Comments on: Autism National Committee conference https://ballastexistenz.wordpress.com/2006/08/27/autism-national-committee-conference/ Mon, 27 Nov 2006 16:36:57 +0000 hourly 1 http://wordpress.com/ By: Sandra McClennen https://ballastexistenz.wordpress.com/2006/08/27/autism-national-committee-conference/#comment-13133 Mon, 27 Nov 2006 16:36:57 +0000 http://ballastexistenz.autistics.org/?p=187#comment-13133 Hi, Amanda. We met at the Autism National Committee Conference. It was an honor, as I consider your “Getting the Truth Out” site to be very important in the effort to educate people correctly about autism.

I teach an online course for teachers of students with autism and would be honored if you would be a Chat Guest. That would require you to log on to the course at an agreed upon time–if possible between now and December 9–and respond to typed questions by students for one hour. Unfortunately, I cannot pay you, but you will have the opportunity to educate teachers. The current unit is “Critical Issues.” Here are the four we focus on:

• When you don’t know something important for certain, what assumption will you make as you decide how to proceed?

• The terms “high functioning” and “low functioning” are widely used by professionals in the field of autism. What do they mean? Should we be using them?

• How is autism presented to the public? What kinds of public attitudes about people with autism does this type of presentation engender?

• Autistic neurology is different from typical neurology. People with autism cannot, therefore, understand exactly how we neurotypicals perceive the world. Can we understand exactly how people with autism perceive the world? Because they cannot understand how we perceive the world, does that mean they also do not understand how they themselves process their emotions and their thoughts?

Students’ questions are likely to be focused on these issues, though not necessarily. I would ask them to view your website prior to the Guest Chat. I would also ask them to read anything you would want to send in advance.

I look forward to hearing from you.

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By: n. https://ballastexistenz.wordpress.com/2006/08/27/autism-national-committee-conference/#comment-13132 Tue, 29 Aug 2006 22:13:12 +0000 http://ballastexistenz.autistics.org/?p=187#comment-13132 oh sorry but one other thing. i was thinking that the thing of auties who give each other sensory overload is one way it would be useful to have the “types” of autistics, but only if you had to make arrangements about living together, in which case it might not be types but just some lists for each person: “what things you can’t stand” and “what things you need to do” and if the persons weren’t compatible in these lists well they would maybe need more rooms…

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By: n. https://ballastexistenz.wordpress.com/2006/08/27/autism-national-committee-conference/#comment-13131 Tue, 29 Aug 2006 21:57:38 +0000 http://ballastexistenz.autistics.org/?p=187#comment-13131 (i mean prescription sunglasses to use not only in the sun but indoors too.)

the reason i don’t understand this first-hand is i seem to always want extra light… i can’t even put down the windshield visors when i’m driving in the sun, becos they feel like giant eyelids closing off half my vision and making me feel sleepy. i think this is not normal.

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By: LB https://ballastexistenz.wordpress.com/2006/08/27/autism-national-committee-conference/#comment-13130 Tue, 29 Aug 2006 21:41:05 +0000 http://ballastexistenz.autistics.org/?p=187#comment-13130 Are the prices for these glasses for “real” (lol). I am very nearsighted and have not been able to afford a pair of glasses in years because the lenses cost so much even though mine are all scratched. I don’t think I have a current prescription though – but it would be nice to order them over the internet. I dislike going to the optometrist because they always want to touch by your eyes or else I think about all the other people trying on the frames.

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By: n. https://ballastexistenz.wordpress.com/2006/08/27/autism-national-committee-conference/#comment-13129 Tue, 29 Aug 2006 19:51:49 +0000 http://ballastexistenz.autistics.org/?p=187#comment-13129 ok, after writing i just remembered that i saw some colored sunglasses in the GOODWILL this weekend!! Going back there, soon.

of course it turns out my husband is skeptical about the different colored lenses (although he got sunglasses to wear inside?! but i guess light sensitivity is a different issue)… well, we’ll see if any experiment turns up a good result. Anyway thanks so much for the glasses link… will try for him and plus whenever I ever get around to getting another eye exam, i think i will order my next ones there.

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By: ballastexistenz https://ballastexistenz.wordpress.com/2006/08/27/autism-national-committee-conference/#comment-13128 Tue, 29 Aug 2006 19:05:01 +0000 http://ballastexistenz.autistics.org/?p=187#comment-13128 I’ve tried sunglasses on in the store before, and then bought only the most promising pairs for longer-term trials. I don’t think they mind. :-)

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By: Evonne https://ballastexistenz.wordpress.com/2006/08/27/autism-national-committee-conference/#comment-13127 Tue, 29 Aug 2006 16:51:07 +0000 http://ballastexistenz.autistics.org/?p=187#comment-13127 Okay, fine, listen to Amanda; she’s probably right. ; ) I use glasses for everything *but* reading, so I should shut up. (I suppose you could actually try sunglasses out *in* the store too — though I’m quite sure I’d manage to get myself kicked out very quickly for that.)

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By: ballastexistenz https://ballastexistenz.wordpress.com/2006/08/27/autism-national-committee-conference/#comment-13126 Tue, 29 Aug 2006 16:08:29 +0000 http://ballastexistenz.autistics.org/?p=187#comment-13126 Actually, that’s one thing that doesn’t really work. Glasses people prefer are generally for whatever reason not whatsoever the same tint they use for reading. (I use purple for reading, green for glasses, for instance.)

One good way to experiment for low cost though is to go to a dollar store (if they have things like that where you live), and buy all different tints of sunglasses, then when you get a tint that’s sort of close to what you like, start ordering the glasses that are closest to that and see which work best. (This can take a long time, but in all the cost is still going to be less than an Irlen lens evaluation.)

If you have the money to fork out, you can go to the Irlen institute or any “Irlen screeners” and get tested, they have a huge long systematic way of doing it.  But the trouble is, you get a lot of screeners who won’t let you do unconventional things, and it costs a lot, and a lot of them focus entirely on the printed word rather than letting you look around at objects and in different lighting to see what is less overloading.  Try to find a screener (like the one in Modesto, California, who I’d highly recommend) who is willing to be unconventional and who wears tinted glasses themselves.

But you can do the whole thing for less money, it’s just that it’s way more work and time-intensive.

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By: Evonne https://ballastexistenz.wordpress.com/2006/08/27/autism-national-committee-conference/#comment-13125 Tue, 29 Aug 2006 14:53:47 +0000 http://ballastexistenz.autistics.org/?p=187#comment-13125 n., I think it’s just as much a personal preference thing as it is a “tested” thing. Reading a couple paragraphs or otherwise studying what one often visually studies through clear colored plastic sheets (like the kind for report covers) can give a general idea of what works best, though of course tints vary and of course are not the same as report covers — and you won’t know for sure until you’ve got the glasses in-hand; that’s one of the drawbacks to ordering from afar — but hey, for the price it’s worth a bit of chance.

Amanda, thanks! Never in my life have I found prescription glasses this cheap. (I splurged a little on the tint and the anti-reflective coating, thirty bucks!) And evidently my pupils are unusually far apart, like I’m some kind of herbivore . . .

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By: n. https://ballastexistenz.wordpress.com/2006/08/27/autism-national-committee-conference/#comment-13124 Tue, 29 Aug 2006 12:35:45 +0000 http://ballastexistenz.autistics.org/?p=187#comment-13124 PS: If you don’t know what color you need, is there a way to find out without going to england to be tested?

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