, and I’ve learned from those who are or were cruel to me, but I’ve learned even more from those who taught me how to deal with cruel situations than those who caused the cruel situations in the first place. (Of course, nobody is black and white, and in a couple cases people who were cruel to me at one point are still people I’m on good terms with. But they’re also not cruel anymore.)
I wrote a song several years ago to people stuck in that mentality. I’ve posted it before but it bears repeating.
They say life on a battlefield
Is sink or swim
And only the strong surviveAnd those of us who survived
We survived
And we say to the next
As they’re standing in line
“We’ve done our time,
now it’s your turn”We learned our lesson too well
We’ve taken our hell and passed it on
“It will make you strong,”
We say as we turn awayHow easy is it to forget
The ones who walked with us, talked with us
The ones we fought alongside
They didn’t survive, they fellThey were as strong as we
But we can’t see this to be so
For it would show how little power
We had in the hour that they diedAnd we honor our fallen comrades
With a rousing inspirational speech
“You are our successors,” we say
“And there’s no room to be weak
Because life on a battlefield
Is sink or swim
And only the strong survive”And those of us who survived
We survived
And we say to the next
As they’re standing in line
“We’ve done our time
Now it’s your turn”We’ve learned our lesson too well
We’ve taken our hell
And passed it on
“It will make you strong,”
We say as we turn awayAnd how easy it is to forget
The ones who walked with us, talked with us
The ones we fought alongside
They didn’t survive, they fell
Consumed by the hell
We recreate
In the name of memory
Or in other words:
The problem with sink-or-swim approaches is that some people sink. And it would completely dishonor the memories of people who have died as a result of cruelty, to perpetuate the very same cruelty that killed them. To claim it makes people strong makes it sound as if these people didn’t exist, or were weaker than people who survived, even if it’s only luck that determined some people’s survival over others. And I refuse to participate in, or glorify, practices that can and do ultimately kill people and then degrade even their memories. Like so-called “Internet eugenics”.
And like they said earlier in the article — it’s the opposite of a properly-functioning society. They want the leeway to do anything they want, but give others no leeway at all. No matter how much they dress it up, there’s no ethical justification for that, and I suspect they know it.
Edited to add: I just remembered something I hadn’t thought about for a long time.
When I was nineteen I had a different autism site. I was also at that age very vulnerable, and very bad at hiding my vulnerability. (Which is one among several reasons I eventually took it down, another being that I wasn’t at the time satisfied that half the stuff I was posting was really stuff I thought, or just more attempts to conform to a pattern I thought I ought to conform to.) The stuff from it I continued to think might be useful (whether I continued to fully agree with it or not), I moved to the autistics.org library.
Anyway, I started getting these weird emails. One of them gave me detailed instructions for killing myself, and said that if I didn’t do it they’d finish the job for me. My family was alarmed and contacted the FBI. But back then there wasn’t even a pretence of caring about cyberharassment, and my parents were just told that if it was online it wasn’t a problem. (Unfortunately, by now the world has learned differently from experience.)
Eventually the problem was found out, can’t remember if it was by me or by someone else — my website address had been posted to a trolling site. The section about changeling mythology, Otherkin (a community of people who either believe themselves to be non-human or roleplay themselves to be non-human, depending), and my own longstanding connection to and interest in those topics (especially the idea of being an elf), had been pointed out in particular.
There was a lot of undisguised mockery in the ensuing discussion, to be sure. But my main reason for editing this post to add this to it, is one of the comments that was given on that site, the one I to this day find the most indefensible and the most descriptive of the fact that many trolls know exactly what they are doing. It read something like the following:
“She looks vulnerable. Let’s go mess with her mind.”
How did you figure out that this was a pattern, and what made you realize it?
I suppose the question in this post is for anyone who’s faced discrimination for what sort of person they are, or watched others (such as their children or clients, given that I know a lot of parents and professionals read this blog) face discrimination for the same.
When did it hit you that this (an actual pattern of discrimination, etc.) is what it was? As in (any combination of the following, or anything that seems related that I’ve forgotten to add, and switch the questions around to be about another person if you’re not thinking of yourself here)…
…that it wasn’t a bunch of isolated incidents of injustice or unpleasantness?
…that it wasn’t your fault, or something to do with you alone?
…that there was actually a pattern to this?
…that it was actually real, and not imaginary or in your head?
