Comments on: Some side-by-side analogies https://ballastexistenz.wordpress.com/2008/02/28/some-side-by-side-analogies/ Fri, 14 Mar 2008 15:03:06 +0000 hourly 1 http://wordpress.com/ By: Evelina https://ballastexistenz.wordpress.com/2008/02/28/some-side-by-side-analogies/#comment-20693 Fri, 14 Mar 2008 15:03:06 +0000 http://ballastexistenz.autistics.org/?p=498#comment-20693 man, really? controlling dreams like that is crazy. my boyfriend seems to be able to do some of that naturally. but.. somehow even though.. as much as i like my dreams, learning how to control them would be a travesty. like, there was this one time i was having a great dream, in fact, the most wonderful dream i’ve ever had, and then i suddenly realised i’m in a dream :( that i can control it etc., blah blah. i was talking to my friend and suddenly i was saying ‘..but you’re not my friend, you’re just an illusion..’. i even saw myself from the ceiling O.o the way i was sleeping ( and everything fit reality – the bedsheets, my clothes, everything! that’s kind of creepy) so that was pretty crazy. but i chose the dream.. i willfully chose to go back to the dream believing IT is true life. because knowing it’s a dream is kidding yourself. i will not kid myself :p it makes it kind of sad. the point of having dreams is that you don’t know it’s not real in the first place, i think.

and.. i don’t even know if i want to value dreams more than reality, but.. in dreams.. there’s this thing where.. sometimes my subconscious pulls out a couple of really interesting things. worlds that are so nostalgic and strange. like the world was when i was a kid (now it’s mostly lost :( ). my dreams usually don’t have a bad plot xD just a little sappy sometimes :p but the sappy stories seem heartbreaking in dreams. it’s really sad when you wake up and realise you can’t really tell about it to many people cause they’ll think it’s really stupid :p
however, my dreams have interesting stuff in them.. usually very intricate stories. where the world is big and magical, i don’t know.. that’s what makes it great.
to give a little bit of the feel of the world in my dreams, here’s a link. it’s this new artist i found like a few days ago and i’m totally crazy for her music right now. she’s the only Lithuanian artist (my country) i ever listen to.. i know the music’s weird, but it’s just so magical. too bad you won’t understand the words :p they’re half what makes it special. i tried translating them to my boyfriend, but translated they seem just plain lame :p you don’t translate poetry and get away with it..
anyway, here’s the link. it’s a myspace page of the artist.. click on the player to choose a song. my recommendation: “lijo” or “menulyje”.
http://www.myspace.com/alinaorlova

okay, copying the link is NOT an excuse to listen to the song. before i know it i’ll get bored with them. it’s been three days, i’ve listened to them so many times i know the lyrics in and out already.

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By: j https://ballastexistenz.wordpress.com/2008/02/28/some-side-by-side-analogies/#comment-20692 Thu, 13 Mar 2008 01:35:16 +0000 http://ballastexistenz.autistics.org/?p=498#comment-20692 On the wheelchair analogy.

If you take a wheelchair away from someone who can just barely walk without it, the most likely outcome is that their life will become more restricted, exhausting, and painful. Forcing someone into a situation where they either have to use up massive efforts to get around, or be completely unable to get from place to place is more likely to wear them out than do any good.

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By: Shalanda Stanley https://ballastexistenz.wordpress.com/2008/02/28/some-side-by-side-analogies/#comment-20691 Mon, 10 Mar 2008 19:14:52 +0000 http://ballastexistenz.autistics.org/?p=498#comment-20691 Amanda,
I find you intriguing and am convinced that you are brilliant. I am an elementary school teacher of students with special needs and would like some insight on teaching students with autism. Is there a particular method you would have liked a teacher to use?

