Comments on: The right to say “I don’t know”. https://ballastexistenz.wordpress.com/2007/08/09/the-right-to-say-i-dont-know/ Wed, 01 Jul 2009 08:23:13 +0000 hourly 1 http://wordpress.com/ By: Wendy Trankle https://ballastexistenz.wordpress.com/2007/08/09/the-right-to-say-i-dont-know/#comment-19118 Wed, 01 Jul 2009 08:23:13 +0000 http://ballastexistenz.autistics.org/?p=435#comment-19118 this post was so helpful- my memory problems are mainly medication caused as far as I know but explaining to someone that I don’t have a clue what I ate for breakfast is a common problem for me. So are words sometimes. This really has me thinking because I assumed it was the meds but now I wonder.

]]>
By: Tacitus https://ballastexistenz.wordpress.com/2007/08/09/the-right-to-say-i-dont-know/#comment-19117 Mon, 29 Dec 2008 12:41:19 +0000 http://ballastexistenz.autistics.org/?p=435#comment-19117 Moksha, I think we should all have the freedom to not talk :) Deaf autistic or brain damaged

]]>
By: moksha https://ballastexistenz.wordpress.com/2007/08/09/the-right-to-say-i-dont-know/#comment-19116 Sat, 27 Dec 2008 22:02:13 +0000 http://ballastexistenz.autistics.org/?p=435#comment-19116 Wow, almost everyone seems to answer five minutes after you posted… Oh well, I never heard of you until today (via. that lovely “my language” video), so there’s not much I can do about it now.

I totally pass. Hardly anyone ever gets to know *me*, since most people expect cute little blonde girls to make about as much sense in conversation as a fish, so they don’t mind if all I do is ask questions with big interested eyes and a smile, and deflect all theirs, or say something bizarre with a cute smile so if they don’t like it they can believe I’m kidding. If they pay attention, they might decide I’m kind of quirky. And if I tell them how it really is inside, they can’t believe that it’s any different from the way they think. I’ve been on stage, literally and figuratively, since I could stand, and I pass really well.

But from the inside, it’s like Bruce Willis acting – you’d never know he stutters. When *I* ever talk, I stutter so bad I can’t get a sentence out. So *I* never talk, unless someone strips my avatar(s) away (only special occasions, very good or very bad times). Otherwise, I keep the appropriate avatar on at all times to make the people around me comfortable (also so they don’t bug me so much…). I can’t turn it off anymore. I only ever stimm in ways that nobody can tell, even when I’m by myself. Nobody can tell I feel like you (Amanda) about speaking through typing. If I explain it to them, they still don’t understand that by insisting that we always talk out loud, they will never really hear *me*. I can type, and I speak music, dance, geometry, sex, trees, animals, light, and touch. If I’m talking, that’s not *me* at all. Not a lie, just not *me*. It’s a translator.

I feel so lonely sometimes, like I can see all of them, but they will never see *me*. I’ve noticed that, while NTs define autism as a lack of empathy, most NTs can only really empathise with someone who’s the same as them. Give them someone with a different gender, age, colour, culture, life experience, or some sort of obvious physical disability, and they mostly don’t even bother. They just assume it’s impossible, and they don’t try.

I always wished I could be the uncommunicative and rocking kind of autistic, because it seemed to me that they just didn’t care what was going on outside. Now I think that’s probably not true at all, but I still kind of wish I could just stop talking. Just force people to interact with *me* where I really am. It might cut down on the number of people who were really enthusiastic to talk to me, but it would probably make it a lot easier to know who really cared about me. But I’m no good at faking, and I don’t know how to do it on purpose.

I hate that I make up stuff just to make people happy. But I can’t get the words out fast enough for a “normal” conversation, and I feel like if I were to talk all mixed up but honest, they would probably be unhappy with me. Of course, this is (as I’m sure is true for a lot of us) from a lot of personal experience. But now that I think about it, this is mostly experience with people I don’t want to (or have to) experience ever again anyway. I will have to try this “I don’t know” thing more often. Thanks for your encouragement! Anyone who would prefer that I lie can just go find somebody else to talk to who’s better at lying. Ha! I have my own friends who like me just fine the way I am. :-p

]]>
By: Tom https://ballastexistenz.wordpress.com/2007/08/09/the-right-to-say-i-dont-know/#comment-19115 Fri, 20 Jun 2008 06:39:30 +0000 http://ballastexistenz.autistics.org/?p=435#comment-19115 Since I’ve self-diagnosed as AS, one of the real blessings has been the ability to simply be upfront with my lack of social skills. I no longer feel like I have to pretend I have lots of friends or that I am socially comfortable all the time. The spirit of curiosity makes it okay… if people see that I am interested in these skills even though I don’t have them, then they don’t look down upon me for not having those skills (or knowledge).

