Comments on: For people who think counting autistic people in the past is easy. https://ballastexistenz.wordpress.com/2006/09/19/for-people-who-think-counting-autistic-people-in-the-past-is-easy/ Sun, 24 Sep 2006 23:48:26 +0000 hourly 1 http://wordpress.com/ By: ballastexistenz https://ballastexistenz.wordpress.com/2006/09/19/for-people-who-think-counting-autistic-people-in-the-past-is-easy/#comment-13383 Sun, 24 Sep 2006 23:48:26 +0000 http://ballastexistenz.autistics.org/?p=198#comment-13383 Yeah. I know a lot of people who are almost undoubtedly autistic, but undiagnosed, because their first diagnosis was something else I seem to have that’s associated with being autistic but that… yeah if the people have that diagnosis to begin with then autism is rarely considered as a secondary diagnosis.

And that’s even the ones who don’t need surgery (a lot do, particularly with the more severe versions) get that kind of thing.

I saw a case study recently, where there was a kid with this, above-normal IQ (which even normal IQ is supposedly quite rare for this), and had trouble socializing and with self-care skills, and was a “perfectionist” academically and in other areas of life. The explanation given, was that he was small for his age, so people did things for him that he could undoubtedly do for himself, and the social trouble was because he was small for his age, and the perfectionism academically must be to compensate for the social trouble. As in, a complicated, convoluted explanation for the kid probably being autistic.

And I see a lot of that kind of explaining away, and a lot of very autistic-seeming descriptions, being given in more medical-seeming ways rather than the psychiatric ways that autism is described by the psych profession. And I think a lot of people who have the things that look more medical, if they’re caught early enough (which depends on both severity and well-known-ness of the condition), it doesn’t come to people’s attention they could possibly be autistic.

(A bit of that’s a tangent off of what you wrote, but my attention span is still not what it could be.)

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By: Moggymania https://ballastexistenz.wordpress.com/2006/09/19/for-people-who-think-counting-autistic-people-in-the-past-is-easy/#comment-13382 Sun, 24 Sep 2006 22:22:17 +0000 http://ballastexistenz.autistics.org/?p=198#comment-13382 I haven’t read your comments yet, so I have no idea whether anyone has suggested this one yet or not — but you’d have to include all of the children that had physical disabilities at an early age, especially if they also had surgery (or other medical trauma) while little. Everything can end up explained away as either part of the disability or a reaction to the trauma, even when the signs are completely unrelated.

What I think makes it even more pertinent to the current “epidemic” nonsense is that doctors are only *now* gradually not doing that. As recently as 1998/1999 I was emailing with parents of disabled kids that in retrospect were clearly autistic, without *ever* hearing the term used. I had started seeing spectrum-related terms in the rare-disability forums the last few years, but there were still plenty of firm “it’s just his personality” or “it’s just because of the trauma” adherents there the last time I looked. Obviously, though, as more of them are converted to the right terminology, more are going to be included in official counts.

Another reason not having to do with that myth… Parents of kids with rare disabilities often relocate the whole family (temporarily or permanently) to be near a good surgical center. Those kids, if diagnosed autistic, then suddenly show up as if they’d been *born* in the state when they start school. Diagnosed or not, when they start going to school, they end up getting many of the same services. (25 years ago, also, I believe the kids like me were mainstreamed with our *developmental* services/accommodations under a physical category because of the “it’s part of the disability” myth.)

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By: Theo Bromine https://ballastexistenz.wordpress.com/2006/09/19/for-people-who-think-counting-autistic-people-in-the-past-is-easy/#comment-13381 Fri, 22 Sep 2006 10:47:26 +0000 http://ballastexistenz.autistics.org/?p=198#comment-13381 jeffrey smith says:
I’m now 47. Roughly a year and a half ago, I stumbled over information
regarding Asperger’s, and realized I fit the profile, both in
childhood and adulthood, extremely well, and realized from realizing
the writings of people who knew themselves to be on the spectrum,
that I too was autistic.

