Comments on: On adjustment, dogs, and not “smiling through the pain”. https://ballastexistenz.wordpress.com/2008/09/21/on-adjustment-dogs-and-not-smiling-through-the-pain/ Sat, 25 Oct 2008 17:51:11 +0000 hourly 1 http://wordpress.com/ By: Erin https://ballastexistenz.wordpress.com/2008/09/21/on-adjustment-dogs-and-not-smiling-through-the-pain/#comment-21572 Sat, 25 Oct 2008 17:51:11 +0000 http://ballastexistenz.autistics.org/?p=562#comment-21572 My friend has a three legged dog and she is so well-adapted that she can dig huge holes under the fence with just her front leg. This may not seem like a huge accomplishment but I was impressed! I know I couldn’t dig a hole like that with just one arm. ;)

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By: David Harmon https://ballastexistenz.wordpress.com/2008/09/21/on-adjustment-dogs-and-not-smiling-through-the-pain/#comment-21571 Sat, 04 Oct 2008 06:52:30 +0000 http://ballastexistenz.autistics.org/?p=562#comment-21571 There’s also the point that if I (closest example ;-)) wasn’t on the Spectrum, I simply wouldn’t be the same person…. but of course, the sort of person who reflexively wants to “cure” me can’t be bothered with actually thinking about me as an individual….

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By: ballastexistenz https://ballastexistenz.wordpress.com/2008/09/21/on-adjustment-dogs-and-not-smiling-through-the-pain/#comment-21570 Fri, 03 Oct 2008 14:33:22 +0000 http://ballastexistenz.autistics.org/?p=562#comment-21570 I was referring to non-disabled people who don’t have the physique to specifically become sports stars (which is most). I was then drawing an analogy between that, and there being specific tasks that disabled people (of any particular kind) can’t do either.

And, actually, there are many disabled people who can’t do sports, even within the paralympics etc., or can’t do them often enough to become sports stars.

But disabled people’s sports skills wasn’t what I was talking about, nor was I saying nobody wants to be cured of anything. I was saying that it’s really weird when society automatically views some limitations in human bodies (those considered disabilities) as ‘to be adjusted to’ and that ‘adjustment’ as the main determining factor in the person’s emotional life, but does not view people with more ‘acceptable’ limitations (such as not having the body of a sports star, or the mind of an astrophysicist, or something else that requires what’s normally considered to be exceptional ability in a particular area) in that manner nearly so often (not that there are not pressures, but the pressures are different).

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By: Philip https://ballastexistenz.wordpress.com/2008/09/21/on-adjustment-dogs-and-not-smiling-through-the-pain/#comment-21569 Fri, 03 Oct 2008 14:04:06 +0000 http://ballastexistenz.autistics.org/?p=562#comment-21569 Being disabled doesn’t stop a person being a sports star, as the paralympics show. I don’t know if there is wheelchair baseball, but there is wheelchair basketball.

There are autistic people who believe that if they were ‘normal’ they would have the romantic or sexual relationships they crave.

There are people with mental illnesses such as bipolar disorder and schizophrenia who long to be cured, and lead a ‘normal’ life.

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By: Jackie https://ballastexistenz.wordpress.com/2008/09/21/on-adjustment-dogs-and-not-smiling-through-the-pain/#comment-21568 Wed, 01 Oct 2008 22:13:55 +0000 http://ballastexistenz.autistics.org/?p=562#comment-21568 This is very true for people with Hyperacusis. They are told that they are burdening others with their disability, when all they ask for is if a family with loud kids could sit a few seats back from them.

People don’t seem to understand that Hyperacusis isn’t just being irritated by loud sounds, it’s being caused real pain by them. It’s not a choice, it’s a real condition that cannot be changed.

It would be nice if I could just go to a resturant and eat without having to be constantly scanning for the next family with kids who are coming in, to make sure with a glare they know to sit elsewhere.

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By: Philip https://ballastexistenz.wordpress.com/2008/09/21/on-adjustment-dogs-and-not-smiling-through-the-pain/#comment-21567 Wed, 24 Sep 2008 20:42:05 +0000 http://ballastexistenz.autistics.org/?p=562#comment-21567 The article ‘Social security, employment and Incapacity Benefit: critical reflections on A new deal for welfare’ by Chris Grover and Linda Piggott in Disability and Society, Vol. 22, No.7, December 2007, pp.733-746 critically examines the assumptions and attitudes behind the British government’s proposals (Green Paper) on welfare reform published in January 2006. The article should be available here: http://pdfserve.informaworld.com/446611_731305600_785914695.pdf .

The main focus of the Green Paper was on sick and disabled welfare claimants, particularly those receiving Incapacity Benefit (IB).

The main problem perceived with IB is that it attracts too many people onto it and then traps them there once they claim it. It keeps people in poverty and more importantly from the British Labour government’s perspective, it deprives the labour market of potential workers.

Because paid work is regarded as the only morally sustainable route out of poverty, then “the Green Paper can be read as a means of using the work ethic to blame those who lack work for the situation in which they find themselves.”

The Green Paper suggests that the only difference IB recipients have to those officially defined as unemployed, is that they “have managed to hoodwink doctors into believing they have a condition or impairment that means they are unable to work or they connive with doctors who overstate their patients’ mental or physical problems.”

The Green Paper is based on the medical model of disability, and not the social model, because it focuses upon the ability of IB recipients to do paid work, rather than upon the ability of employers to make accomodations for sick and disabled people.

