Comments on: Genetic Outlaws https://ballastexistenz.wordpress.com/2006/08/22/genetic-outlaws/ Sun, 18 Apr 2010 16:57:01 +0000 hourly 1 http://wordpress.com/ By: Behavior and genetics, Part 2: Eugenics « Urocyon's Meanderings https://ballastexistenz.wordpress.com/2006/08/22/genetic-outlaws/#comment-13100 Sun, 18 Apr 2010 16:57:01 +0000 http://ballastexistenz.autistics.org/?p=185#comment-13100 […] Amanda points out in Genetic Outlaws: That clearly and absolutely means children like me. And children like most of us, in the end, […]

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By: rr https://ballastexistenz.wordpress.com/2006/08/22/genetic-outlaws/#comment-13099 Mon, 01 Jan 2007 23:11:19 +0000 http://ballastexistenz.autistics.org/?p=185#comment-13099 ballastexistenz Says:
August 23rd, 2006 at 17:44
Yeah, the “preparation” that a few parents engage in (that I have no problem with) is tiny compared to the enormous amounts of parents who are going to abort because they’re told it’s for the best or bullied/pressured/etc.

I am easy to pressure. I was easy to pressure when I was 18 and got pregnant. I did not understand myself nor know I was autistic (HFA/Asperger’s). I was pressured by everyone around me into having an abortion, which I still regret 30 years later. At the time I even did not want a child “like me” as I was miserable, suffering from PTSD and depression at the time. I figured the kid would be like me, “all screwed up”. That was the only thing I “knew” about myself at 18. Even the doctor asked me what I wanted to do and I didn’t know… and he gave me the phone number of an abortion clinic. The year was 1977. 30th anniversary this year. I thought of that first thing this morning, even before I went online and somehow got into looking at “genetic outlaws.” I accept full responsibility for my decision.

I also somehow feel like “a hypocrite” for being against genetic testing and selective abortion since that’s what I did, in a way. I used to be pro-choice but I have serious reservations about it now. I am not adamantly opposed to all abortions, but check with me in a year and I probably will be.

How much harder it will be for people to NOT make the abortion choice, when they are purposely being tested and pressured for “medical” reasons to not have the child? I don’t know. Although I was easy to pressure I also was not “one of the crowd” when it came to being told what to do by society in general, and I wonder if many prospective parents, having been raised to think that this sort of thing is “natural and good,” will just go along with it. Even those who are not desperate and without resources.

Having just been diagnosed this year with Asperger’s, I regret even more not having the baby. Maybe he or she was autistic. That was one of the first things I thought of after my diagnosis. It’s not like I fixate on this all the time but it is always with me.

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By: Dinah https://ballastexistenz.wordpress.com/2006/08/22/genetic-outlaws/#comment-13098 Thu, 31 Aug 2006 15:15:50 +0000 http://ballastexistenz.autistics.org/?p=185#comment-13098 http://www.ahfmr.ab.ca/download.php/954da463c9a6c633bdafefd1aaf23844#search=%22The%20triangle%20of%20enhancement%20wolbring%22

is the Wolbring report I was referring to – in case anyone is still following this

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By: Dinah https://ballastexistenz.wordpress.com/2006/08/22/genetic-outlaws/#comment-13097 Thu, 31 Aug 2006 14:37:56 +0000 http://ballastexistenz.autistics.org/?p=185#comment-13097 bother, sorry – I posted earlier without completing, can’t find the original link but the work I mentioned was the work of Gregor Wolbring, which can be found at http://www.euthanasiaprevention.on.ca/ Articles/gregorwolbring/gwolbring.htm
note that name!!

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By: Dinah https://ballastexistenz.wordpress.com/2006/08/22/genetic-outlaws/#comment-13096 Thu, 31 Aug 2006 06:37:08 +0000 http://ballastexistenz.autistics.org/?p=185#comment-13096 I’ve only just caught up with this extremely interesting discussion. As someone said, the key think is to work out effective actions we can take. Turning around current perceptions of autism seems a more feasible goal than preventing women from receiving “genetic counselling”. Trying to turn round that perception is exactly why so many of us are doing what we are doing, including in my case recently setting up http://www.youtube.com/group/posautive because as GTTO reminds us, images are highly effective (there is a flickr group too, for stills). Anyone here with some upbeat video material about autism is urged to add it to the 40 short videos there so far. We need this to grow, and we need people to know about it. It is sort of an extension from the TAAP idea, and includes their new video – brilliant!