And what thing(s) made you realize this? (Which could be sudden or gradual or combinations of both, or anything else.)
I’ll answer this as well:
For my part, it’s hard to say exactly what all the little pieces were that I started with. I knew certain things were wrong, or that they ought not to happen. And then I gradually got used to them happening, and happening to me, as something inevitable. But I’m very certain of the two things that made it stand out to me.
The first was that as I gained more precise communication, and was finally able to put huge amounts of my actual thoughts together into words on a regular basis, and really have that be a more or less stable ability, and also gained a lot more self-awareness, and a lot of other things… it still happened. People still treated me badly. I had decided at some point in the past that the only reason people treated me badly was either because I was having a hard time communicating (at best), or I was, in my efforts to figure out what exactly I ought to say, communicating things that were untrue (at worst). I thought that if I were able to say exactly what was truly inside my head, things would be better. And they weren’t. It had been something I experienced as a drastic change, but some other people didn’t, or didn’t see it as enough of a change, and some even (to my immense surprise and disturbedness) told me that they liked me better before. (As in, back when whether what I said bore any resemblance to my thoughts was random and barely if at all under my control. To hear that they liked me better like that was a massive shock.)
The second thing had to do with people I looked up to a good deal. At the time this realization was going on, the people that come to mind are Jim Sinclair, Cal Montgomery, and Laura Tisoncik. I had varying degrees of actual communication with them (and varying degrees of conflict, for that matter), but they were all people who impressed me with assorted combinations of integrity, clarity, honesty, and wisdom, and who had a lot of influence on my understanding of things like disability politics.
So here were these people I thought of as some combination (different for each) of strong, clear, wise, competent, of good character, and all these assorted positive things that I did not at the time believe possible for myself even though some of them kept telling me they were possible for anyone.
And then I saw them talk about getting all the same sort of discriminatory bullcrap that I got all the time. And I saw them talk about being treated as inferior, worthless, pointless, empty, stupid, dead, and whatever other ugly stereotypes can be conjured up.
And that’s what it finally took for me to put it together, that when I was treated that way, it wasn’t because of something I did wrong. That I’d be treated that way even if I wasn’t the colossal screwup I believed myself to be. (And that maybe, possibly, I wasn’t so much of that as I’d thought.) I somewhere along the line had internalized the view that all these things happened to me because I must be inferior, worthless, pointless, empty, stupid, and dead, not to mention a whole lot of other things.
So it was the combination of changing a great deal internally but still meeting with the same old crap all over again, and watching people I admired for all sorts of traits I didn’t think I had, getting treated the same way. And that’s what made me grasp that something was going on beyond just me being a failure and getting what I deserved. Like so many such realizations, in hindsight I had all the pieces of it, but I hadn’t put them together yet, or if I had they hadn’t come together in any permanent fashion. And those two things were what it took for me to finally get it.
By the way, Dave Hingsburger wrote a way more intense version of assorted political realizations around disability, called Mourning Has Broken. When you follow that link, be aware that there’s one word written as “chickens…” that makes no sense unless you know those dots are in there to blot out “chickenshit”, and the sentence makes absolutely no sense without knowing that. This was written when he was a non-disabled staff person. (He’s now a disabled staff person. And a prolific blogger, who blogs here.)
I think I first read that article in an issue of Mouth Magazine called Waking Up. And I guess “waking up” is exactly the sort of experience I’m asking about in this post, because I’m curious how, when, and whether it has happened for other people. (And it doesn’t have to be specifically about ableism, either, just anything similar. Nor does it have to be specifically about the exact questions I asked, just anything similar there too. I’m not at all able to cover all possible bases so please fill in the blanks — or not — as you see fit.)
Trying again, the sysadmin tests away on someone else’s blog
but since that someone wants a blog that works I guess it’s okay, yes? :)
Jordan
This character (the female one, Jordan) is based largely on a real person (not autistic that I know of), whose friends apparently turned around in the theater and stared at her when the movie (“Real Genius”) came out and this character came on screen. While the movie character wasn’t written as autistic, she was written as having some kind of explicit neurological diagnosis.
My ex (who introduced me to this movie) used to accuse me of, when able to speak, going into what he called “Jordan-mode” — I’d apparently spit out whole paragraphs rapidfire while probably ignoring about as much about social conventions as this character manages to in this scene.