]]>
By: rr https://ballastexistenz.wordpress.com/2007/08/09/the-right-to-say-i-dont-know/#comment-19114 Sat, 18 Aug 2007 06:04:09 +0000 http://ballastexistenz.autistics.org/?p=435#comment-19114 Comment to Finny from rr: Thank you for writing what you wrote. I also struggle with understanding that it’s OK to say I don’t know, or I don’t understand, or I don’t remember. I certainly have been led to believe that it is not OK to say or even think those things. I think if we *can’t* say those things, we are limited because often saying “I don’t know” is the precursor to knowledge,” saying “I don’t understand” is the precursor to understanding. I can’t say that saying “I don’t remember” would lead to any memories, though! I am just learning this. It seems like such a basic thing that *other* people are “allowed” to do but for me, in my family, I was not allowed to have questions or to not know something that was expected of me.

]]>
By: Vassilissa https://ballastexistenz.wordpress.com/2007/08/09/the-right-to-say-i-dont-know/#comment-19113 Thu, 16 Aug 2007 05:36:13 +0000 http://ballastexistenz.autistics.org/?p=435#comment-19113 Another big ‘me too’. It’s not just other people: I have trouble retrieving information *I* want too. Very often the names of words. I know which word I mean, I just can’t remember what it is. And I know that if I relax and let it go, my brain will set up the retrieval process in the background, and it’ll pop up in an hour or a day or a week. Often by that stage I’ll forget why I wanted it, I’ll just be like “The word I was looking for is ____. Now, what was that context again?” But I’ll still get that feeling of relief from completing the process.

]]>
By: Baba Yaga https://ballastexistenz.wordpress.com/2007/08/09/the-right-to-say-i-dont-know/#comment-19112 Wed, 15 Aug 2007 04:53:18 +0000 http://ballastexistenz.autistics.org/?p=435#comment-19112 I’ve managed to read all the way through with meaning, now. Thank you, again.

]]>
By: Finny https://ballastexistenz.wordpress.com/2007/08/09/the-right-to-say-i-dont-know/#comment-19111 Tue, 14 Aug 2007 10:13:30 +0000 http://ballastexistenz.autistics.org/?p=435#comment-19111 It’s actually okay to say “I don’t know”? Or “I don’t understand”? Or “I don’t remember”? It’s actually okay? To say those things?

So much, so many times, so often I don’t know the answer to something, or I don’t understand what I’m being asked, or I don’t remember whatever. But I’ve learned, over the years of (abusive) shrinks and (abusive) parents and relatives getting mad at me for telling the truth like that that saying such things isn’t allowed (and isn’t believed, either).

The first shrink I was ever taken to, when I was six or seven (and was obviously “odd,” though I still don’t have anything other than a self-diagnosis as an Aspie and various misdiagnosises such as bipolar disorder), told me flat out, when he asked me some question or other the first time I saw him, that “I don’t know” was never an acceptable answer.

So people are always saying I should be honest, but when I am honest I’m punished for being so? Somehow that doesn’t make sense to me, but I guess that could just be me.

As for “I don’t understand,” well, because of what seems to me to be undiagnosed auditory processing issues, along with various severe sensitivities to sounds, smells, lights, touch, and such things, I often have trouble following what someone is saying (even more so when in a situation with more than one or two other people). Yet “I don’t understand” or “What did you say?” or “Could you please repeat what you just said?” aren’t allowed as “accepted” responses.

Once again, being honest and trying to get enough information to process stuff and answer questions is punished. Still making no sense.

As for “I don’t remember,” due to various abuses along with just the way my brain is structured (to catalogue stuff, it seems, but not to bring it back to where it can be accessed without the proper, usually very specific, cue, so to speak), I have very few memories prior to age 10 or 11. And even after that age what memories I have are very scattered, tend towards the bad or scary, and are also hard to retrieve. Yet, once again, being honest is punished. And still makes no sense.

Anyway, the point of all that babble was, I think (hope?) to confirm that it is okay to say “I don’t know,” “I don’t understand,” and “I don’t remember.” Those have never been accepted responses in my life (though I think my husband accepts them a bit more than the rest of the world, at least), and I’m having trouble comprehending that they’re okay things to say. I mean, honesty is good and all, but being punished for being honest seems to say that honesty is bad. I get so confused….

Sorry for all this rambling. But thanks for the post…as with so many of your posts I’ve read over the last few months, it’s given me new stuff to think about, and I like that. I like thinking, and learning new things, even if I can’t always access or use whatever I’ve learned.

]]>
By: Marcie https://ballastexistenz.wordpress.com/2007/08/09/the-right-to-say-i-dont-know/#comment-19110 Sat, 11 Aug 2007 18:15:21 +0000 http://ballastexistenz.autistics.org/?p=435#comment-19110 I keep trying to remember to tell people “Ask me in a day or two (or in a month)” but I’m so confused trying to come up with an appropriate reply that it doesn’t occur to me to explain that I need to compose a reply after I’ve had time to “upload” the relevant information.

]]>
By: Chris https://ballastexistenz.wordpress.com/2007/08/09/the-right-to-say-i-dont-know/#comment-19109 Fri, 10 Aug 2007 17:13:17 +0000 http://ballastexistenz.autistics.org/?p=435#comment-19109 I am lucky enough to have a good psychiatrist. And he’s been working with me on this a lot. Until he told me it was ok to say “I don’t know” or “let me think about that” or “I don’t understand” I had no idea it was ok. It’s still hard for me to do, but it makes a huge difference

]]>