I am not jeffrey smith, but I can repeat this statement for myself in nearly every detail. And I can think of people I have known who in retrospect were almost certainly autistic, but had been described as being “odd”, “retarded”, or even (when I was hanging out with Christian fundamentalists) “demon-possessed”

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By: Ann https://ballastexistenz.wordpress.com/2006/09/19/for-people-who-think-counting-autistic-people-in-the-past-is-easy/#comment-13380 Thu, 21 Sep 2006 15:54:14 +0000 http://ballastexistenz.autistics.org/?p=198#comment-13380 Another angle on the same lines. How many doctors ‘diagnosed” a child who may have had motor problems and couldnt speak as mentally retarded and forced the parents to institutionalize him/her? It would be interesting also to compare stats of states that were of the idea “you cant speak or walk send them away” and those that said ‘keep them with us as long as possible”. Plus the states that were at the forefront of closing their large institutions versus those that only reduced their ‘clients” under threats and warnings. I still have a problem understanding how you can label someone mentally handicapped if they don’t have a means of communciation AND have not been accepted into ‘normal” family life. My theory is that states that said ” keep them home” MIGHT have started to have higher rates of autism than those that sent them away. And is there any correlation to the availablility of communication systems that would prove that because you lost your ability to speak you hadnt lost your ability to think? Meaning that a person who was “retarded” was assumed NOT to be capable of communicating BUT a person with autism was. Therefore if you cant speak and can communicate you must be autistic. And of course you have the thousands of doctors who dont appreciate the fact that people are finding out that they deliberately misdiagnosed patients simply to get them out of their hair. All of a sudden they arent being treated like God anymore and that can be a difficult pill to swallow. So they have to justify their diagnosis somehow -why not say ” ITs a epidemic ” rather than admit “yes I have seen this behaviour many times before and I put them in institutions as fast as possible”

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By: jeffrey smith https://ballastexistenz.wordpress.com/2006/09/19/for-people-who-think-counting-autistic-people-in-the-past-is-easy/#comment-13379 Wed, 20 Sep 2006 23:36:51 +0000 http://ballastexistenz.autistics.org/?p=198#comment-13379 I think Frustrated has a good point. I’m now 47. Roughly a year and a half ago, I stumbled over information regarding Asperger’s, and realized I fit the profile, both in childhood and adulthood, extremely well, and realized from realizing the writings of people who knew themselves to be on the spectrum, that I too was autistic. Up to that point, I can remember meeting only one individual whom I knew to be autistic. In 45 years! Of course, there are others whom I suspect are on the spectrum, but possibly not, whom I knew at various stages of my life: but my view of them as being possibly autistic came only when I began to learn about autism as it applied to me. At the time I knew them, I didn’t connect them with autism, or anything like it. So during 45 years I had one encounter with a person whom I knew to be autistic. And I work in retail, where a whole variety of the general public comes across my ken.
The day after I decided I was autistic, I encountered a person who was obviously autistic–although I didn’t have a chance to ask directly if he was. Over the next several months, I encountered at least one autistic person a week, mostly at my job. Most of them I was able to confirm were on the spectrum. The stream of encounters then began to dry up, but has not entirely stopped.
Obviously, my autistic radar was more sensitive: and I had more awareness and information. No doubt I had simply missed an enormous number of others over the years.

One further point: in _Autism_ Ute Frith pointed out that during the period autism rates supposedly increased because of vaccines, diagnoses for generalized mental retardation decreased at a corresponding rate. Her conclusion, of course, was that this simply represented a change in diagnosic practices: that some children who would have previously been diagnosed with an undifferentiated lable of MR are now precisely labeled as autistic.

