Comments on: Bit of an update.

By: Evonne

Evonne — Fri, 30 Nov 2007 21:50:46 +0000

Thanks, Amanda’s mom. :)

By: Krista

Krista — Fri, 30 Nov 2007 15:16:08 +0000

If you use aol instant messenger you can try the screen name MyIPRelay. For MSN the screen name is myiprelay@verizonbusiness.com I’m pretty sure that’s the screen name. Also check out http://www.myiprelay.com Hope my random knowledge helps someone. Wishing you all the best, and a speedy appointment to get the pain taken care of!

By: The Integral

The Integral — Fri, 30 Nov 2007 05:28:34 +0000

mad housewife:

You are very correct. So many people (myself included) complain about various things………heck I’m doing it now……..schoolwork, projects, finals, etcetera……..

and those things become larger than life itself………..sometimes.

By: ballastexistenz

ballastexistenz — Fri, 30 Nov 2007 02:05:56 +0000

I’ve been on oxygen before (I’m also asthmatic), no change.

I’ve never been to any particular college longer than a year, so that’s the maximum overlap that would be possible.

By: Lionel

Lionel — Thu, 29 Nov 2007 22:17:54 +0000

Amanda, your headaches/trigeminal nerve problem sounds like what I had for years. It turned out to be misdiagnosed as migraines– it was cluster headaches, which are rarer and more painful (and which directly affect the trigeminal nerve). It’s a very common misdiagnosis because like migraines, cluster headaches tend to be on one side of the head. Have your doctors ever tried you on a course of Verapamil (an older blood pressure medicine)? It completely changed my life, headache-wise. (A quick and harmless test to determine what type you have, if you end up in the ER, is to have them put an oxygen mask on you for about 10-15 minutes at about 6l/minute. Many people with cluster headaches, myself included, find that this is a better painkiller than morphine. It will completely abort a headache.)

(I found your blog through the Seidels’ webpages. I went to the same college you did. I think we overlapped by a year)

By: a link | mad housewife

a link | mad housewife — Thu, 29 Nov 2007 15:14:09 +0000

[…] thought I had a bad day today. Then I read this. Most of us don’t know what a bad day even is. Read the whole blog. Tags: autism, […]

By: Mom

Mom — Thu, 29 Nov 2007 12:10:14 +0000

Fresh water to drink by your bedside is very important as is readily accessible food. Bananas/cereal in boxes/Cans of Ensure with straws available/power bars are possibilities for emergent use between meals. There might need to be a check-list for new staff to check on when they come inside such as checking on water and bedside foods. It would be good to be able to track the amount of water you are getting to make sure you are staying hydrated. If possible have someone get your phone equipment near your bed. You need to have access to communication.

By: Kassiane

Kassiane — Thu, 29 Nov 2007 06:04:51 +0000

Amanda, if there’s anything I can do please let me know. If there were better questions I could ask to cue that knowledge I would.

And if they send that person back, give them hell, they know better.

By: Ivan

Ivan — Thu, 29 Nov 2007 05:46:06 +0000

Very wise of you to think long and hard about whether or not to use the extra crisis hours………..

But, if you have to……….is there a way that you could petition for additional hours down the road if you needed them again (more times than what you are allotted per year?) maybe something to ask your case manager? (I have no clue how these things work. I don’t mean to pry……..just a suggestion. No idea if its feasible or not)

Ivan

By: Mom

Mom — Thu, 29 Nov 2007 03:38:36 +0000

I have e-mailed your case manager so he can read
your last posts. Communication is very important here and I know you are having difficulty accessing
your normal modes. Hope to talk with you or your friend soon…Hang in there…