Comments on: Don’t act so angry when I pass your tests.

By: MCF

MCF — Sun, 09 May 2010 23:34:23 +0000

Wow, that’s just incredibly overdemanding and unprofessional of that person. Isn’t it against some kind of policy to be that stuck on making people who have doctor’s orders not to go to a hospital go to a hospital?

By: Theresa

Theresa — Thu, 03 Apr 2008 10:11:40 +0000

I say put your sense of humor to work and remind the bastard the emergency room is full of fluorescent lights. And you are correct, it is illegal to force someone into medical treatment or to take medication, for that matter. You have the right to refuse!

We have never met yet I am very proud of you and you’re willingness to fight ignorance.

By: Bridget

Bridget — Thu, 03 Apr 2008 05:37:04 +0000

I’m inspired by your story Amanda. I saw your story on CNN. It gives me hope that some day CNN will do a story on my disease called Hypoparathyroidism. That means our parathryoids are non functioning. At least in my case.

I’ve had doctors and very prominent ones misdiagnose me. I had weird symptoms. I was embarrassed and scared when I had these. I had hallcinations, seizures, double vision, it was pretty bad. Before seizure I would go into what I called “My World”.

After I told one neurologists I had hallcinations immediately they looked at me different. I was told my seizures needed behavorial therapy they weren’t related to calcium.

I received my miracle November 13th 2006 when I went for my first visit at National Institute Of Health. For the first time I was put on vitamin d3 and amazing all those weird symptoms went away. I was shocked. Then next big treatment has been a miracle. It isn’t approved by FDA yet so I have to travel every 6 months to get it and to get treated in Bestheda, Maryland.

Like Autism internet has been a communication means for those of us with HPTH.

So happy that people with autism such as your self has a way to communicate outside your world. That you may not have had that chance back in say 1970.

I’m going to bookmark your blog.

I have more details on my web site about my condition and what I go through on daily basis.

I’m finally having the opprotunity to speak about HPTH with Senator MIke Enzi from Wyoming.

I was curious do you find yourself educating people on a daily basis whether it is with community or medical community.

Doctors seem to get mad if patients disagree with them. Or don’t want to do certain tests, or disagree with results or diagnoses. I have switched many doctors because of this.

I commend you for your will to speak out and to share your life living with autism. I wish i had a video camera to tape my seziures. I do plan on getting a copy from the clinic I had gone to.

I’m sure it takes much courage to speak out and to share your story.

In closing if you would like to know more of what I have you may visit http://www.hpth.org

my email is [edited to avoid it getting spammed]

I don’t always get my mail at the other address. Or you can leave comment on web site.

By: Terry

Terry — Wed, 02 Apr 2008 23:18:00 +0000

Thanks for clearing up the details that I missed.

By: Tera

Tera — Tue, 01 Apr 2008 19:07:25 +0000

Jeez, what a power-tripper. I’ve had orientation testers forgive me for not knowing the vice president before. (In my defense, it was right after the George W. Bush/Bill Clinton election…I said “Quayle” ;-)).

By: Norah

Norah — Mon, 31 Mar 2008 20:55:19 +0000

Sheesh, I can’t even remember my own phonenumber. I’m glad I never encountered that guy.

By: Patrick

Patrick — Mon, 31 Mar 2008 17:48:49 +0000

Agh!

Even when I’m sitting up straight my posture is not straight.

I wear no watch (or any other jewelry/adornments,) so unless I looked at a clock or the computer recently my response for time of the day might be something like Afternoon.

And who in the hell cares what the name of the current buffoon on the hill is? (OK, I realize some folks don’t think he’s a clown, but I could use worse words that still fit.)

Agree with the others that I don’t memorize my friends’ addresses.

Half laughing while typing, FIRE that paramedic!

By: Evonne

Evonne — Mon, 31 Mar 2008 15:27:36 +0000

Not a bad idea to get some sort of statement about “unless I’m X I don’t want to go to the hospital” on paper and keep it handy. That guy was just being an asshole — there’s no way anybody can reasonably expect someone to know their friends’ address, etc. Heck, I let people slide if they don’t know the name of the hospital they’re in. Sometimes folks don’t bother to *tell* patients what hospital they’re in. And yeah, Fledchen, I have to agree.

By: bev honold

bev honold — Sun, 30 Mar 2008 23:02:43 +0000

thanks Amanda for sharing.this is important information to stick up for our rights and freedoms. bev

By: K

Sun, 30 Mar 2008 17:32:56 +0000

I came across your site via a forum for AS people in Sweden. I find it so strange that the “normal” people can’t comprehend that humanity is NOT the same as a bee hive, that individuals have INDIVIDUAL gifts and not everyone wants the same thing as everyone else and at the same time!

It was such a relief to see your youtube video.