Comments on: This won’t go away just because you want it to. https://ballastexistenz.wordpress.com/2011/08/18/this-wont-go-away-just-because-you-want-it-to/ Mon, 12 Sep 2011 13:58:31 +0000 hourly 1 http://wordpress.com/ By: urocyon https://ballastexistenz.wordpress.com/2011/08/18/this-wont-go-away-just-because-you-want-it-to/#comment-23155 Mon, 12 Sep 2011 13:58:31 +0000 http://ballastexistenz.wordpress.com/?p=1348#comment-23155 Sorry for the late comment, but I haven’t been keeping up too well lately.

I’ve had a milder version of that kind of thing going, which mostly comes out day to day in not being able to leave my cuticles and other skin around my nails alone, and picking at scabs and keratosis pilaris bumps and sometimes eczema. (Leading to some scabs to pick, yeah.) It gets harder to manage when I’m under stress. To the point that if I start having worse trouble leaving things alone now, I look for stressors that I might not have consciously registered yet. And, yeah, to me it’s very different from either purposeful SI (which I have also done) or the headbanging kind of reaction. It kept getting treated as purposeful SI, and I was also threatened with hospitalization over it more than once. Which did not decrease the stress causing that exascerbation, no.

someone^Amorpha wrote: And we had this thing going on for awhile where we would be able to kind of “save up” the impulse to do it and then let it out in private, because we got told we were hurting people we cared about by making them “watch us hurt ourselves.” And that, in its own way, felt worse than the guilt about not being able to stop it ever did, or having people yell at us that it was disgusting, or…

Oh yeah. I used to get guilted like this a lot, not limited to the picking at things, but definitely with that. For extra fun, substitute “mutilate” for “hurt” there. Definitely identify with managing it rather than doing the destructive kind of neverending self-psychoanalyzing. Which, to me at least, is about as appropriate as trying to come up with the deep hidden psychological reasons you’re having Tourette-type tics. (Not that this was not pushed as necessary too, mind you.) The compulsions feel similar enough to me that I have wondered if it might be related.

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By: Lisa Harney https://ballastexistenz.wordpress.com/2011/08/18/this-wont-go-away-just-because-you-want-it-to/#comment-23121 Sat, 03 Sep 2011 03:04:03 +0000 http://ballastexistenz.wordpress.com/?p=1348#comment-23121 I did a lot of skin picking in high school. I used to peel the skin off the palms of my hands fairly constantly, and I’d sometimes use needles to do it. I stopped doing that and biting my fingernails down to the bloody quick shortly after I left high school and never did it again. High school was pretty stressful for me, which contributed, but it wasn’t something I recall ever consciously deciding to do it or stop, I just did it, and I don’t recall many people noticing, and at some point I noticed I didn’t do it anymore. I had several relatively mild SIBs in childhood and teen years that are mostly gone now.

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By: Kent https://ballastexistenz.wordpress.com/2011/08/18/this-wont-go-away-just-because-you-want-it-to/#comment-23118 Thu, 01 Sep 2011 21:10:13 +0000 http://ballastexistenz.wordpress.com/?p=1348#comment-23118 Thanks a bunch for this post- it really is a great resource for others who have similar habits and want to know that they are not alone.

A friend of mine has an issue with his eyelids where they are almost open wounds for months at a time, and because he squints quite often, they rarely have a chance to dry and heal and he just keeps rubbing and rubbing and rubbing on them.

I’m glad to have read a post that didn’t offer a laundry list of solutions that aren’t personal at all and instead just celebrate the fact that it is what it is.

