Comments on: Love, Fear, Death, and Disability https://ballastexistenz.wordpress.com/2014/05/01/love-fear-death-and-disability/ Sun, 18 Dec 2016 05:10:15 +0000 hourly 1 http://wordpress.com/ By: sojournerstentpress https://ballastexistenz.wordpress.com/2014/05/01/love-fear-death-and-disability/#comment-29990 Sun, 18 Dec 2016 05:10:15 +0000 http://ballastexistenz.wordpress.com/?p=1570#comment-29990 Reblogged this on Healing Hilary's Heart and commented:
Amanda writes again, about something that I carry with me every day, and I am living now, embracing life, afraid of death and needing to make peace with it.

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By: bunnyhopscotch https://ballastexistenz.wordpress.com/2014/05/01/love-fear-death-and-disability/#comment-25467 Fri, 02 May 2014 00:00:52 +0000 http://ballastexistenz.wordpress.com/?p=1570#comment-25467 Thank you very very much for this post.

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By: Lili https://ballastexistenz.wordpress.com/2014/05/01/love-fear-death-and-disability/#comment-25450 Thu, 01 May 2014 12:35:02 +0000 http://ballastexistenz.wordpress.com/?p=1570#comment-25450 This means so much to me because I now know what it’s like to be in ICU close to death. I was aware, and attempting to communicate, when they did not yet know whether I would live or die.

They would not give me a pencil when I indicated I wanted one, and deliberately moved the writing surface out of my reach.

When a compassionate nurse (the *only* compassionate nurse) finally gave me a pencil, paper, and a writing surface, what did I write?

I wrote “I love you.”

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By: terry holden https://ballastexistenz.wordpress.com/2014/05/01/love-fear-death-and-disability/#comment-25449 Thu, 01 May 2014 12:10:00 +0000 http://ballastexistenz.wordpress.com/?p=1570#comment-25449 In reply to terry holden.

ps, i’m struggling without spell check here, time to dust off my third grade spelling rules, hahaha

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By: terry holden https://ballastexistenz.wordpress.com/2014/05/01/love-fear-death-and-disability/#comment-25448 Thu, 01 May 2014 12:08:37 +0000 http://ballastexistenz.wordpress.com/?p=1570#comment-25448 These words, thoughts, perspectives are so complete. I too will keep them close at hand. It’s perhaps the best articulation of the feeling of love, struggle, percevierance, and keeping love through all of it. With fond appreciation, i always enjoy your posts ~ t.

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By: The Goldfish https://ballastexistenz.wordpress.com/2014/05/01/love-fear-death-and-disability/#comment-25443 Thu, 01 May 2014 08:37:52 +0000 http://ballastexistenz.wordpress.com/?p=1570#comment-25443 Mr Goldfish was awake before me and as I was coming round, he said he was about to read this as you’d said about there not being a category. He decided to read it out loud while I waited to be able to sit up. So first thing this morning, there were two of us, lying in bed, having a cry together. (We’ve put a new category of “DIsability, Life and Death.”

What you’ve written here is tremendous and articulates so much. Thank you very much for writing this (and for all the other work you’ve done for today, which I haven’t had a chance to read yet). Hope you’ve got plenty more time to live the life you’d like to live.

Thank you.

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By: Mel Baggs https://ballastexistenz.wordpress.com/2014/05/01/love-fear-death-and-disability/#comment-25438 Thu, 01 May 2014 07:00:28 +0000 http://ballastexistenz.wordpress.com/?p=1570#comment-25438 In reply to Jam.

I’ve been around other places on the net, but I always felt like this blog required a certain level of formality from me, or at least a certain amount of thought behind what I was writing, like I don’t just rattle things off and post them here without thinking about them. And that’s not something I had the energy to give, for a really long time. I’m hoping it’ll be better now that I’m on dexamethasone.

As for the bullies, they have to live a much more limited life than me to even care so much about me. I mean it takes time and energy to focus that much hatred, and I mostly try to not think about them much, they don’t deserve it. But I do worry about the chilling effect they have on other people, because I’ve gotten a lot of emails from people a lot like me, who are now scared to tell their stories because of what I’ve gone through.

And thank you. The positive comments I get mean a lot even when I can’t figure out how to reply to them. Even comments that aren’t so positive are welcomed, as long as they’re thoughtful and not malicious. Malicious comments won’t be tolerated, not even if they masquerade as innocent. And neither will certain kinds of comments that are destructive even if not malicious. (So basically, disagreement’s fine, malice isn’t, neither is stuff that has a certain destructive effect that I can’t quantify in words.)

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By: Jam https://ballastexistenz.wordpress.com/2014/05/01/love-fear-death-and-disability/#comment-25437 Thu, 01 May 2014 06:56:36 +0000 http://ballastexistenz.wordpress.com/?p=1570#comment-25437 I was just thinking about you, about this blog, a few days ago… wondering what had happened to you, why this space was silent for so long. I’m so glad you’re alive and doing better. You don’t know me from Eve but I’ve been following your blog for a long time. You’re an excellent writer, an insightful artist, and an intelligent, empathetic activist. I discovered your blog while my sense of empathy was still maturing and you’ve had a profound effect on that maturation.

It’s such a relief to know you’re okay. I just wanted to say that, and to thank you for blogging, for sharing pieces of yourself with the world the way you do. I wish I could snap my fingers and all the bullies’ lips would be sealed and their words would evaporate into thin air but I can’t so instead I just want to send you as much positivity and good will as I can in a blog comment.

Looking forward to reading whatever you share in future.

sincerely,
Jam

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By: Jennifer https://ballastexistenz.wordpress.com/2014/05/01/love-fear-death-and-disability/#comment-25432 Thu, 01 May 2014 03:20:57 +0000 http://ballastexistenz.wordpress.com/?p=1570#comment-25432 I do not think you are wrong at all!! This was great and it was so powerful and just worded so perfectly. I seriously cannot stress enough or even express in words what an impact that article had on me and will have on others. It was so wise, smart, and right.
-thank you again!!

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By: Mel Baggs https://ballastexistenz.wordpress.com/2014/05/01/love-fear-death-and-disability/#comment-25430 Thu, 01 May 2014 02:57:15 +0000 http://ballastexistenz.wordpress.com/?p=1570#comment-25430 In reply to Jennifer.

Wow, thanks… but don’t take my word for everything, that makes me nervous. Because I can be wrong in huge ways too. But I do feel like this is one of the more important things I’ve ever written on this blog. I hope I’m right.

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