(For anyone unfamiliar with the movie, it’s basically an eighties geek movie. But in many ways about the “cool” sort of geeks, at least a lot of them are, not all. There’s another character that they bully (in ways I don’t find amusing at all, no matter how much of a jerk he was at times), who exemplifies exactly what being the “uncool” geek among “cool” geeks feels like.
Yes, he’s written as doing a lot of things morally wrong. But it often seems like movies showing socially inept outcast sorts of characters write them as also mean or unethical in addition to socially inept, as a way of justifying to the viewer what the “cooler” kids, or even just the “cooler” geeks, do to them. So, if you don’t like seeing that kind of thing, or aren’t up to it, you might not want to watch the whole movie.)
Anyway, I didn’t mean to analyze the rest of the movie. I just thought Jordan might be …amusingly recognizable… to a lot of readers. :-)
apology/retraction re: autism speaks t-shirt scandal thing
A few entries back I talked about Autism Speaks trying to censor someone’s t-shirt. Turns out that there was some kind of complicated mixup, and the problem was actually Zazzle overinterpreting a complaint about a different shirt or something. I’ll also add a link at the beginning of my other post, to this post. At any rate, consider this a retraction and apology.
Additionally, if anyone wonders why I didn’t immediately do something when this was figured out — I still don’t know entirely what was figured out. I just know something was. I have been away from home for a week, only now have access to a fully functional computer again, do not yet have a fully-functioning brain, and have not even looked at (much less read) my email since I left home a week ago. I stumbled across a retraction by someone else minutes ago and have immediately written this post.
But, for anyone who actually can make good sense of everything they read right now, here is Zach’s post about the whole thing. At any rate, I’m sorry to Autism Speaks for assuming you were doing this sort of thing again, and to anyone else who might’ve gotten that idea from what I wrote. And I’m very glad Zazzle has been willing to finally clear up whatever really happened — which seemed to be an employee somehow misinterpreting something by Autism Speaks and thinking it was about Zach’s shirt when it wasn’t.
Please post corrections in comments if I got anything wrong about this. I’m going on three hours of sleep after a week of conference, which is not good for my comprehension and judgment abilities. Also, if you have posted anywhere about this as a result of what I or someone else wrote, please post your own retractions and apologies wherever you did that, so that other people don’t think this really happened when it didn’t. Just because you don’t like a person or organization doesn’t mean it’s okay to let misinformation stand when you know it’s false, so please spread the word.
Something ate my blogroll.
Quite awhile ago. I haven’t figured out how to put it back yet. May figure out soon, may take awhile. If when I put it back, I forget anything that was there just before it vanished, let me know.
A practical tip for packing for trips.
And no, the odd… it’s not alliteration, but some kind of interesting word pattern, in the title of this post wasn’t obvious to me until I typed it. :-)
I had to finish packing for Autreat today, with the help of someone else.
(This is also why I might not be able to get all the comments through moderation for awhile, so don’t panic if your comment doesn’t get through.)
After dealing with a few minor catastrophes (including a power outage during a thunderstorm, and discovering that someone tried to recharge non-rechargeable batteries in my charger, and the batteries leaked all over everything) we got down to trying to pack.
It’s really hard for me to pack, but I stuck it out for a few hours before I had to go and lie down.
Unfortunately, I wasn’t through telling the person I was with, which items I wanted in my messenger bag that I’d be carrying with me rather than sticking in the back of the car, and which items I just wanted packed the normal way.
My short-term memory can be utter crap sometimes. So by the time I got situated in bed, I’d forgotten most of the items and elements of them were jumbled up in my head. Everything was taking place in the other room and the other person, who was pretty strained herself, would’ve at that point probably found it impossible to either write a list of the items, carry them all into my room, or run back and forth talking to me about them.
Then I remembered I have a digital camera.
So I set it to maximum resolution, and handed it to her.
I basically said “Here, please go and take a photograph of the mess. Then bring it back, go on packing, and I’ll work out which things to put where and call you once I’ve made a list.”
She did that.
I got the photo, zoomed in, it reminded me of the locations of the items I wanted to put in my bag, and I made a list on that basis.
Both of us were very happy with this solution to the problem, it made things way less complicated than trying to either bring the stuff to me or bring me to the stuff at that point in time.
