Comments on: I may not write or respond a lot for awhile. https://ballastexistenz.wordpress.com/2007/02/21/i-may-not-write-or-respond-a-lot-for-awhile/ Thu, 01 Mar 2007 21:13:15 +0000 hourly 1 http://wordpress.com/ By: Javik https://ballastexistenz.wordpress.com/2007/02/21/i-may-not-write-or-respond-a-lot-for-awhile/#comment-16089 Thu, 01 Mar 2007 21:13:15 +0000 http://ballastexistenz.autistics.org/?p=317#comment-16089 I now understand what you mean by all the grueling media attention.

The British weekly science magazine New Scientist has mentioned you and printed images from your video in their Feb 17-23, 2007 issue.

Link to article on the New Scientist website:
When sociable computing meets autism
(May require a magazine subscription to access)

]]> By: n. https://ballastexistenz.wordpress.com/2007/02/21/i-may-not-write-or-respond-a-lot-for-awhile/#comment-16088 Thu, 01 Mar 2007 10:24:03 +0000 http://ballastexistenz.autistics.org/?p=317#comment-16088 [there was a formatting error in previous comment. please print this one.]

if you want to help out Amanda and Autistics.org’s awareness and advocacy efforts
Autistics.org has an online store. We have put a variety of attractive and thought-provoking designs for sale there, with more to come soon.
You could also just donate money at Autistics.org (by paypal), which is actually better, because they get more funds that way.
But if you also want a T-shirt (or button, bumpersticker, dog-vest, etc.) to make people stop and think, you can get that at the store, and all profits recieved by us from this store (I think we have the “mark-up” set at a dollar or so per item) will go directly to keeping Autistics.org running.
http://www.cafepress.com/autieliberation

By the way, what does Autistics.org do? Right now the website has a lot of educational, political and practical information for (and for understanding) autistics, much of which is found in the library.
There is also a forum, which is just recently getting going.
Also they have many plans for other projects to help autistics, and as you can read an example of in parts of this post, the members do advocacy on their own or in cooperation with others. I think there are also plans to further organize their efforts for helping autistics in desperate situations.

Amanda & co., please excuse if I have left out anything important. (I don’t know all the details; I’m new to the group and am mainly just helping out with the store).
I will add a PS to this comment if I find out something important that was missed.

]]> By: Keri https://ballastexistenz.wordpress.com/2007/02/21/i-may-not-write-or-respond-a-lot-for-awhile/#comment-16087 Thu, 01 Mar 2007 09:58:04 +0000 http://ballastexistenz.autistics.org/?p=317#comment-16087 Hi Amanda,
I just wanted to say I loved your interview on tv, I read the whole thing on the website of CNN… Just awesome! I’m the mother of Maleia Darling who has autism and I was just inspired to see your interview as Maleia was recently interviewed by the Times Argus last month and it was just great to see you and Maleia getting the word out there. I was hoping we could email each other about an event happening at the end of April and maybe you could come and speak/type a short time at this event? Please contact my email directly thank you!!!

]]> By: Thirza https://ballastexistenz.wordpress.com/2007/02/21/i-may-not-write-or-respond-a-lot-for-awhile/#comment-16086 Wed, 28 Feb 2007 22:55:46 +0000 http://ballastexistenz.autistics.org/?p=317#comment-16086 I hear you on the introversion thing. Hope you have a good break, recharge, enjoy the silence as it were. Even revolutionaries need a holiday. I haven’t been following the media attention on you, I’ve been in some of my own stuff, but I’ll have to go take a look see. Take care you.

]]> By: Ettina https://ballastexistenz.wordpress.com/2007/02/21/i-may-not-write-or-respond-a-lot-for-awhile/#comment-16085 Wed, 28 Feb 2007 13:27:38 +0000 http://ballastexistenz.autistics.org/?p=317#comment-16085 I sent a link to the CNN interview to a couple lists I belong to and on one (about Angelman Syndrome, which has some similarities to autism) there’s already been several positive responses.
I actually heard about it from a list on Aicardi Syndrome. (I like to research piles of different syndromes). Aicardi Syndrome they are severely delayed and have vision problems and seizures, it’s more severe than autism. But many of the same lessons are true.
Ettina
PS: For the multitude of parents who wants answers to questions, you can contact me if you wish. My experience with autism is different from Amanda Baggs but there are still some commonalities. Just click on my name to find my website (including a blog which is updated in bursts) where you can find my e-mail address.

]]> By: Meaghan https://ballastexistenz.wordpress.com/2007/02/21/i-may-not-write-or-respond-a-lot-for-awhile/#comment-16084 Wed, 28 Feb 2007 12:30:37 +0000 http://ballastexistenz.autistics.org/?p=317#comment-16084 Hi Amanda, I’m compiling a list of resources for people with autism and their families. I’m writing from a Canadian Treatment Centre (no ABA) wondering if I can add your link to our resources page in our professional journal. Seeing that you are getting a lot of attention lately, some of it bad-I wanted to ask you first. I’m listening to you through media and internet. Thanks for putting yourself out there like this. It really is a wonderful thing to do. Your article from the communicator in the fall really resonated with me. Thanks for your time!

]]> By: Marie https://ballastexistenz.wordpress.com/2007/02/21/i-may-not-write-or-respond-a-lot-for-awhile/#comment-16083 Tue, 27 Feb 2007 22:56:48 +0000 http://ballastexistenz.autistics.org/?p=317#comment-16083 There are alot of good web sites on augmentive communication, and how to teach kids and adults how to use them. Check out AACintervention.com or
closingthegap.com or setbc.org or lburkhart.com. There are many types of aug-com available, from low to high tech. Even people who can’t type can access aug-com devices through pictures on a touch window or switches. Students on IEPs in E-transitions are required to have assistive technology considered.

]]> By: Angela https://ballastexistenz.wordpress.com/2007/02/21/i-may-not-write-or-respond-a-lot-for-awhile/#comment-16082 Mon, 26 Feb 2007 17:12:06 +0000 http://ballastexistenz.autistics.org/?p=317#comment-16082 i was impressed with your storie. i give you all the credit. id love to hear more from you. you are an amazeing person. may god bless you. i seen you on tv. i was impressed you are truley blessed. blessings my friend. angela

]]> By: John Dragon https://ballastexistenz.wordpress.com/2007/02/21/i-may-not-write-or-respond-a-lot-for-awhile/#comment-16081 Mon, 26 Feb 2007 10:33:12 +0000 http://ballastexistenz.autistics.org/?p=317#comment-16081 Thank You, Amanda, for the work you have created…

You have given courage to all of us who are different from the common
people, not just autistics…

Peace&Love,

John

]]> By: eyelove808 https://ballastexistenz.wordpress.com/2007/02/21/i-may-not-write-or-respond-a-lot-for-awhile/#comment-16080 Mon, 26 Feb 2007 03:56:48 +0000 http://ballastexistenz.autistics.org/?p=317#comment-16080 Thank you so much for your blogs, videos and courage to create them.

I am the parent of a 4 1/2 year old non-speaking daughter named Alexis and a 2 1/2 year old Neurotypical child Named Cadence.

Alexis likes to type, we discovered this when she was 2.

You have been a true inspiration, I hope I have not added to your feelings of being overwhelmed, you have simply put things into a whole new light for us parents while Autistic children and you are ever appreciated for your time and effort.

I was hoping that you could help me, I would like to know the name of some of the devices you use, what you recommend and where I could find similar things for my daughter.

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