Comments on: “I Am Gonna Write You Up” https://ballastexistenz.wordpress.com/2008/09/22/i-am-gonna-write-you-up/ Mon, 29 Sep 2008 00:28:49 +0000 hourly 1 http://wordpress.com/ By: sanabituranima https://ballastexistenz.wordpress.com/2008/09/22/i-am-gonna-write-you-up/#comment-21586 Mon, 29 Sep 2008 00:28:49 +0000 http://ballastexistenz.autistics.org/?p=563#comment-21586 I’ve had that. When I was severely depressed, had attempted suicide, was self-harming and had an eating disorder, I spoke to a therapist who told me that I was “unwilling to accept help” because I didn’t make eye contact.

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By: Lisa https://ballastexistenz.wordpress.com/2008/09/22/i-am-gonna-write-you-up/#comment-21585 Sun, 28 Sep 2008 05:50:04 +0000 http://ballastexistenz.autistics.org/?p=563#comment-21585 I have worked in places where the “I’m right, you’re crazy/wrong” ethos is strong, though the residents were not “disabled.” They were adolescent girls who had the misfortune of being born into dysfunctional families and were essentially being punished for their maladaptive coping mechanisms. I repeatedly observed gigantic humanity deficits in that setting.

But I have to tell about a school (non-residential) I visited last week. The class I was observing had one teacher and 2 aides. The students were 18 – 22 years old — a transitional class. I was feeling so comfortable there and I realized it was because everyone was treated with respect. I didn’t even realize how much I was dreading the visit until I noticed that I was relaxed and enjoying myself with these interesting people, who were all (staff and students) being themselves without repercussion.

Sadly, I guess my unexpected feelings there underline the rarity of such settings. It was such a pleasure for me, and a good reminder of how things can be.

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By: Travis https://ballastexistenz.wordpress.com/2008/09/22/i-am-gonna-write-you-up/#comment-21584 Sat, 27 Sep 2008 10:52:58 +0000 http://ballastexistenz.autistics.org/?p=563#comment-21584 This sort of reminded me of Randy Newman, the master of songs in the voice of brutal people who don’t realize they’re brutal. Seems to me Newman should take this subject on; he’s ripe for it. Of course, it would be so dripping with irony that everybody would miss the point and take it literally. As that “short people” incident demonstrated.

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By: Rachel Hibberd https://ballastexistenz.wordpress.com/2008/09/22/i-am-gonna-write-you-up/#comment-21583 Fri, 26 Sep 2008 22:49:29 +0000 http://ballastexistenz.autistics.org/?p=563#comment-21583 Good point.

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By: Static Mom https://ballastexistenz.wordpress.com/2008/09/22/i-am-gonna-write-you-up/#comment-21582 Fri, 26 Sep 2008 08:45:44 +0000 http://ballastexistenz.autistics.org/?p=563#comment-21582 Power-tripping egomaniacs in positions of power over vulnerable people are perhaps the scariest thing I can even think of.

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By: Vicky https://ballastexistenz.wordpress.com/2008/09/22/i-am-gonna-write-you-up/#comment-21581 Thu, 25 Sep 2008 02:48:04 +0000 http://ballastexistenz.autistics.org/?p=563#comment-21581 Something similar happened to me when I was being treated for an eating disorder. I’ve never been an inpatient and I had minimal outpatient input, as my weight wasn’t considered low enough to be life-threatening. I went to a therapeutic group once a week. At first it was dire. The lady who ran it had preconceived ideas about the reasons why somebody would choose to starve herself, binge, or purge, and she tried to slot us all into categories depending on what our precise diagnosis was.

As I was anorexic (restricting type), she decided that I must be rigidly perfectionistic. Once, before the group started, I began to rearrange the books on the shelf so that their spines were all an equal distance away from the edge. I was doing it without really thinking about it – I was caught up in a daydream. The group facilitator saw this as evidence of my obsessive streak. If something like that happened to me today, I would just point out that plenty of people play with things or fidget when they’re lost in thought. I was too perplexed at the time to point that out. I didn’t know what she was talking about.

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By: ballastexistenz https://ballastexistenz.wordpress.com/2008/09/22/i-am-gonna-write-you-up/#comment-21580 Thu, 25 Sep 2008 01:48:33 +0000 http://ballastexistenz.autistics.org/?p=563#comment-21580 I don’t know that she was neurotypical, just not autistic.

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By: Rachel Hibberd https://ballastexistenz.wordpress.com/2008/09/22/i-am-gonna-write-you-up/#comment-21579 Wed, 24 Sep 2008 17:51:04 +0000 http://ballastexistenz.autistics.org/?p=563#comment-21579 This is quite funny. Thanks for a positive example of a “renegade staff” member– at least for me, it instills hope to be reminded that there are neurotypical allies working from within the system.

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By: andreashettle https://ballastexistenz.wordpress.com/2008/09/22/i-am-gonna-write-you-up/#comment-21578 Wed, 24 Sep 2008 16:20:59 +0000 http://ballastexistenz.autistics.org/?p=563#comment-21578 Callista — if writing in one’s journal instead of watching (uck!) Jerry Springer is such a bad thing, then I would’ve been in trouble too.

I wonder if part of the problem (aside from the whole “pathologization of neurological differences” thing, which probably does play a bigger role) might be that some people just have trouble grasping the concept that not everyone has identical interests. For example, when I was a teenager at summer camp once, I happened to mention to someone (an adult) that I had been reading a book earlier. And the reaction was really strong pity and sympathy that I had been so “bored.”

This left me entirely confused until I found out that the person apparently saw reading as something to do only when you were so thoroughly bored and entirely lacking in more interesting to do that you had no choice but to read. They simply couldn’t conceive of reading as an activity that a person would WANT to do and actually SET ASIDE TIME FOR and even greatly MISS if we were deprived of the option to pursue it. The person was flabbergasted to learn that I *enjoyed* reading. I was flabergasted to see how flabergasted they were that some people in the world do actually enjoy it!

The difference here, of course, is that there is not as much pathologization in an ordinary summer camp as there is inside certain institutions. The latter setting allows more room for the people in charge to pathologize any behavior that they don’t understand. So if they can’t understand how a person (any person, inside or outside the institution, with or without a diagnostic label) can actually enjoy writing in a journal or reading a book, or ignore the television when it is on, and if they’re already primed to see the people around them in pathologizing ways, then maybe that’s a contributing factor to how some people end up pathologizing ordinary behaviors.

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By: callista https://ballastexistenz.wordpress.com/2008/09/22/i-am-gonna-write-you-up/#comment-21577 Wed, 24 Sep 2008 03:27:07 +0000 http://ballastexistenz.autistics.org/?p=563#comment-21577 Ooh, so familiar. Every little thing about you gets pathologized… I got in trouble for staying in my room and writing in my journal, presumably because everybody else was in the dayroom frying their brains on daytime TV. (I guess I just wasn’t drugged enough to appreciate Jerry Springer!) And there wasn’t any rule against being in your room, either.

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