And I thought that technique might be useful to anyone who ever ends up in that situation themselves. Plus I want to remember it later myself. So I’m posting it.
How to communicate with people who insist that everyone communicates in multi-layered and manipulative ways?
(Please note that this is mostly a discussion of things that have happened offline recently. If you read this, you’re not likely to know anyone involved.)
I’m not sure what to do in situations where the purpose of someone talking to me is not to communicate, but to do something else.
I’m not talking about the relatively common phenomenon where someone with trouble understanding language might not use language for the standard way or the standard reasons. Autistic people often have that problem, I’ve had that problem, it’s different from what I’m about to discuss.
I’m talking about people who seem to have no trouble understanding words, but who introduce far too many levels of meaning and manipulation into what should be the process of communication.
I’m also not talking only about non-autistic people, nor universally about non-autistic people. I figured I had to add this because frequently when autistic people talk about something they don’t like in someone else’s communication, it becomes an “autistic vs. NT” thing whether they say it explicitly or someone else reads it in. This isn’t. I’ve seen autistic people do similar things, and the vast majority of non-autistic people don’t think like this.
I’m also not talking about people who do this only very occasionally when under a lot of stress, nor am I talking about situations in which it’s perfectly legitimate to assume that a lot of indirect communication is going on.
I’m talking about people where it’s their habitual communication style to… well, one person I know offline described the communication of someone else offline as having several “layers”, similar to the following (they described it a little differently, I’m adjusting it to a different person I’ve met recently):
- The literal meaning of what it is that they are saying.
- The implication of what it is that they are saying.
- What their actual thinking is (often different than either of those).
- What they want other people to read into what they are saying.
- What actions they want other people to go through after hearing what they are saying.
- What hierarchical status they want to maintain for themselves and the person they are speaking to.
And then, the person assumes that no matter who they are talking to, all of these different layers to communication exist for that person as well. They can’t seem to understand that most of the world doesn’t operate on this extreme a level of manipulation or hidden meanings. Yes, there are unspoken assumptions behind all communication just because of the nature of language, and the impossibility of speaking in Entish (I always thought Entish must be endlessly recursive). But most people don’t constantly try to deliberately twist the purpose of communication into a pretzel to get people to do what they want.
It’s difficult for me to come up with exact examples of conversations that have worked that way. I can remember many such conversations, but what I can’t seem to do is make up conversations based on them. The reason I can’t, is that I am horrible at reading those hidden layers of manipulation into innocent statements. So it’s difficult for me to come up with a plausible reading of those things.
That’s one of the reasons those conversations are so frustrating to me — I cannot anticipate what someone like this will think of my statements, nor can I adjust my statements to convey the right hidden meanings. I know someone else who doesn’t like conversations like this either, but she can at least match the other person’s passive-aggressive tone, and people like this often leave her alone — at least to her face — because she out-argues them in their own language.
It’s also difficult when it’s really necessary to talk to someone like this, or to ask them questions. For instance, if someone like this is doing it on the job, there’s often no way to get around having to interact with them.
There is no possible way to make a straightforward statement around someone like this. They will read into it several layers of implied meaning, most of them manipulative, many having to do with where you position yourself on a social hierarchy, and many of them to do with your wanting something out of them.
One conversation I had with someone who wasn’t always this way but was this way more often than was comfortable, went like this. I’ll call them Barbara (the person with the sometimes-unpleasant communication style) and Cindy (a mutual friend of ours). Beware: drama ahead.
Barbara was talking about how Cindy was a kind and generous person, and had helped her in a number of ways.
I completely agreed with Barbara, and said she’d helped me out a lot too. As far as I was concerned, there was nothing unusual about this statement. It complimented a mutual friend, it said what a generous person she was, and it agreed totally with Barbara. I couldn’t conceivably see any hidden meanings in it, and so I was stunned by what Barbara did in response.
She became visibly irritated. She acted as if what I had said was somehow related to how I thought Barbara must think of me. And she grudgingly told me that of course she liked me a lot too, not just Cindy. I can’t remember her exact wording, but she really seriously believed that my statement in that regard had somehow mysteriously been a commentary on me thinking that Barbara did not like me very much.
And in reality, Barbara didn’t like me very much. But I had no reason to comment on this at that or any other time — I rarely talked to Barbara at all, and didn’t mind that she didn’t like me, especially because she was the sort of person that made me automatically wary anyway. But she would never admit it to me — she would only tell friends of mine that she didn’t like me, in fact that at times she hated me.