Also- thanks for the cat video ;)

If you ever want to chat or need additional resources, stop by our facebook page http://fb.me/rethinkautism & say hello! We believe in supporting all kinds of awareness and progress in the autism community. :)

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By: Ivan https://ballastexistenz.wordpress.com/2011/08/18/this-wont-go-away-just-because-you-want-it-to/#comment-23116 Tue, 30 Aug 2011 17:29:37 +0000 http://ballastexistenz.wordpress.com/?p=1348#comment-23116 we have the same issue with picking at our left eyebrow……..eventually the skin gets hard and then forms a nub……..it just feels really, really good. And yes, trying to stop reuquires lots of concentration,……….sometimes our parents get irritated/distracted by it and tell us to stop……….not wanting to be yelled at some more we comply but………makes it harder to process what they’re saying………..

thanks for sharing. and hope everything is okay after Irene

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By: J https://ballastexistenz.wordpress.com/2011/08/18/this-wont-go-away-just-because-you-want-it-to/#comment-23114 Sun, 28 Aug 2011 05:32:19 +0000 http://ballastexistenz.wordpress.com/?p=1348#comment-23114 In reply to Pancho.

I’ve had people reacting this way when I talk about eating paper (MY paper), which I don’t do much. “Pica pica pica.” Maybe we should start making up medical terms for things other people do and place the verb after the noun to make it sound more medicalized. What’s weird is that people seem to see eating paper as one of the worst things I could do and I get scared when someone might find out about it, but it’s actually not harmful to eat certain types of paper.

Seriously? I ate paper all of the time up through early adolescence (I’d tear Kleenex into strips and eat them), as well as all kinds of other odd things, and never got more than a mild “That’s weird” from people. However I’ve never been diagnosed with anything (I am, as far as I know, totally neurotypical) and was pegged as gifted and artistic at an early age, so that probably makes an immense difference in how these things are handled.

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By: Grafton https://ballastexistenz.wordpress.com/2011/08/18/this-wont-go-away-just-because-you-want-it-to/#comment-23109 Thu, 25 Aug 2011 03:07:43 +0000 http://ballastexistenz.wordpress.com/?p=1348#comment-23109 That’s interesting. I have no doubt that the impulse is very similar to feather-picking in parrots, falling into the class of stereotypic behaviors.

The suggestion ‘put something else on your skin and pick that off’ seems pretty stupid, since putting something on, peeling it off, putting it back on, repeat, is just not the same pattern of behavior. I imagine it might actually work if you spattered specks of adhesive all over one arm or something, but that would probably be, under most circumstances, not an improvement.

A friend of mine who had this problem was able to transfer the behavior to a big piece of flaky sandstone that I used as a coffee-table, when in the presence of my coffee-table. This sort of thing may help the parrot who plucks. Not a coffee-table, but a toy that has soft pieces that can be pulled off one by one.

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By: Danielle https://ballastexistenz.wordpress.com/2011/08/18/this-wont-go-away-just-because-you-want-it-to/#comment-23107 Wed, 24 Aug 2011 16:20:33 +0000 http://ballastexistenz.wordpress.com/?p=1348#comment-23107 I totally get that. I have the same issue with hair. Thankfully after I shaved my head a couple of times, I got used to not pulling any of the hair on my head, but… all the other hair on my body still gets targeted. I’m pretty sure it’s a sensory issue. I hate stuff touching my skin–including my own hair. I do the whole minor-self-injury thing, too, and got hospitalized twice because of the “danger to self or others” issue. I hate that phrase. Utterly hate it. It’s like they can bring it out and then do anything they please, like it’s a magic spell or something.

The way I figure it, minor injury isn’t a problem–you just have to keep things clean, so the danger of infection is minimized.

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By: sanabituranima https://ballastexistenz.wordpress.com/2011/08/18/this-wont-go-away-just-because-you-want-it-to/#comment-23106 Tue, 23 Aug 2011 17:04:48 +0000 http://ballastexistenz.wordpress.com/?p=1348#comment-23106 I have mild dermatillomania. It’s only on my scalp and is exacerbated by stress (it was also exacerbated massively by a particular medication, which I don’t take anymore.) Wearing a hat helps. So do gloves, but they get in the way if I need to write, type, turn pages or do ANYTHING with my hands.

I do get fascinated by the scabs and bits of skin, too – although I don’t keep them.

I always *know* when I’m picking, but it’s a really strong impulse and not doing when I want to means I can’t fully concentrate on anything else.