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By: LM https://ballastexistenz.wordpress.com/2008/02/28/some-side-by-side-analogies/#comment-20690 Sun, 09 Mar 2008 01:14:55 +0000 http://ballastexistenz.autistics.org/?p=498#comment-20690 Eh, I’m no expert on that particular culture. I just remember a few concepts and specific myths. Google turns up mostly New Agey stuff before any real results, which is always annoying. :P I like studying that sort of thing, but I’ve been in other parts of the world lately as far as research goes due to stuff I’m writing…

Anyway, I’d hardly say I’m obsessive about my dreams. I mainly record them when I can so I can write something on a fairly routine basis. I wasn’t too good at keeping a “normal” sort of journal for a while, so I went with something else.

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By: ballastexistenz https://ballastexistenz.wordpress.com/2008/02/28/some-side-by-side-analogies/#comment-20689 Sat, 08 Mar 2008 16:49:39 +0000 http://ballastexistenz.autistics.org/?p=498#comment-20689 Is there only one Aboriginal belief system though, and only one creation story? Because Australia’s a big continent, and I know that here in North America, non-Indian people often think of American Indians as having only one culture, and one belief system, when actually it’s as diverse as Europe or any other continent, and there are few to no universal beliefs or customs.

I actually don’t think about my dreams as much anymore. Probably because I got so intensely involved in them before that they became more important to me than the real world. And I think that was a mistake on my part.

I used to be able to do things like control them to a pretty fine degree of detail, open my eyes but stay asleep, continue them where I left off if I woke up and went back to sleep, etc. Right now about the only part of that I retain is the ability to wake myself up if necessary during nightmares.

I noticed that on the combination of medications I was on before (before the Trileptal started messing with my liver), I actually slept more soundly. And I had less control over my dreams, which were so realistic they felt exactly like reality. They often had elaborate plots, too, although they were mostly like bad sci-fi novels or something. Really bad ones, the kind that almost never get published and if they do they go out of print fast. When I woke up I was often disoriented because I’d taken the dreams for real.

And I’m a pretty light sleeper if I’m not on certain meds. Amitriptyline seems to really help with that. (Wow, an actual use for an anti-depressant. That’s stunning in itself.) The problem is part of the reason I was a light sleeper was physical problems I was having in my sleep, so now instead of waking up choking on reflux I’m choking on it and even spitting it up in my sleep without waking. (I taped myself to see if it was still going on without my knowledge. It was.)

I also noticed that when I moved from California to Vermont I quit having nightmares every night. I guess so much bad had happened to me in and near California that the place itself was too much of a reminder for me. Being away from there was really good for me, I went from being constantly bothered by PTSD-type stuff to comparatively little of it.

So… I guess I find dreams interesting, but not too interesting anymore. I don’t want to value them over the real world again, so I guess I’m more conservative about that than a lot of people would have to be.

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By: LM https://ballastexistenz.wordpress.com/2008/02/28/some-side-by-side-analogies/#comment-20688 Thu, 06 Mar 2008 21:28:32 +0000 http://ballastexistenz.autistics.org/?p=498#comment-20688 Dreamtime is part of the Aboriginal creation story and of course it’s a cultural thing as well. Here’s a decent summary but there’s more information out there if you’re interested.

I personally keep a dream log. My recall has been a bit lousy lately, though. Last night, however, I remember dreaming about Amanda. We were riding the bus somewhere and talking. I don’t remember much of what was said mainly because at some point, I realized, well, she wasn’t using any communication devices. When I said something about it, she told me she was using telepathy. *blinks* Well, my dreams sure are strange but since it was a dream, well, I shrugged and we went on talking. :P

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By: Ettina https://ballastexistenz.wordpress.com/2008/02/28/some-side-by-side-analogies/#comment-20687 Tue, 04 Mar 2008 19:21:23 +0000 http://ballastexistenz.autistics.org/?p=498#comment-20687 I think, from what I’ve heard, the Australian Aborigines traditionally treated dreams as more real than reality. I could be mistaken or misunderstanding something, however.

