Comments on: “We won’t help you until you stop acting like you’re in pain.” https://ballastexistenz.wordpress.com/2007/07/28/we-wont-help-you-until-you-stop-acting-like-youre-in-pain/ Mon, 25 Feb 2008 03:31:13 +0000 hourly 1 http://wordpress.com/ By: Athena https://ballastexistenz.wordpress.com/2007/07/28/we-wont-help-you-until-you-stop-acting-like-youre-in-pain/#comment-18817 Mon, 25 Feb 2008 03:31:13 +0000 http://ballastexistenz.autistics.org/?p=427#comment-18817 just stopping by your blog to say hi…..also, how do you highlight a post in the body of text, like you did above? “this post” is underlined and in blue. that’s what I mean.

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By: ballastexistenz https://ballastexistenz.wordpress.com/2007/07/28/we-wont-help-you-until-you-stop-acting-like-youre-in-pain/#comment-18816 Sun, 24 Feb 2008 18:12:40 +0000 http://ballastexistenz.autistics.org/?p=427#comment-18816 I don’t know your son, so I can’t give specific advice, and my experiences may be totally different. I often don’t understand when I’m in pain, and if there had been some way I could have learned what pain is, that it is a whole lot of different specific sensations, and how it affected me, that would be really important.

You might be interested in this post that went into some attitudes I’d encountered towards pain that I couldn’t describe as pain, and my reactions to it.

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By: Stacy https://ballastexistenz.wordpress.com/2007/07/28/we-wont-help-you-until-you-stop-acting-like-youre-in-pain/#comment-18815 Sun, 24 Feb 2008 16:20:31 +0000 http://ballastexistenz.autistics.org/?p=427#comment-18815 I have a 7 yr old autistic son. He is a great kid. He was diagnosed moderately autistic. Not sure what they mean by that but whatever. He is able to function well in the NT world we have but I have noticed that when he has a loose tooth, the entire week before he looses his tooth he stims more and is more difficult to console etc. The problem for me is that I don’t know that is the problem until he looses his tooth and he is “better”. I don’t think he understands why he starts having trouble. What do I do to help him?

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By: Julia https://ballastexistenz.wordpress.com/2007/07/28/we-wont-help-you-until-you-stop-acting-like-youre-in-pain/#comment-18814 Wed, 08 Aug 2007 17:59:56 +0000 http://ballastexistenz.autistics.org/?p=427#comment-18814 Kevathens: My husband has had problems with chest pain that were caused by muscle tension. When he feels any chest pain now, he does stretches, and the pain goes away. If the pain doesn’t go away after stretching, we go to the doc. What you’re experiencing might be something like that, and turning your head stretches whatever muscles need it.

As for something not hurting when it looks like it should, in my experience an episiotomy experienced without benefit of anesthesia doesn’t hurt after the initial “pinch” feeling. (I’ve discussed this with someone else who felt her episiotomy, and she had a very similar experience. Then again, she’s been diagnosed with Asperger’s Syndrome, and she has odd pain responses, so her experience matching mine might not mean anything at all about what a “normal” person would experience.)

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By: ballastexistenz https://ballastexistenz.wordpress.com/2007/07/28/we-wont-help-you-until-you-stop-acting-like-youre-in-pain/#comment-18813 Sun, 05 Aug 2007 04:08:16 +0000 http://ballastexistenz.autistics.org/?p=427#comment-18813 I’ve also noticed two opposite generalizations used to dismiss a problem as non-existent or not that bad or whatever. They have both been used against me in rapid succession:

“Those who have real problems are the ones who don’t talk about it/show it/whatever.”

Then… “But how were we supposed to know you had problems? You didn’t talk about it/show it/whatever, therefore you didn’t really have any.”

These are both false generalizations, and both lead to the exact same conclusion (“we don’t have to deal with this problem because we can explain it away as not existing and/or not being serious”).

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By: andreashettle https://ballastexistenz.wordpress.com/2007/07/28/we-wont-help-you-until-you-stop-acting-like-youre-in-pain/#comment-18812 Sun, 05 Aug 2007 03:32:54 +0000 http://ballastexistenz.autistics.org/?p=427#comment-18812 Okgenuine: While I think that can be true up to a point (ie people avoiding talking about problems), I think it’s an over simplistic generalization. People have very widely varying responses to problems and traumas and deal with them in fairly unique, individual ways (though this, too, is only up to a point), both in the immediate aftermath and later on. Some may indeed “deal”, at least in the short term, by avoiding. Others, at least later on, may need to talk, or take action. This doesn’t make their problems any less valid just because they talk more openly about them.

