Comments on: What PDD-NOS officially means.

By: Autismo: Che cos´è il PDD-NOS? (DGS-NAS Disturbo Generalizzato dello Sviluppo Non Altrimenti Specificato). - Biosfera onlus

Sat, 18 Aug 2012 17:04:59 +0000

[…] What PDD-NOS officially means (Ballastexistenz) […]

By: COS’E’ IL DISTURBO PERVASIVO DELLO SVILUPPO NON ALTRIMENTI SPECIFICATO? « autismo incazziamoci

Fri, 20 Jan 2012 22:45:49 +0000

[…] What PDD-NOS officially means (Ballastexistenz) […]

By: amanda

amanda — Sun, 14 Aug 2011 07:07:31 +0000

MY son has PDD/NOS I feel lost reading all I can. I am trying but not sure of the next step. he was first diagnosed with aspergers now the other and the public school system has failed us he is 10 soon to be 11. I have home schooled him the past year. He has been to 8 different schools because they have transferred him back and forth to another and another saying this is better and this other will be a better fit. I have gotten tired of the treatment of back and forth and shuffling of him. Now I am trying to get a IEP so he can go to a Super Learning Center I ave choose that only works and teaches children with PDD/NOS. It is hard getting the public school system to get it done I call everyday. I need advice legally any advice would be nice. He has had a IEP all his years in public school.

By: Autism, Asperger’s, PDD-NOS and Their (Lack of) Distinction « Astrid's Journal

Fri, 06 Aug 2010 21:43:52 +0000

[…] Spectrum Disorders before, but now I feel inspired by one of Amanda Baggs’ posts, discussing the PDD-NOS label as well as a recent discussion on terminology on the Dutch AutSider autism […]

By: Tentative Diagnosis « Journey to the Center of Sylvie’s Brain

Tentative Diagnosis « Journey to the Center of Sylvie’s Brain — Mon, 17 May 2010 18:09:37 +0000

[…] with Dr. McCormack was yesterday at LADDERS, and like expected, it looks like her diagnosis will be PDD-NOS. It’s a very confusing wave of emotions I’m feeling… sadness, validation, […]

By: Pamlet

Pamlet — Fri, 05 Feb 2010 16:04:56 +0000

You missed one other use of PDD-NOS by doctors: “This kid would benefit from therapy but does not meet any diagnostic criteria that would warrant it.” My daughter was evaluated by a developmental pediatrician at 2.5 years old and given a PDD-NOS dx. Although she had significant delays in a number of areas, including social development and expressive speech, she pretty clearly was not ASD (most importantly, she was able to detect and respond to emotional cues from others from an early age — hugging when mommy was sad, for example). The doctor predicted at the eval that she very likely would lose the dx after 6 months of ABA, from which she benefited enormously and, as predicted, has now “lost” the dx. I suppose you could argue that the ABA “fixed” her, but it’s my opinion (and sure, I could be wrong) that her delays stemmed from her low tone (she didn’t walk until she was nearly 3) and she was never “really” ASD. The important BUT is here: she needed the ABA because of her atypical development. Her brain was working so hard on organizing her physical side, that the social/language side didn’t develop appropriately and she needed a push from therapy — ABA. I suspect there may be other kids like her and I wonder the extent to which this skews the stats on ASD dxs. (And also gives false hopes to people who think ASDs can be “cured”.) Just a thought.

By: Avery's mom

Avery's mom — Thu, 21 Jan 2010 05:54:15 +0000

Just this month, my son’s ped. was asking me some questions at his well-child appt. and mentioned that she was thinking he might be on the autism spectrum…PDD. When he was 2 y.o. his cardiologist asked if he was autistic, because he was rocking (he would rock so violently that he broke 2 glider-rockers and has knocked screws out of his bed/crib, and screws are loose in his wheelchair frequently, too), hand-flapping, clapping his hands, humming, letting his eyes cross in rhythm with his flapping, humming, and rocking. I told him that he does have tendencies. He does spin objects and lines things up, and if they’re not just right, he gets mad. If he’s frustrated with a toy, he cannot tell me what’s going on, he’ll hit, pinch, scratch, etc, to get my attention and to try and “fix” whatever it is. He is very much into movies and objects like small stuffed animals and toy cars that he can hold in his hand and take places with him. He is my little parrot…echoing things that are said near him. He is g-tube fed, he doesn’t like anything in his mouth and we have a huge fight just to brush his teeth, bathe him, brush his hair, hates changing his clothes, etc. He does occasionally toe-walk…he’s getting better with that when he wears his AFOs. So, what do you think? Just by what I’ve mentioned, I know he is in some category, just where is a mystery to me! If you have any thoughts, please let me know!

By: Deke'smom

Deke'smom — Tue, 29 Dec 2009 01:57:16 +0000

The discussion on PDD-NOS was how I found this site. My 5-year-old son’s dx was originally Asperger’s, immediately after turning 4. A new “evaluation” this summer, from a different Dr., produced a dx of PDD-NOS. I’ve been wrestling with the terminology ever since! Thanks so much for all the info & opinions.

In addition, this whole site has proven to be a helpful resource. I’m so grateful that it’s available!

By: paula

paula — Sun, 25 Oct 2009 01:06:59 +0000

I just went to a WECA conference and had a seminar on Autism. The presenter was very good. She had a PHD. She stated the same as you that the diagnosis is hard because of the variety of symptoms. She also said how each case needs to be treated individually. I was unaware until this seminar what PDD-NOS was. So that is how I came to read your info. It really gave me insight into what she said. the presenter wasn’t there to support anything just to tell preschool teachers the signs and symptoms and criteria used to diagnosis. She gave info that was so interesting. How most children were diagnosed at age three – five so people thought it just started. Then they paid more attention and noticed things as early as 18 months. Now they are going back and looking a video a new technology used by most people and can find signs and symptoms way back. She used the same criteria you have shown, but did not think PDD-NOS was used as you imply. I have no opinion on that. She did however say most parents were relieved to know what their chid had rather than give parents the smooth over I do not know speech. Thanks for the great info

By: Missy

Missy — Wed, 14 Oct 2009 12:10:48 +0000

My son was just given a PDD-NOS diagnosis today.
I have read so much material and done so much research in the last 2 months, I know he has Aspergers.

It seemed to me that the doctor was reluctant to give him an Aspergers diagnosis because he is still so young (he is 5yrs old) so she just threw him into the PDD category because he isn’t “normal.”

I also questioned her on whether it made a difference that she was an adult during the evaluation and she didn’t get to do any observation on him with peers. She claimed that any social disabilities that he has would be prominent no matter what the situation. I, however, do not agree. I have seen my son interact with adults with a slight disability, yet when it comes to his peers, that is where is social disabilities lay.

I am so glad that I found your blog (I found it by doing a search for PDD-NOS.) I will certainly be looking around a little bit more.