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By: Kevin Greenlee https://ballastexistenz.wordpress.com/2006/09/19/for-people-who-think-counting-autistic-people-in-the-past-is-easy/#comment-13378 Wed, 20 Sep 2006 22:31:01 +0000 http://ballastexistenz.autistics.org/?p=198#comment-13378 If anyone out there has access to a good university library it might be worth your while to dig out a copy of the June 4, 1853 issue of Charles Dickens’ Household Words. It contains an article about some very autistic sounding people. Despite the perjorative name of the piece (“Idiots”), it makes the case for better and more sympathetic treatment of the so called “imbeciles.” Here, from early in the article, is a sample paragraph:

Until within a few years, it was generally assumed, even by those who were not given to easy assumptions, that because an idiot was, either wholly or in part, deficient in certain senses and instincts necessary, in combination with others, to the due performance of the ordinary functions of life- and because those senses and instincts could not be supplied- therefore nothing could be done for him, and he must always remain an object of pitiable isolation. But, a closer study of this subject has now demonstrated that the cultivation of such sense and instincts as the idiot is seen to possess, will besides frequently developing others that are latent within him but obscured, so brighten those glimmering lights, as immensely to improve his condition, both with reference to himself and to society. Consequently there is no greater justification for abandoning him, in his degree, than for abandoning any other human creature.

A few pages later, the article concludes with the hope that- if humane and decent treatment of “idiots” continues- someday Shakespeare will be annotated to say “A tale told by an idiot, full of sound instruction, signifying something.”

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By: lordalfredhenry https://ballastexistenz.wordpress.com/2006/09/19/for-people-who-think-counting-autistic-people-in-the-past-is-easy/#comment-13377 Wed, 20 Sep 2006 21:35:53 +0000 http://ballastexistenz.autistics.org/?p=198#comment-13377 btw, post above contains doses of sarcasm without proper demarcation. :|

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By: lordalfredhenry https://ballastexistenz.wordpress.com/2006/09/19/for-people-who-think-counting-autistic-people-in-the-past-is-easy/#comment-13376 Wed, 20 Sep 2006 18:19:53 +0000 http://ballastexistenz.autistics.org/?p=198#comment-13376 Yes. As many can attest, I’m still deaf and mute. Well, 75% of one and 92% of the other and 68% of something else.??? Alas, either that or I’m an epidemic now or I’m just honery(sp? (onery?)) kid #3145968 who thinks he knows it all and can’t possibly have anything. After all, I just made some text! Wow!!!!!!

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By: The Goldfish https://ballastexistenz.wordpress.com/2006/09/19/for-people-who-think-counting-autistic-people-in-the-past-is-easy/#comment-13375 Wed, 20 Sep 2006 08:12:43 +0000 http://ballastexistenz.autistics.org/?p=198#comment-13375 Talk of an ‘epidemic’ is always of great annoyance to me when it comes to conditions like autism, where diagnostics have come along in leaps and bounds within a very short space of time – the likelihood of getting diagnosis now has increased dramatically from just ten years ago. The same goes for all variety of conditions and impairments.

There are also, of course, a great number of traits and behaviours which once considered pathological are now considered healthy and “okay”. The same will undoubtedly be the case in the future.

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By: Frustrated https://ballastexistenz.wordpress.com/2006/09/19/for-people-who-think-counting-autistic-people-in-the-past-is-easy/#comment-13374 Wed, 20 Sep 2006 03:21:04 +0000 http://ballastexistenz.autistics.org/?p=198#comment-13374 I think the whole epidemic idea came about in part as a result of a common tendency amongst non-autistic people- namely being more aware of things which have been brought to your attention in a very personal way. I likened this on a parents forum to the common phenomenon that occurs after you purchase a new car. Even if you had never really noticed this particular car in the past, now all of the sudden you are seeing them everywhere. Is it more likely that last week there were no other cars like yours on the road and that everyone purchased their cars at the same time that you did, or is it more likely that you failed to pay attention to those particular cars last week despite the fact that they were there in almost the exact same numbers?

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