Over 40% of IB recipients are women. Research from 1993 found that female recipients of disability benefits are more likely than male recipients to have children(20% of female compared with 13% of male recipients). “Disabled women with dependent children [..] will not only have to deal with the sexism through which labour markets are structured but also with the disabilism of labour markets which means that disable women are, on average, paid less than their able-bodied peers and disabled males.” Also because of the social construction of motherhood in which women are always ‘there’ for their children, disabled women who (re)enter paid employment may be in “fear of not being defined as a ‘good mother'”.

In contrast to empowering sick and disabled people to work, the policy proposals are “likely to oppress them by expecting them to be like able-bodied workers without addressing the social and institutional basis of disablement.” This is because they are based on long held myths regarding sick and disabled benefit claimants, rather than on the their lived realities.

The article quotes a report in the New York Times (8 June 1998) that:

“Mayor Rudolph W. Giuliani will soon begin requiring physically and mentally disabled mothers to work for their welfare checks…City officials say the old system, which allowed the disabled to stay at home until city doctors certified that they could work, denied job training, work experience and career counselling to people who desperately needed those services.

It was also noted how a distinction would be drawn between those ‘with disabilities severe enough to qualify for Federal disability benefits’ and those entitled to state benefits, with the former exempt from the work-focused aspects of the new regime.”

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By: Tom https://ballastexistenz.wordpress.com/2008/09/21/on-adjustment-dogs-and-not-smiling-through-the-pain/#comment-21566 Wed, 24 Sep 2008 13:38:53 +0000 http://ballastexistenz.autistics.org/?p=562#comment-21566 This post really hit home with me. I’ve had a lifelong disability and it’s just boring to me. But every time I encounter a new person it’s something they experience as a surprise. I’m over it. They will never be over it.

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By: Ettina https://ballastexistenz.wordpress.com/2008/09/21/on-adjustment-dogs-and-not-smiling-through-the-pain/#comment-21565 Tue, 23 Sep 2008 20:20:15 +0000 http://ballastexistenz.autistics.org/?p=562#comment-21565 There are two sides to the ‘disability as tragedy’ stereotype.
One is the scenario of a person who is ‘overcome’ by the tragedy, and needs neverending help. Such a person is usually portrayed as really unhappy, although there’s a ‘too disabled to know they’re disabled’ stereotype as well (for developmental disabilities).
The other side of it is the person who is ‘overcoming’ their disability, fighting a brave fight to keep from being defeated by it. They ‘can do everything except’ some limited area the disability is seen to affect (eg the common deaf statement ‘I can do anything a hearing person can do except hear’).
These people are happy, but it’s a ‘smiling through the pain’ kind of happiness, a determination that their disability won’t make them sad even though that’s the ‘natural’ result of a disability.

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By: ballastexistenz https://ballastexistenz.wordpress.com/2008/09/21/on-adjustment-dogs-and-not-smiling-through-the-pain/#comment-21564 Tue, 23 Sep 2008 20:18:54 +0000 http://ballastexistenz.autistics.org/?p=562#comment-21564 Yeah, the problem is that every time people with the actual condition (whatever it is) come up with a new idea (like the idea that some people can “recover”, contrary to expectations from others), then assorted people without it (and generally with far more poewr than those with it) have to take the whole thing and turn it into dogma and try to force it down everyone’s throats. And then people with it learn the dogma and often try to force it down each other’s throats, and it just gets ugly.

I’ve encountered the same problem in the developmental disability self-advocacy movement. A lot of people there spent so long being told they could not get jobs, that the backlash has involved assuming anyone could get and keep full-time work if they only tried hard enough and/or got all the right supports. And of course government agencies are totally willing to buy (or pretend to buy) that line of crap, because it saves them money.

I’ve had total strangers tell me I’m employable because “everyone is employable”. If I explain why I’m not, I look like I’m just arguing for my limitations, because it’s quite a litany of reasons to sit through. (“I could do ________ if I didn’t have _______, but I do, so I can’t,” several times over.) Which comes across as “negative”, but for me it’s just the reality of the situation. I can do sporadic work, that is pretty random and not to a time schedule, that’s pretty much all. Until jobs exist that are so flexible and well-paying that they adapt to the ever-shifting way my body functions (and account for long periods of time when I just can’t do them), then I can’t get one, and that’s just realism speaking. But I always get told it means “giving up on myself,” which it absolutely doesn’t. There are many things I can do, and do well, I just have to do them on a seemingly totally random schedule and basis. (This blog, for instance, I can keep up because it has no absolute and fixed topic that I absolutely must blog on, no deadlines that I absolutely must meet, and allows me to write in reaction to things in a particular and complex way that I’ve never seen a full-time or even standard part-time employer able to duplicate.)

The idea that people with a single label or set of labels can actually differ from each other seems like something that bureaucracies just can’t fathom (or outright don’t want to fathom) a lot of the time.

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By: tinted https://ballastexistenz.wordpress.com/2008/09/21/on-adjustment-dogs-and-not-smiling-through-the-pain/#comment-21563 Tue, 23 Sep 2008 09:57:11 +0000 http://ballastexistenz.autistics.org/?p=562#comment-21563 “Most people see disability as this huge, life-altering, scary, tragic, horrible, unremittingly unpleasant, thing. And so they imagine that’s how most disabled people see it.”

That is not the reaction the government of the UK has. They think people on disability benefits have it easy and are lazy scroungers who have nothing wrong with them and just want a free ride (they admit that a tiny monirity are the real disabled and we can pity them in the way you describe, but the rest need a kick up the backside). To them, adjusting to a disabillity means getting a job and not needing any help. TO go along with that, the mental health industry now promote the “recovery” movement. Once I was told a had a lifelong condition and would never be able to work. I was forcibly treated and incarcerated to ram that message home. Now times have changed and apparently if I just changed my attitude, I could “recover” and would no longer be disabled. And if I don’t change my mind by myself, my benefits will be cut and I’ll be on the streets.

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