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By: Namaste https://ballastexistenz.wordpress.com/2008/02/28/some-side-by-side-analogies/#comment-20686 Tue, 04 Mar 2008 14:47:32 +0000 http://ballastexistenz.autistics.org/?p=498#comment-20686 ballastecistenz, Misquotes, misunderstood analogies, mis-placed info etc are to be expected in articles. However, I was enlightened and brought to your website by the article in Wired.
I love your website. I find inspiring. I love your favorite quotes. I am not autistic but, had different ideas about it until I read the article and looked at your site. Oh, by the way, my hubby is proud of being a “computer nerd.” It pays for our home, clothes, cars, etc. But, nothing makes it home like love and going after a dream which you are doing.

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By: Baba Yaga https://ballastexistenz.wordpress.com/2008/02/28/some-side-by-side-analogies/#comment-20685 Tue, 04 Mar 2008 12:36:00 +0000 http://ballastexistenz.autistics.org/?p=498#comment-20685 “the last stop for hopeless cases…” terrifying in its own right. even without a sadist to point out to you the next stop. 8-(

Makoto – I like the three-legged analogy.

tinted – yes, the best (and least staffy) staff do seem often to get driven out, relegated to the unpopular jobs, & so on. I’ve known more than one who was dismissed on a trumped-up charge, or so hindered that he ended up resigning for health reasons. I think anyone who really challenges an established system, and the interests it embodies, is susceptible to that treatment.

those aren’t really who I’m thinking of. I’m thinking more of the more-or-less decent who see – but who simultaneously don’t see when it really matters. or who react institutionally, even though they reflect (but chiefly in the abstract) humanly. and yes, that does include those who take refuge in paperwork, and Enlightened policies. (policies are less messythan people.)

you’re also right that an interesting thing seems to happen, in the not-so-shiny wards, somewhere in between the front wards, where people are expected to Get Better, and any sign of not doing so tends to be punished, and what I think of as the real back wards, which tend to be like storage bins for people considered sub-human, mostly unable to complain or to be believed, and where it’s very easy for blatant sadists to flourish.

in the not-so-shiny wards, there tends to be much less intensity of normative pressure, fewer outsiders to whom Therapeutic Intent has to be displayed, and a lower turnover of patients than on the front wards, and staff and patients do seem to mix socially far more equally than anywhere else, such that the vagaries of both sides become fairly indistinguishable. also, when time does come to restore the power balance (which it seems periodically to do), or when someone’s punished for breaking the rules, it’s both fairly visible (which I can handle, whereas it took me years to spot the disguised, Therapeutic kind), and mostly more token than deliberately vicious. I wonder, though, whether that’s still as true since smoking bans?

as for MIND, not my favourite body.

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By: Apples https://ballastexistenz.wordpress.com/2008/02/28/some-side-by-side-analogies/#comment-20684 Tue, 04 Mar 2008 08:50:21 +0000 http://ballastexistenz.autistics.org/?p=498#comment-20684 Sorry if I’m restating what has already been said but Volkmar is missing the point. Which is surprising considering he presumably thinks of himself as superior and as fit to pass judgement on how autistics should conduct themselevs.
The point is that people are entitled to assitive technology and support in order to be independent.
Someone who cannot walk can achieve independence with a wheelchair. Someone who cannot speak (or who is part-time verbal, such as myself due to random episodes of involuntary mutism) can achieve independence by using a communication device and so on.

And someone wrote a ridiculously childish comment on the Wired article saying that how can someone be intelligent or not defective if they can’t shower themselves. For goodness’ sake! The measure of how worthwhile a person is cannot be measured by their ability to shower.

To give a basic example. Saddam Hussein could probably shower himself – but he was not someone who made a positive contribution to society in any way.

Stephen Hawking cannot shower himself unaided – but he is a good person and is stunningly intelligent and has made huge contributions to the world of science.

So, like I said, a basic example, but you get the idea!

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