Comments on: I’m out. (I aten’t dead) https://ballastexistenz.wordpress.com/2012/10/22/im-out/ Sat, 19 Oct 2013 05:13:23 +0000 hourly 1 http://wordpress.com/ By: Amanda https://ballastexistenz.wordpress.com/2012/10/22/im-out/#comment-24714 Sat, 19 Oct 2013 05:13:23 +0000 http://ballastexistenz.wordpress.com/?p=1502#comment-24714 In reply to Doug.

Yes. :-)

]]> By: Doug https://ballastexistenz.wordpress.com/2012/10/22/im-out/#comment-24662 Fri, 26 Jul 2013 13:16:19 +0000 http://ballastexistenz.wordpress.com/?p=1502#comment-24662 Glad you’re better. Does the subtitle suggest that you’re a Pratchett fan?

]]> By: Lucy Series https://ballastexistenz.wordpress.com/2012/10/22/im-out/#comment-24494 Mon, 15 Apr 2013 09:37:51 +0000 http://ballastexistenz.wordpress.com/?p=1502#comment-24494 Hi Amanda,

I’m so glad you’re ok and soon to be coming home; we’ve been worried about you here! Your experience in hospital sounds awful. Sadly it’s not an experience that unique to the US – there’s research in the UK on premature death among people with disabilities because of the treatment they receive in healthcare services:

Click to access fullfinalreport.pdf

I know you’re generally really busy and probably inundated with people contacting you, not to mention busy recovering from your illness, but I work for the Centre for Disability Law and Policy at NUI Galway in Ireland:
http://www.nuigalway.ie/cdlp/

The Centre does a lot of work on themes that you often discuss on your blog (we are all enormous fans of your blog – it’s on our reading lists here) – issues like deinstitutionalisation, rights to personal assistance and independent living, work on guardianship and also poor treatment in healthcare. We are running various projects and conferences on these topics, including a project focussed on getting people out of institutions in Eastern European countries, and giving them access to support to live independently and make decisions for themselves (rather than being appointed a guardian). We find your videos and posts extremely powerful. If you might be at all interested in getting involved in any way, we would be absolutely delighted. It’s an open invitation, and you can always get hold of me at the blog linked to in this comment.

Take care, and I wish you a speedy recovery!
Lucy

]]> By: Louna https://ballastexistenz.wordpress.com/2012/10/22/im-out/#comment-24469 Thu, 04 Apr 2013 18:19:37 +0000 http://ballastexistenz.wordpress.com/?p=1502#comment-24469 I’m not a regular reader here, but I do know of you and got worried when I just read on Bad Cripple that you were resisting doctor who told you to consider “alternatives” to treatment. I’m glad you’re better and out of there! The gastric problem seems a pain, but at least you’ve got a diagnosis and meds that seem to work now.

]]> By: Andrea Shettle, MSW https://ballastexistenz.wordpress.com/2012/10/22/im-out/#comment-24448 Sun, 03 Mar 2013 15:41:24 +0000 http://ballastexistenz.wordpress.com/?p=1502#comment-24448 Hi, Amanda,
I hope your health (and life in general) is doing okay
I just wanted to drop a note to let you know that I’ve started a new wordpress blog called “Rambling Justice” (because I ramble a lot, and will probably do a lot of that rambling about social justice issues). My first post there is about the importance of having more deaf characters, and characters who experience various forms of marginalization in general, in fiction, with a personal perspective on the first time I “met me” inside a book contrasted with my experience with the TV program, “Switched at Birth”. Am deliberately avoiding hypertext link in the hope that this helps prevent this comment from being caught in your spam filter! :-)

Me, The Bobbsey Twins, and Switched At Birth

]]> By: athenivandx https://ballastexistenz.wordpress.com/2012/10/22/im-out/#comment-24434 Sat, 16 Feb 2013 05:08:22 +0000 http://ballastexistenz.wordpress.com/?p=1502#comment-24434 Long time no update. I hope that means you have been keeping very busy maintaining your health. Happy New Year, a month and a half late.
Ivan

]]> By: AnnA https://ballastexistenz.wordpress.com/2012/10/22/im-out/#comment-24431 Sat, 09 Feb 2013 04:34:49 +0000 http://ballastexistenz.wordpress.com/?p=1502#comment-24431 In reply to AnnA.

awesome, for some reason 10 paragraphs are missing from the middle of my original message. i was diagnosed w/ gastroparesis last yr and on top of the drugs for everything else i’m supposed to take, it was just too much! i couldn’t move or think (total zombie) on Reglan and my eye starting twitching and the whitecoats just wanted to up the dosage and for me to be a good lil patient, take more drugs and suffer in silence. but enough is enough. i got my blood tested- and my hormones were way off and i was totally vitamin/nutrient deficient. “let food by thy medicine dr. hippocrit said ;) http://en.wikipedia.org/wiki/Orthomolecular_medicine

]]> By: AnnA https://ballastexistenz.wordpress.com/2012/10/22/im-out/#comment-24430 Sat, 09 Feb 2013 03:57:33 +0000 http://ballastexistenz.wordpress.com/?p=1502#comment-24430 Amanda is a Latin name meaning, “deserving to be loved,” or, simply, “worthy of love.” =)

Beloved,

!!!! thank you, thank you, thank you!!!! ….for all that you’ve written on this blog, i can’t describe how grateful and empathetic i am, but i want to try because:
>>>>you are so very right about such a very wrong world<<<>

I have a medical marijuana card. my nausea, vomiting, anxiety, depression and even body pains have dropped dramatically. i am the last person to push any kind of drug, but for me, it’s a god-send.

i also have a juicer and food processor. i take liquid vitamins, enjoy a lot of exotic soups… and i read, i love to find blogs that remind me that i’m a person and i’m not alone.

i am very open to any questions or comments you might have, so when you can & (if you want to) i am here for anything.

your admirer,

~Anna

]]> By: Slaine O'Halloran https://ballastexistenz.wordpress.com/2012/10/22/im-out/#comment-24352 Fri, 09 Nov 2012 14:25:26 +0000 http://ballastexistenz.wordpress.com/?p=1502#comment-24352 Hi Amanda,

I think your blog is really good and I was wondering if you would mind me linking to it? If you could email me when you’re feeling better or respond to this comment, I’d really appreciate it. I hope you’re recovering well from your pneumonia.

]]> By: Pat Martinez https://ballastexistenz.wordpress.com/2012/10/22/im-out/#comment-24333 Tue, 30 Oct 2012 04:44:55 +0000 http://ballastexistenz.wordpress.com/?p=1502#comment-24333 Reading what you are going through Amanda tore me up. I was angry that this was happening to you, as if it was unjust. I raised my clenched fists in anger. This was followed by tears of sadness. You seem so brave to be able to endure so much and keep on writing and sharing. I wish you the very best.

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