Comments on: Read all about Joe’s Functioning Level

By: Apples

Apples — Wed, 19 Mar 2008 18:08:06 +0000

I think it is certainly worth posting on the CNN site as a lot of parents have already had their say along the lines of ‘it’s mercury’ or ‘it’s diet’ or ‘it should be cured’ or ‘it’s so devastating for a parent’…..

So perhaps now would be a good time for us to have our say!

By: FS

FS — Tue, 18 Mar 2008 17:42:04 +0000

FYI, CNN is planning a story on the myths of Autism and is asking people to write in.

” In a report called, the ‘Myths of Autism’ we hope to dispel any misperceptions about the disorder and the people who live with it. We also want to be very clear that there is still a great deal the scientific community has yet to learn about autism and its related disorders.”

http://www.cnn.com/HEALTH/blogs/paging.dr.gupta/2008/03/myths-of-autism.html

By: ballastexistenz

ballastexistenz — Tue, 18 Mar 2008 14:41:12 +0000

Yeah, I had those problems pre-diagnosis as well (including when my main “diagnosis” was “gifted”, which meant that everything else was… let’s see, bad behavior, failure to think properly before opening my mouth, being inconsiderate, rude, sloppy, disorganized, lazy, talking funny, too passive, too wrapped up in my own head/stuck in my own world/whatever, out of touch with reality, etc).

By: Stefan

Stefan — Mon, 17 Mar 2008 22:53:44 +0000

Taking it even further, even the lack of a label (or, rather, an implicit “normal” label) can cause similar problems. I never got any diagnosis, except “gifted”. I guess that was as far as they felt they needed to look.

By: Axinar

Axinar — Sun, 16 Mar 2008 21:19:23 +0000

That was an excellent find … wish I still had the ability to be eloquent like that on a regular basis.

By: Julia

Julia — Sun, 16 Mar 2008 16:17:39 +0000

OK, can anyone explain to me why the most verbal child in the house is the only one exhibiting any self-injurious behaviors? It doesn’t seem to fit in the “functioning level” categorization.

Oh, wait. That whole “functioning level” crap is bogus.

(Trying to figure out the child hitting her head on the wall — it just started in the past couple of days, and I’m concerned. I’m going to have to keep a closer eye on her for a few days, figure out what’s precipitating it, and help avoid whatever it is.)

By: Ivan

Ivan — Sat, 15 Mar 2008 20:59:30 +0000

ha ha ha! If you are also good at being tolerant towards autistic and other disabled people with their differences in thinking and acting, you might want to give lessons on that topic to……….a whole lot of people.

FYI: any hint of sarcasm that may be found in this comment should not be viewed as an attack on the author above.

By: Sylvester

Sylvester — Sat, 15 Mar 2008 16:23:00 +0000

i am normal! I have great eye contact and I am keenly aware of all non-verbal cues that spring up during social interaction. I don’t count things, flap my hands or make high-pitched noises. In fact, I am so normal, I’m considering giving lessons.

By: the problem with labels « barbara fister’s place

the problem with labels « barbara fister’s place — Sat, 15 Mar 2008 15:12:17 +0000

[…] to Ballastexistenz for the […]

By: dkmnow

dkmnow — Sat, 15 Mar 2008 05:56:50 +0000

I especially liked abfh’s characterization of “high-” and “low-” as being “evil twins.” After all, they both serve the same purpose: to invalidate a human being for some “failing” or other, in whatever way happens to serve the momentary whims of the “normal” person using the label.

Tangentially, there’s another irony I’ve noticed. Clinicians routinely mollify themselves with notions of their own “objectivity,” which includes the presumption (or pretense) that the labels they use never in any way imply that a value judgment is being made. BUT, let the client use a label in the course of describing their own experiences, and, — oh, horror! — unless that label has already be “prescribed” by the clinician, they will instantly launch into a “politically correct” lecture about the evils of using labels!

Overcompensation, anyone?