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By: someone^Amorpha https://ballastexistenz.wordpress.com/2011/08/18/this-wont-go-away-just-because-you-want-it-to/#comment-23104 Sun, 21 Aug 2011 10:19:59 +0000 http://ballastexistenz.wordpress.com/?p=1348#comment-23104 The way you describe your skin picking sounds in some ways like how hair pulling actually is for us. We’ve made some progress over the years in cutting down on it, but there are times when it just requires… like you described, that constant, constant vigilance every second, or else we’ll just find our hands going to our scalp and picking through our hair and pulling it out. And there just seems to be no way to continually maintain that vigilance every second of every day, and then if we end up doing it again after a relatively long period of going without it, we’ll get angry at ourselves for “relapsing” and then because of that, pull out even more hair, even though that makes no sense by any kind of conventional logic.

And… in our earliest memories of doing it, we remember it clearly as being an enjoyable activity for us, not something like hitting our head we did out of stress. It was like a kind of stim. I might go so far as to say that it just flat-out is one, under a lot of circumstances– not only the physical texture of the hairs, but also the pain. That part, actually, did not really come into focus for us until we read an essay on BDSM talking about the difference between “good pain” and “bad pain,” for many people who practice it, and the description of “good pain” kind of flipped a switch in our brain and we went “oh, yeah, holy crap, it’s a lot like that.” Because we had never really been exposed to the concept that pain could be good in any case, and we’d spent several years dealing with various kinds of chronic pain in various ways, none of which were “good pain” at all and which we very much wanted to get rid of. (Then again, like I think you mentioned in another blog post somewhere, the things that get called “pain” are a whole bunch of different types of sensations, and we haven’t got as many as you do, but have still had the experience of our brain dealing with and processing them in totally different ways. Like going to look for an Advil for a headache when our legs have been burning all day fron the fabric in our pants, but that somehow not registering to our brain as “being in pain,” and the concept “our body is in pain” only happening when we start experiencing a type that isn’t usual for us.)

So, yeah, I don’t know if it’s like this for you, but the pain associated with it is often a good feeling for us. And one of the other earliest things we remember about it was being fascinated with the hair that we pulled out and how it could vary in color, texture, etc, and a lot of other little things, and having a box that we’d saved a bunch of our hair in, and making up various onomatopoeic words for different types of hair. And it not seeming to be gross at all, just fascinating, sometimes too fascinating to the point where we had to force ourselves to try to do something else.

…we’ve, um, also had some experience with people regarding it as a deliberate form of self-harm, even if not the exact same experiences as the ones you describe, and… well, I don’t feel comfortable talking about it much here, but there was a point at which we felt absolutely horrible not because we couldn’t stop doing it, but because we had been told that if we kept doing it, it meant that we “believed our body deserved to be punished” and that meant we hadn’t “healed,” in a recovery-movement type of way. And we had this thing going on for awhile where we would be able to kind of “save up” the impulse to do it and then let it out in private, because we got told we were hurting people we cared about by making them “watch us hurt ourselves.” And that, in its own way, felt worse than the guilt about not being able to stop it ever did, or having people yell at us that it was disgusting, or having people spread rumours around our school that what we were actually doing was picking lice out of our hair and eating them. We’ve actually had more success minimizing it by… approaching it as something to be managed rather than totally eliminated, or guilt-tripping or psychoanalyzing the hell out of ourselves by deciding there must be some deep buried psychological reason for why we “want to hurt ourselves” and that we must stop it now now now.

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By: Pancho https://ballastexistenz.wordpress.com/2011/08/18/this-wont-go-away-just-because-you-want-it-to/#comment-23103 Sun, 21 Aug 2011 02:19:51 +0000 http://ballastexistenz.wordpress.com/?p=1348#comment-23103 Ehhh marge is this why I sometimes wake up with cuts and things on myself? I always thought that was weird but it was never enough to be worrying and it hasn’t happened in a while.

And yeah it’s strange how people can completely ignore how hard you are trying to hide something and call it attention seeking.

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