So somehow, when we were talking about both of us liking a mutual friend, she interpreted my statements that were clearly and directly about our friend, and entirely complimentary, as having a hidden meaning about whether she herself liked me.
If I thought really hard, I could come up with at least a tenuous chain of circumstances connecting all this. Because Barbara had actually attempted to manipulate things to separate Cindy from me. It hadn’t worked, and had backfired into losing some amount of trust from both of us. So I guess in some really roundabout manner a person could read into my liking Cindy, that I somehow knew Barbara didn’t like me and wanted her approval of me. But I only figured that part out today, years after all these events had come and gone. Because that wasn’t even a part of my motivation, wasn’t even in my mind.
I suppose that’s a simple example because the conversation involved was very short, and did not get into the layers of complexity that conversations with people like this can reach if the conversations are drawn out over a long time. They also become more complex from my end because over time things can shift around, so that one moment I am picking up the tone and dropping the words, and another I am picking up the words and dropping the tone, and that all makes keeping up with even the literal content of conversations like that challenging.
More recently I had one of those conversations, offline, with someone. I was communicating solely in order to give and receive information to make sure something was going to happen that was supposed to happen. I had non-autistic witnesses who said that I was in no way what would ordinarily be construed as rude or hostile.
However, this person read deliberate hostility into my every comment and proceeded to engage in an impressive flurry of passive-aggressive nastiness. She managed to convey that there was no reason that I needed the information and no reason to even speak to someone who communicates as slowly as I do (I was having someone read my computer screen to her), to interrupt me frequently when she knew I was typing responses to her, to assert her dominance and superiority on a regular basis, and to treat me like a waste of time and space. She also told me at one point that a conversation I was trying to clarify (that I’d had with someone else) had happened right in front of her, so she knew everything there was to know about that conversation (even though if she did she’d have to have been listening in on my end) and had no need to discuss its content. And even attempting to discuss its content was an act of hostility as far as she was concerned. She also engaged in a whole lot of non sequiturs — saying things about other people that had nothing at all to do with the situation at hand, but that she was trying to use to manipulate us into dropping the conversation altogether.
The person who was there reading the computer screen was stunned and appalled at her way of communicating. But it turns out she’s like that to most people, at least most people she sees as beneath her most of the time.
It’s impossible to have an exchange of literal information with someone like this. I can say “I really mean exactly what I say, I’m not implying anything else, I’m just trying to exchange facts with each other so we’re clear on what to do about something, this is a purely practical conversation and I don’t mean anything good or bad about anyone in the course of it.” And I can say that more concisely, or more elaborately. But when I say it, people like this will even read into those statements something that wasn’t there, and will continue to refuse to just talk about the information.
Another amazing thing about conversations with people who do this, is that once they have decided that I have hidden and sinister meanings behind my words, then there is nothing I can say that won’t be put through that filter. If I pay someone like this a compliment, they seem not to even notice: They even assume there’s an insult hidden behind the compliment! If I agree with the person, then there must be an insult hidden within the agreement! It becomes absolutely impossible to convince someone I’m not insulting them right and left, because the insults are there to them whether they see it or not.
And I’ve noticed that when that particular pattern of “there must be a hidden layer of meaning to everything I say, and usually a bad one” occurs in someone who isn’t just wary because of prior bad social experiences… it’s usually someone who manipulates people all the time. It’s usually someone who’s incredibly passive-aggressive, and who mostly communicates in ways tailored to manipulating other people rather than to simply exchange information or reinforce social bonding. Sometimes it’s manipulating people into actions, other times it’s simply attempting to manipulate everyone they know into liking them. But it’s always that sort of communication on way too many layers and expecting everyone else to do the same.
I don’t communicate on that many layers, at least not layers of that kind. I haven’t the foggiest idea how to communicate with people who do. Whether they’re autistic or not, their communication style is impossible for me to predict or decipher, and I have absolutely no clue how to say things in ways that they’ll understand the meaning rather than making up five or six layers of complication into it. I can’t even figure out how to say things in ways where they’ll take the imaginary layers as positive rather than negative. It’s just a complete mystery to me.
If anyone else has clues on how to communicate with people like this, please let me know.
