Comments on: Exploited? Hardly. https://ballastexistenz.wordpress.com/2006/11/06/exploited-hardly/ Sat, 31 Mar 2007 16:23:45 +0000 hourly 1 http://wordpress.com/ By: Jenn https://ballastexistenz.wordpress.com/2006/11/06/exploited-hardly/#comment-14124 Sat, 31 Mar 2007 16:23:45 +0000 http://ballastexistenz.autistics.org/?p=226#comment-14124 Oh, Jesus! Okay, I have a few more things to say after glancing back up the page.
Autism does NOT MEAN STUPID! Amanda seems to be demonstrating her cognitive awareness quite well. Making decisions for an adult individual that is telling you they can make their own decisions is nothing short of imprisoning that individual. Even if the individual does not make the best decisions, who cares? I don’t always make the best decisions, but I’m 20 and my parents are not trying to and can not take guardianship of me. It should be no other way for any individual just because they have autism. I could go on about this forever, but I have not the time to make it clear enough for everyone what an injustice it woule be to basically deny someone the right to become an adult.

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By: Jenn https://ballastexistenz.wordpress.com/2006/11/06/exploited-hardly/#comment-14123 Sat, 31 Mar 2007 16:07:41 +0000 http://ballastexistenz.autistics.org/?p=226#comment-14123 I don’t have time to read all of these posts and comments, and I am sadly lacking in familiarity with any of the people or blogs on here, but I could not help but feel that all this back and forth bickering between people who want to advocate is doing nothing but disracting us all and hurting those individuals who can not yet speak/communicate for themselves.
My younger brother was diagnosed with autism 12 years ago and we have been trying for the last several years to provide him with the resources and support he needs to communicate any way he can. This includes PECS and FC. I really look up to individuals like you, Amanda, who have learned ways to communicate rather efficiently. To those that think FC is just abuse: Can you provide the means for a non verbal individual with autism to communicat? Please let me know!! Otherwise, keep your snide comments and your negative opinions out of the way of decent people trying to allow individuals to take part in their community any way that they can. I would do anything to be able to communicate with Daniel (my brother) efficiently.
Also, to those of you who are going on about this “cure”: if an individual is diagnosed with autism, but can function efficiently and live in a way that is acceptable to them, then I would say that is GREAT! If they do not want a “cure” so what? They are happy!(efficiently is defined by the one doing the functioning btw) LEAVE THEM ALONE. If an individual chose to take a cure, that is their decision is it not? It is not for me or anyone else to say what is good or bad for something I/we have never experienced. Autism has changed my life, and I’m not the diagnosed indiv. my brother is. There are some things I wish were different (ie I wish I could communicate with Daniel, I wish he could tell me when and what is wrong, etc) but I would not trade him for a “normal” brother. EVER. The only reason I would, at this moment in time, choose to give a “cure” to Daniel, would be because he is unable to function in society currently, and I would love to see him able to take an equal part in the social whirl that is the life of a fifteen year old. This he cannot do at the moment, but we are working on that.
On the other hand my cousin has Aspergers and she is quite able to function and communicate. She says she would take a cure. She is unhappy with her current state. Amanda is NOT. That is wonderful, leave her alone.
Have any of you ever seen X-Men III? Thats what this makes me think of.. lol!

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By: J https://ballastexistenz.wordpress.com/2006/11/06/exploited-hardly/#comment-14122 Mon, 13 Nov 2006 04:07:38 +0000 http://ballastexistenz.autistics.org/?p=226#comment-14122 But you do think all adult autistics should have a legal guardian, correct? I’m going by post 99 where you described parents who didn’t petition for legal guardianship as negligent. You also suggested that Social Services take autistics into protective custody. I’m not suggesting you would break the law. In Post 99, from what I understood, you endorse depriving everyone diagnosed with autism of legal authority to life decisions, regardless of age. And judging by post 38, you feel it’s reasonable to subject an autistic person to chelation, over their clearly communicated objections, provided you have the legal right to do so. So that would be forced chelation for all autistic people who’s guardians permitted it, and everyone who didn’t have a legal guardian.

If the legal guardian explicitly refused to allow chelation, would you support their legal right to do so? If an autistic adult who could clearly communicate by typing expressed a desire for chelation and the legal guardian refused, would you still support the guardian’s right to make medical decisions? Or do you think people with autism should have the right to control over their own bodies when they agree with you?

And since you don’t think there’s a cure for being gay, does that mean you don’t believe it’s caused by mercury poisoning? Was the post I cited a joke of yours, or have you changed your views? Personally I’m relieved you’re not attempting to cure me.

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By: Anne https://ballastexistenz.wordpress.com/2006/11/06/exploited-hardly/#comment-14121 Sun, 12 Nov 2006 19:40:22 +0000 http://ballastexistenz.autistics.org/?p=226#comment-14121 “Well, whilst they have Lupron in their crosshairs they also have the parents.”

This doesn’t make sense to me. By this reasoning, nobody would ever blow the whistle on anything dangerous if it was in use by anyone else.

