Comments on: “Been there. Done that. Preferred to grow.” https://ballastexistenz.wordpress.com/2007/06/18/been-there-done-that-preferred-to-grow/ Mon, 06 Aug 2007 20:25:24 +0000 hourly 1 http://wordpress.com/ By: Patrick https://ballastexistenz.wordpress.com/2007/06/18/been-there-done-that-preferred-to-grow/#comment-18066 Mon, 06 Aug 2007 20:25:24 +0000 http://ballastexistenz.autistics.org/?p=404#comment-18066 Ashley’s parents wrote on their blog: “In our opinion only parents of special needs children are in a position to fully relate to this topic. Unless you are living the experience, you are speculating and you have no clue what it is like to be the bedridden child or their caregivers.”

You know, even these parents have no idea what it is like to be the bedridden child, how hypocritical of them to try and use this as part of their justification.

]]>
By: Rachel Silver https://ballastexistenz.wordpress.com/2007/06/18/been-there-done-that-preferred-to-grow/#comment-18065 Sat, 21 Jul 2007 21:35:09 +0000 http://ballastexistenz.autistics.org/?p=404#comment-18065 I’m a little late in commenting, but as I recall, one of the reasons given as to why Ashley’s breast buds were removed was that there was a family history of breast cancer. I’m curious to know whether or not Ashley’s mother, aunts, and sisters (if she has any) have also undergone this procedure. After all, they have the same statistical risk of getting breast cancer, yes? How could they deny themselves the same pre-emptive life-saving surgery that they so lovingly inflicted upon Ashley?

]]>
By: Eleanor https://ballastexistenz.wordpress.com/2007/06/18/been-there-done-that-preferred-to-grow/#comment-18064 Tue, 19 Jun 2007 15:32:26 +0000 http://ballastexistenz.autistics.org/?p=404#comment-18064 I’ve thought alot about Ashley X’s parents, and tried to put my finger on what it is about their approach that makes me so queasy. And I think it is this: They have embraced the role of “parents of a disabled child.” They have a cute little “pillow angel.” They love her and take care of her in the same manner they would care for an infant or small child. Ashley was not allowed to “grow up” naturally because her parents chose not to “grow up” and discover what it is like to care for a disabled teen, or a disabled adult. They were willing to be the parents of a “little disabled girl,” but not a disabled woman.

I sincerely hope that Ashley doesn’t feel trapped in this twilight forever-childhood her parents have arranged for her. This whole situation kind of reminds me of nightmares I used to have after I dropped out of high school–some 10 years later, after I had obtained a college degree, I would, in my nightmare, be forced to return to high school to “serve my sentence.” But it sounds to me like Ashley is going to be serving a lifetime sentence as her parents’ little “pillow angel.”

(By the way, I believe I saw in the news not too long ago that the hospital that performed the surgeries on Ashley has determined that these procedures shouldn’t have been performed–they should have been sent form approval to the medical ethics committee, which would have rejected them. No kidding… A bit late to arrive at this conclusion, no?)

]]>
By: andreashettle https://ballastexistenz.wordpress.com/2007/06/18/been-there-done-that-preferred-to-grow/#comment-18063 Tue, 19 Jun 2007 14:35:26 +0000 http://ballastexistenz.autistics.org/?p=404#comment-18063 Painful periods?

Granted, periods aren’t fun, and can be somewhat messy and uncomfortable (including the possibility of cramps). But unless something is seriously wrong, or unless your cramps are unusually bad (which can be controlled for many women by avoiding things like shellfish and dairy at least for the week before and during the period) it isn’t normally so painful that a hysterctomy is warranted.

And, isn’t it fairly normal for new, budding breasts to be a little uncomfortable and tender for a while? Usually they become less sensitive, at least to a degree, as they mature.

]]>
By: ballastexistenz https://ballastexistenz.wordpress.com/2007/06/18/been-there-done-that-preferred-to-grow/#comment-18062 Tue, 19 Jun 2007 13:50:42 +0000 http://ballastexistenz.autistics.org/?p=404#comment-18062 If that were really all it was, women with severe cerebral palsy all over the world would be getting mastectomies right and left and growth-attenuating treatments would be the norm for people with severe physical disabilities in general. And they’re not. For a reason. It’s only because she’s unable to talk back that they can get away with this crap.