Free Speech 101
Updated to add: PLEASE READ MY APOLOGY AND RETRACTION. Autism Speaks did not do this this time. Anything not pertaining to Zach’s t-shirt is still a concern, but the thing with Zach’s t-shirt is no longer a concern. Please read my retraction for more links on the topic.
Someone just asked me why it was that I could oppose the kind of censorship occurring in my last post, when I am involved with two different organizations (ANI and autistics.org) who both have rules about what can and cannot be posted in their forums, and will put people on moderation if they break those rules. And, presumably, because I have a blog in which I don’t allow certain kinds of comments to be posted either.
I will try to explain the difference as well as I can, in case anyone else is wondering the same thing.
Edited to add: But first, please read through the ad hominem fallacy, tu quoque. Even if I were really engaged in censorship, it would not make me inaccurate in pointing out someone else’s. But, I’m not.
Basically it works like this:
Censorship (or in some people’s view, the bad kind of censorship) is preventing someone from doing the equivalent of printing their own totally legal material on their own paper.
Whereas, what autistics.org and ANI have as policies, is the equivalent of saying that you can’t print certain views on paper that we happen to own. You can’t do the equivalent of coming in and using our printing presses to just print whatever agenda you feel like, there are boundaries there. That’s totally fine.
I could decide to create a mailing list that had a rule that anyone whose name started with F could not post there, ever, and that everyone else could only post every other Tuesday. I could then put people on moderation if they tried to break those rules, or even remove them from the list. That would not be censorship — people whose names started with F could go and post somewhere else, and same with people who wanted to post on days other than alternate Tuesdays. I would not be preventing them from doing that.
What would be censorship is if I started such a list, and then went around trying to keep other people from breaking my rules on their own lists that I didn’t even own.
I would have no problem if the Autism Speaks message board moderated or banned perfectly legal posts that disagreed with the mission of the organization. They have every right to do that. It’s their message board, not mine. I would have no problem if I were moderated or thrown off of a mailing list dedicated to chelation of autistic people, because I clearly disagree with that procedure. People are routinely thrown off such lists and that’s just fine.
They’re not doing that.
If people printed up a batch of t-shirts saying “autistics.org doesn’t speak for me,” I wouldn’t try to do anything, I wouldn’t even really care. I certainly wouldn’t sue them for copyright infringement for saying the word “autistics.org”.
If someone tried to disseminate the idea that autistics.org was run by a bunch of child molesters, that would be defamatory, and that would not be okay. Defamation is not protected free speech.
If someone tried to sell a book with the writings from autistics.org in it, without obtaining permission (and this has happened in at least one book that I came across completely by accident one day), that would be copyright infringement, and that would not be okay.
But a t-shirt saying “autistics.org doesn’t speak for me” or “Autism Speaks doesn’t speak for me” is well within protected free speech, at least in the United States, where both autistics.org and Autism Speaks are based.
Now, if someone tries to come to, say, ANI-L, with the express purpose of trying to talk everyone into believing that it’s horrible not to want a cure, then they will probably eventually get themselves banned.
If someone tries to come onto my blog and violate my comment policy (say, telling people here we’re not autistic enough to understand the needs of real autistic people), then their comments will be moderated, and if it happens consistently enough with them not providing much if any useful content beyond that, I might chuck their name into my spam filter and forget about them. (I so far have not had to do this very often, most people are more respectful than that.)
But people are totally able to go off and make their own mailing lists or blogs with the totally opposite set of rules. Free speech means that you can go make a mailing list or blog dedicated entirely to wanting a cure, and throw off anyone who argues against it because it gets in the way of your goal of finding or funding a cure.
Free speech means that you can go off and form a mailing list entirely full of people that you believe are “autistic enough” to comment about autism, and moderate comments from anyone you don’t think is autistic enough.
Free speech doesn’t mean that you have every right to, no matter what your viewpoint is and what organization it is, come onto someone else’s forum, or use someone else’s printing press, to disseminate your own viewpoint.
So there’s no actual contradiction here: Autism Speaks is attempting to interfere with other people’s totally legal and protected free speech. They are not just restricting what can be said on their own forum (which is their right, whether they choose to do so or not), they are attempting to restrict totally legal (non-copyright-infringing, non-defamatory) content that people print on their own t-shirts and websites, just because it expresses dislike of their organization.
And that’s all the difference in the world.