“Do they know better than scientists and parents?”

They *are* parents. Does that make them right?

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By: kevin_1000 https://ballastexistenz.wordpress.com/2006/11/06/exploited-hardly/#comment-14120 Sun, 12 Nov 2006 16:03:42 +0000 http://ballastexistenz.autistics.org/?p=226#comment-14120 Bright Chapper,

“some kids here are having Lupron forced upon them. Urine injections too. Deadly EDTA injections too. So is there a problem that Dave is bothered by this? Deal with the fact that the Seidels have taken autism advocacy up as a cause and that Lupron abuse is in their crosshairs.”

Well, whilst they have Lupron in their crosshairs they also have the parents. Could cause a little friction. Do they know better than scientists and parents? Hmmm…

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By: J https://ballastexistenz.wordpress.com/2006/11/06/exploited-hardly/#comment-14119 Sun, 12 Nov 2006 14:58:19 +0000 http://ballastexistenz.autistics.org/?p=226#comment-14119 Mr. Best,

It is evident from post 38 and post 99 that you support rounding up autistics, denying them the legal right to make decisions, and subjecting them to chelation, by force, if necessary. In this comment thread http://www.kevinleitch.co.uk/wp/?p=360, specifically in comments 53 and 56, you suggest that homosexuality may be caused by mercury. Do you also support rounding up all gays and lesbians, depriving us of legal control over our lives and forcing us to submit to your treatments?

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By: ballastexistenz https://ballastexistenz.wordpress.com/2006/11/06/exploited-hardly/#comment-14118 Sun, 12 Nov 2006 12:56:58 +0000 http://ballastexistenz.autistics.org/?p=226#comment-14118 Okay. As the person who moderates this blog:

1. Stop calling each other names

2. Stop acting like obnoxious children in a schoolyard. “LA-LA-I CAN’T HEAR YOU” is not useful conversation, it’s something I expect from spoiled six-year-olds.

3. Stop making all sorts of snide little putdowns and personal attacks.

4. Don’t make any threats of violence, veiled or otherwise. I’m not stupid and “not that I would condone this” doesn’t absolve you of responsibility for making such threats. Do not even try to convince me you’re not doing this, just stop it.

Most of all, after I post this, do not reply to tell me that those on the “other side” are doing this, because they’re idiots or morons or insane or mentally unbalanced or whatever your current disability-derivative insult is. Again, do not try to convince me that you’re not doing this, do not use what I am saying as leverage to hurl insults at the other side, do not try to flip things around to make yourself blameless and put someone else down. Do not simply go more veiled with the way you are doing this. Just stop. Now.

I’m sure all of you are grown up and capable of telling the difference between a debate, even a heated debate, and a mudslinging match. Heated debate I don’t mind, but that’s not what is going on here.

Most of you — on all sides of this debate — are acting like children. Grow up.

I will be moderating this thread from here on out. If you don’t want your well-crafted arguments to disappear into oblivion, don’t do this stuff, because I’m not going to waste my time editing out the bad parts, I’m just going to check the “delete” box on your comment. This goes for all of you. I’m not going to ban any of you at this point, but I’m not going to put up with schoolyard nonsense either.

(To the person who thinks I engaged in this before: I think otherwise, but the point is that I’m moderating this stuff from here on out, not erasing old posts, mine, yours, or anybody’s. End of discussion.)

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By: jonsmum https://ballastexistenz.wordpress.com/2006/11/06/exploited-hardly/#comment-14117 Sun, 12 Nov 2006 12:40:37 +0000 http://ballastexistenz.autistics.org/?p=226#comment-14117 Kev;
‘LA-LA-I CAN’T HEAR YOU’

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By: kevin_1000 https://ballastexistenz.wordpress.com/2006/11/06/exploited-hardly/#comment-14116 Sun, 12 Nov 2006 12:38:40 +0000 http://ballastexistenz.autistics.org/?p=226#comment-14116 kev,

“Some day your child and mine are going to have to try and function as autistic adults in a world that people like you made think they are plague carriers or diseased.”

I don’t know what your problem is, but it must be hard to pronounce.

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By: kevin_1000 https://ballastexistenz.wordpress.com/2006/11/06/exploited-hardly/#comment-14115 Sun, 12 Nov 2006 12:09:31 +0000 http://ballastexistenz.autistics.org/?p=226#comment-14115 Dave,

“..the children have to be restrained by two adults..”

Your knowledge of autism must be limited. Some autistic children have to be restrained to have their hair cut. Why don’t you stick to washing dishes.

Of course, you know better than all the parents and scientists, not. Do you think that parents trying to help their disabled kids will really give a shit what you think. As long as they can do what they feel is necessary and safe for their child you will pale into insignificance, along with Kathleen Infidel.

Just as well you don’t have any influence in the treatment of disabled kids or you might find a group of vigilante parents queuing outside your door to beat the living daylights out of you. Ditto for kev, Andrews and Monkey.

Not that I would condone that.

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