Comments on: After this, I am never again putting up with bullies telling me that my medical conditions are imaginary. https://ballastexistenz.wordpress.com/2014/05/01/after-this-i-am-never-again-putting-up-with-bullies-telling-me-that-my-medical-conditions-are-imaginary/ Sun, 04 May 2014 09:05:20 +0000 hourly 1 http://wordpress.com/ By: Lame Dyke https://ballastexistenz.wordpress.com/2014/05/01/after-this-i-am-never-again-putting-up-with-bullies-telling-me-that-my-medical-conditions-are-imaginary/#comment-25544 Sun, 04 May 2014 09:05:20 +0000 http://ballastexistenz.wordpress.com/?p=1527#comment-25544 This post is truly wonderful and I quotes some parts and linked to it on my blog. I just escaped an abusive situation in which my partner and I were told we were faking in order to get money and drugs (drugs that just so happen to be our prescribed meds)… This stereotype and faking crap needs to stop.

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By: Mel Baggs https://ballastexistenz.wordpress.com/2014/05/01/after-this-i-am-never-again-putting-up-with-bullies-telling-me-that-my-medical-conditions-are-imaginary/#comment-25540 Sun, 04 May 2014 08:02:44 +0000 http://ballastexistenz.wordpress.com/?p=1527#comment-25540 In reply to Maija Haavisto.

Yes, my adrenal insufficiency originates in my pituitary also. And it really sucks when people don’t get it.

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By: Maija Haavisto https://ballastexistenz.wordpress.com/2014/05/01/after-this-i-am-never-again-putting-up-with-bullies-telling-me-that-my-medical-conditions-are-imaginary/#comment-25539 Sun, 04 May 2014 07:32:46 +0000 http://ballastexistenz.wordpress.com/?p=1527#comment-25539 Besides CFS/ME I have hypopituitarism, which includes adrenal insufficiency and various other hormonal deficiencies which make life hell (I’ve had treatment for adrenal insufficiency for almost six years and still I’ve been close to dying from it so many times I lost count years ago). I haven’t been bullied online for being fake (other CFS/ME patients on my CFS/ME forum have bullied me for other reasons), but none of the people in my life seem to care about this severe, life-threatening illness.

They aren’t saying it’s imaginary, they just treat it as if it doesn’t matter, as if it doesn’t affect my life in any way. That I’ve been near death because of it? Doesn’t matter. Death is, after all, a minor nuisance. People ask me “Why X?” (usually “why haven’t you still done X”) and when I answer “because of hypopituitarism”, they say “no, that’s not it”. Gee, thanks for telling me. It’s a good thing everyone in this world knows what happens in my body, except for me (me who has successfully diagnosed all the illnesses I have years before I’ve got an official confirmation).

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By: MurderOfGoths https://ballastexistenz.wordpress.com/2014/05/01/after-this-i-am-never-again-putting-up-with-bullies-telling-me-that-my-medical-conditions-are-imaginary/#comment-25526 Sat, 03 May 2014 23:02:41 +0000 http://ballastexistenz.wordpress.com/?p=1527#comment-25526 This is a wonderful post, such good news for you, and hope inspiring for those of us still undiagnosed.

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By: Lisa Harney https://ballastexistenz.wordpress.com/2014/05/01/after-this-i-am-never-again-putting-up-with-bullies-telling-me-that-my-medical-conditions-are-imaginary/#comment-25486 Fri, 02 May 2014 10:06:32 +0000 http://ballastexistenz.wordpress.com/?p=1527#comment-25486 In reply to Mel Baggs.

Yes, and I’ve seen others latch onto those partial truths as evidence. It’s awful stuff.

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By: Mel Baggs https://ballastexistenz.wordpress.com/2014/05/01/after-this-i-am-never-again-putting-up-with-bullies-telling-me-that-my-medical-conditions-are-imaginary/#comment-25485 Fri, 02 May 2014 09:44:44 +0000 http://ballastexistenz.wordpress.com/?p=1527#comment-25485 In reply to Lisa Harney.

And the half-truths they tell are far more damaging than the lies in some ways, because they look true on the surface, they rely on partial truths.

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By: bunnyhopscotch https://ballastexistenz.wordpress.com/2014/05/01/after-this-i-am-never-again-putting-up-with-bullies-telling-me-that-my-medical-conditions-are-imaginary/#comment-25470 Fri, 02 May 2014 00:19:08 +0000 http://ballastexistenz.wordpress.com/?p=1527#comment-25470 Reblogged this on bunnyhopscotch and commented:
Another cogent post by Amanda Baggs. For me, the most difficult and painful awakening about bullies, bullying and learning to stand up for Self despite Other, has come from family members. People who are *supposed* to care for you, with whom you grew up and are not explicitly taught to beware of, siblings and even parents, educated people, who deny even a medical diagnosis and physical evidence (apparently, seeing is not believing to these types) in order to fulfill some twisted innate desire to mock, torture and eventually annihilate the weak among them. I have learned to be strong against the enemy without, but the enemy within one’s ranks is the most vicious of all evils.

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By: bunnyhopscotch https://ballastexistenz.wordpress.com/2014/05/01/after-this-i-am-never-again-putting-up-with-bullies-telling-me-that-my-medical-conditions-are-imaginary/#comment-25468 Fri, 02 May 2014 00:03:14 +0000 http://ballastexistenz.wordpress.com/?p=1527#comment-25468 Poignant and cogent. Thank you. It can be an immense struggle, especially when the ‘bullies’ are family members.

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By: Lisa Harney https://ballastexistenz.wordpress.com/2014/05/01/after-this-i-am-never-again-putting-up-with-bullies-telling-me-that-my-medical-conditions-are-imaginary/#comment-25441 Thu, 01 May 2014 07:37:29 +0000 http://ballastexistenz.wordpress.com/?p=1527#comment-25441 I am glad you have been able to track down all those things, and especially that last one since it’s been a problem for years with no resolution.

I remember when I was trying to research autism and I found all of those webpages where the bullies were posting their lies about you, and like… it is not hard at all for me to imagine people wanting to do that, but seeing it in action was horrible. No one should ever be put through that kind of crap.

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By: Jennifer https://ballastexistenz.wordpress.com/2014/05/01/after-this-i-am-never-again-putting-up-with-bullies-telling-me-that-my-medical-conditions-are-imaginary/#comment-25420 Thu, 01 May 2014 00:35:03 +0000 http://ballastexistenz.wordpress.com/?p=1527#comment-25420 You are truly a inspiration, witty and poignant. I really love the way you write and describe in detail of your circumstances and how you truly and whole heartedly feel about it all. Thank you for your posts as they are so touching and informative and I am so glad you are feeling better and able to do things now that most people take for granted. Again, thank you and all the beat to you.

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