(For example, a father of a young kidnapped and brutally murdered child, I think named Adam Walsh, turned his personal tragedy into a crusade to get various child protection legislation passed so what happened to his son won’t happen to others. He doesn’t avoid talking about what happened (at least not now, I don’t know about at first), but his problems aren’t any less (or more) real. His son is still just as dead as the son of other parents who happen to deal with their grief and anger differently, and the resulting pain and grief of the loved ones left behind are pretty much the same for all that they’re expressed so very differently.)

You may also to some extent simply be seeing people in different STAGES of dealing with problems. If you haven’t already read a little something of the basic concept of the five stages of grieving, you may find it worthwhile to google it (denial, bargaining, acceptance etc). It can be a useful concept to understand as long as you keep in mind that, in practice, the distinction between one stage and the next may not always be as hard and fast as the theory sounds on paper, and the progression is rarely as neat as one two three four five either — people can and generally do go back and forth between stages or stages can overlap. (ANY theory of human behavior is inevitably going to be neater than reality, which is always going to be messy and complex … It doesn’t make the theories useless. Sometimes humans need to learn to “see” certain things in a simplified model before they learn to see them in real life. That’s all many, if not all, theories are really intended to do.)

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By: Okgenuine https://ballastexistenz.wordpress.com/2007/07/28/we-wont-help-you-until-you-stop-acting-like-youre-in-pain/#comment-18811 Fri, 03 Aug 2007 18:47:02 +0000 http://ballastexistenz.autistics.org/?p=427#comment-18811 I think everybody thinks they have it as bad as everyone else, which is obviously observably not true if you listen to some people, and watch the news. People who are actually victims tend to not complain unless they absolutely have to, because they want to avoid thinking about their problems as long as possible.

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By: captain blog https://ballastexistenz.wordpress.com/2007/07/28/we-wont-help-you-until-you-stop-acting-like-youre-in-pain/#comment-18810 Wed, 01 Aug 2007 06:16:06 +0000 http://ballastexistenz.autistics.org/?p=427#comment-18810 I am so sorry to hear about you being in so much pain and have people around you not understanding it. It must be awful.

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By: Makoto https://ballastexistenz.wordpress.com/2007/07/28/we-wont-help-you-until-you-stop-acting-like-youre-in-pain/#comment-18809 Tue, 31 Jul 2007 15:49:44 +0000 http://ballastexistenz.autistics.org/?p=427#comment-18809 My response to pain seems sort of non-linear. A little pain can drive me nuts (like a splinter), medium amounts I used to laugh in response to as a kid (not because I liked it, BTW)(from being poked with sharp pencils, pinched, etc.), and for larger amounts (shoulder ligament tearing) I seem prone to passing out really easily. The thing about that last one is that the about-to-pass-out feeling usually bothers me more than the actual pain.

One thing’s for sure: nobody seems able to tell if I’m in pain unless it’s serious and I’m rolling on the floor or passed-out. Wierdness.

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BTW, if I’m on my feet my shoulders & back start to ache after about 30 minutes (I have mild fibromyalgia, I should mention). After about 2-3 hours (varies a lot) I pass out.

I had a cardiological(sp?) test (“tilt table test”) done, and it showed that when I stood up my blood pressure would slowly drop & drop and then suddenly plunge.

So, for myself at least, I think that lack of blood flow to the brain is probably why causes the thinking fuzziness when I’m on my feet too long. Also, the body apparently tries to keep blood pressure up by pumping out lots of adrenaline & other things; hence the cold-hot sweat, racing heart, etc..

Don’t know if that’s related, but thought I’d toss that out there. I’m not female, BTW.

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By: Kevathens https://ballastexistenz.wordpress.com/2007/07/28/we-wont-help-you-until-you-stop-acting-like-youre-in-pain/#comment-18808 Mon, 30 Jul 2007 21:58:01 +0000 http://ballastexistenz.autistics.org/?p=427#comment-18808 Callista: I still don’t really understand why I can be so sensitive to touch or pain either, but perhaps one good thing would be to teach yourself to experience small amounts of pain during those ear piercings, burns, etc. It may sound ludicrous but maybe that will somehow balance out some of the other weird phenomena. But I’m really not sure on this.

Maybe there’s just some sort of nerve deficiency when you’re on the spectrum. I’ve noticed I have some problems around a guy I know with Tourette’s. He has a similar vulnerability to sounds and the environment that’s kind of electrical in nature. ?

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