Comments on: Why I’m not posting much.

By: The Integral

The Integral — Fri, 30 Nov 2007 17:00:24 +0000

Andrea: brilliant!

Amanda: would you prefer allspice or nutmeg instead of sugar?

Poor attempt at humor…….sorry

By: Andrea

Andrea — Tue, 27 Nov 2007 21:51:20 +0000

“they couldn’t find my nerves (!?!) when I went in yesterday.”

Oh, but didn’t you know? They’re still “Finding Amanda” so naturally that would mean they’ve misplaced your nerves as well …

Sorry, couldn’t resist :-)

By: Charles

Charles — Tue, 27 Nov 2007 17:59:05 +0000

Right now, I’m dealing with what I believe to be a case of shingles. When it happens to me, (and it’s happened a few times before), I don’t get the rash. Supposedly this is rare, but it’s common enough to have a name: “zoster sine herpete.” It’s triggered by stress or trauma, and if you’ve had chicken pox before, you can get shingles. Anyone experiencing painful skin on only one side of the body might want to consider this as a possibility.

By: ballastexistenz

ballastexistenz — Tue, 27 Nov 2007 17:32:00 +0000

I’m on Neurontin 2700 mg/day (split into 3 doses), which works very well for other kinds of neuropathic pain I have, as well as the fairly mild complex-partial seizures I get. It doesn’t make me too dopey either, it does that for a few weeks if I change the dose then it goes back to normal. I’m sure it’s doing something for the pain I’ve got right now, but the scary part is what the pain must be like without it.

I’ve been on most of the other anti-convulsants with no effect on this and lots more side-effects than I get with Neurontin, so I’m sticking with what I know for now since it’s such a hassle to change.

But I’m now also getting seizures because of the pain meds I’m on.

They’re going to kill the pain nerves in my face soon, I just have to wait for the specialist to get off of sick leave, because they couldn’t find my nerves (!?!) when I went in yesterday.

By: Zebrafinch

Zebrafinch — Tue, 27 Nov 2007 10:52:17 +0000

I have had a multi-year problem with what may or may not be nerve pain. I found it very difficult to connect typical words used to describe the pain to the pain itself, quite frustrating the doctors and so forth. We tried all sorts of pain medications and physical therapy. Most of the medications worked only moderately well, if at all, and made me dopey. Eventually, however, we tried Lyrica. Not only was it far more effective than anything else we had tried, I didn’t have any side effects from it.

Lyrica is a cousin of the horrid Neurontin, but not the same substance. I was told that the likely reason fewer people have side effects on Lyrica than Neurontin is that it is effective at far lower doses.

I’d be surprised if you haven’t already talked with your doctors about Neurontin and Lyrica, but thought I’d post anyway just on the off chance.

By: Rachel

Rachel — Tue, 20 Nov 2007 07:03:45 +0000

be well. I’ll be thinking of you.

By: Post in anticipation of tonight's potential deluge. - Ballastexistenz

Post in anticipation of tonight's potential deluge. - Ballastexistenz — Mon, 19 Nov 2007 16:41:05 +0000

[…] Casdok to Why I’m not posting much. […]

By: Casdok

Casdok — Mon, 19 Nov 2007 16:19:35 +0000

Hope you feel better soon.

By: Estee

Estee — Mon, 19 Nov 2007 15:10:22 +0000

I’m so sorry to hear this (I have been away this week and haven’t been reading the blogs). I hope you can find some relief and some peace.

By: Baba Yaga

Baba Yaga — Sun, 18 Nov 2007 13:39:00 +0000

Feared it was something of the kind, on the grounds that not much less would stop you.

I think the emotional reactions translate to “I care”; also that you can safely do nothing with them.