]]>
By: outlier https://ballastexistenz.wordpress.com/2007/06/18/been-there-done-that-preferred-to-grow/#comment-18061 Tue, 19 Jun 2007 13:44:46 +0000 http://ballastexistenz.autistics.org/?p=404#comment-18061 I don’t know much about this procedure, but what it sounds like to me is that Ashley’s growth was artificially altered to make her seem more childlike even after she was chronologically an adult.

No, the purpose of it wasn’t to make her “seem more childlike,” although in some ways she would as a consequence. The purpose was to make it possible for her family to move her from place to place, hold her, take her on outhings without special equipment that would be needed to lift her were she bigger. Also, Ashley has already gone thru puberty, and does have body hair, etc. What she doesn’t have are breasts, a menstrual cycle, and an appendix. Her mother noticed that her still-undeveloped breasts were causing discomfort, and since she can’t sit in a wheelchair without being harnessed in, they would likely cause even more discomfort if they were to grow. Also, Ashley can’t communicate what’s causing her pain, so the hysterectomy and appendectomy were to prevent something like appendicitis that wouldn’t be cought until too late, or painful periods.

There are websites that explain it in more detail.

]]>
By: Rachel Hibberd https://ballastexistenz.wordpress.com/2007/06/18/been-there-done-that-preferred-to-grow/#comment-18060 Tue, 19 Jun 2007 01:55:46 +0000 http://ballastexistenz.autistics.org/?p=404#comment-18060 Outlier,

You’re right, you didn’t make the argument that Ashley has the mind of an infant.

I don’t know much about this procedure, but what it sounds like to me is that Ashley’s growth was artificially altered to make her seem more childlike even after she was chronologically an adult.

I can’t really understand why anyone would do this. Only two possible reasons come to mind:

1) To make her easier to move around.
2) To make people who already see her as a child more comfortable with interacting with her. If you view someone as a child, noticing that they have breasts and pubic hair might be disturbing to you.

My objection to the treatment is that, if it was done for reason number 2, it is a radically life-altering thing done to her to support her family’s bizarre and paternalistic attitude towards her.

If the treatment was REALLY done for reason number 1, or some reason that is pragmatic and for her medical benefit, then it’s open to more debate. I wouldn’t have an opinion until I knew more about it.

]]>
By: outlier https://ballastexistenz.wordpress.com/2007/06/18/been-there-done-that-preferred-to-grow/#comment-18059 Tue, 19 Jun 2007 01:40:59 +0000 http://ballastexistenz.autistics.org/?p=404#comment-18059 (I should add: Remember that the treatment Ashley recieved constituted less of a change than attaining larger body size, breast growth, and menstrual periods would have.)

]]>
By: outlier https://ballastexistenz.wordpress.com/2007/06/18/been-there-done-that-preferred-to-grow/#comment-18058 Tue, 19 Jun 2007 01:38:10 +0000 http://ballastexistenz.autistics.org/?p=404#comment-18058 Rachel,

I don’t think that Ashley X = infant. It’s a strawman argument. What I did say was that the objection to her treatment seemed to be based on her having hidden mental capabilities that no one is aware of, and that would have led to her voicing her own objection were she physically capable.

If the situation were reversed – if Ashley had wanted the treatment based on her own research and motivations, but wasn’t allowed to by her parents and doctors – would that also cause outrage? If not, why not?

]]>
By: Rosemary https://ballastexistenz.wordpress.com/2007/06/18/been-there-done-that-preferred-to-grow/#comment-18057 Tue, 19 Jun 2007 01:26:27 +0000 http://ballastexistenz.autistics.org/?p=404#comment-18057 The treatment that Ashley’s parents subjected her to sickens me; as does the the fact that Anne did not receive the proper care all human beings and God’s creatures are entitled to. Less time should be spent on figuring someone’s “mental age” and more on basic human rights and kindness.

]]>