Making sure that it is legal obligation for any genetic counselling to include positive autism views seems to me the most feasible way to go (politics the art of the possible…) eg having Don’t Mourn for Me read out, and being given links to things like the autism hub and the Posautive Youtube group as well as to national/local autistic societies and their usually less autism friendly positions. This may be achievable through disability rights channels. There is an extremely interesting and penetrating discussion about all these issues including the economic and administrative ones at

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By: Ettina https://ballastexistenz.wordpress.com/2006/08/22/genetic-outlaws/#comment-13095 Wed, 30 Aug 2006 14:06:44 +0000 http://ballastexistenz.autistics.org/?p=185#comment-13095 “Zilari: Something I’ve noticed, is that people don’t seem to understand the difference between:
“1. Choosing one PERSON over another PERSON.
“2. Choosing to alter one person for what they see as “the better”.
“Now, I don’t agree that these alterations would be for “the better”. But I’ve seen a whole lot of people, in a whole lot of places, equate things like eugenic abortion with “giving a child a better chance in life”.
“This is not “giving a child a better chance in life” (even if you thought the previous child had a crummy chance) — it is giving one child no chance in life and giving a difference child a chance instead. People talk about it like it’s the same child. That’s eerie and bizarre.”

That’s pretty much what I said in my blog entry “Preventing Disabilities or Preventing Disabled People” which is at http://abnormaldiversity.blogspot.com/2006/06/preventing-disabilities-or-preventing.html
By the way, I’m a pro-life feminist socialist. All those logically follow from each other for me, and it always kind of surprises me that other people hold what seem to me like contradictory viewpoints, such as being pro-life conservatives. Granted, it’s not contradictory if you understand their reasoning, but my habitual way of viewing the world means those are contradictory.
How is the abortion issue separate from anti-eugenics? Plenty of ways. I’m pro-choice about dietary treatment for PKU, rather than considering it mandatory. I oppose preimplantation genetic diagnosis even though I don’t consider zygotes alive (in the sense that I’m alive. They are alive the way e-coli or the islets in my pancreas are alive). I oppose sterilizing people because you don’t want more of their kind. I oppose “mercy killings” (which aren’t merciful from my perspective) and saying suicide is OK if you’re disabled but not if you’re just depressed (I don’t think anyone should kill themselves).
And some pro-choice anti-eugenecists might be saying they don’t want people to be viewed as irresponsible for choosing not to abort a disabled child, the same way I don’t want people viewed as irresponsible if they decide to feed a phenylalanine-rich diet to their PKU child.
Ettina

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By: lordalfredhenry https://ballastexistenz.wordpress.com/2006/08/22/genetic-outlaws/#comment-13094 Mon, 28 Aug 2006 15:57:05 +0000 http://ballastexistenz.autistics.org/?p=185#comment-13094 “Just so everyone’s aware, this entry and the responses to it are being responded to (and at times openly mocked) here:” (hey, do italic tags work here (in angly brackets vs bbcode?)? I assume so).

I can scan text without seeing the author and recognize your writing. I found that wonderful. It is scary too because I can almost see the other jerks writing just by a quick scan but no “face” just attitude profile.

I recognize some of myself even in other autistic writing and either I copied others or others copied me….but either way, I notice “autistic” writing style now almost it seems as good as people. I didn’t even know you commented but before seeing the author, I said to myself “oh, ballastexistenz commented”. Then I realized what I did and awed at myself a bit. I sometimes am just as shocked as others as whatever little things I might do too hehe.

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By: LB https://ballastexistenz.wordpress.com/2006/08/22/genetic-outlaws/#comment-13093 Sun, 27 Aug 2006 20:14:08 +0000 http://ballastexistenz.autistics.org/?p=185#comment-13093 While I think the restraint in your response is admirable, by their own words they seem to already be quite in favor of eugenics because they can not see the “worth” of a person with a “disability”. Until they can understand that they have no right to determine another person’s value the point of the discussion will most likely not be comprehended.

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By: rocobley https://ballastexistenz.wordpress.com/2006/08/22/genetic-outlaws/#comment-13092 Sun, 27 Aug 2006 18:11:46 +0000 http://ballastexistenz.autistics.org/?p=185#comment-13092 I have had a look at the blog in question, and the author seems to be pretty unpleasant in his politics generally. One of his posts suggests that the high prevalence of AIDS among gay men is their own fault, as they’re all promiscious! Personally I wouldn’t be too bothered by the views about disability of people of like that.

Oh yes he also has a post attacking socialism – so that’s a good reason for *me* to ignore him too!

:-)

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By: ballastexistenz https://ballastexistenz.wordpress.com/2006/08/22/genetic-outlaws/#comment-13091 Sun, 27 Aug 2006 14:53:22 +0000 http://ballastexistenz.autistics.org/?p=185#comment-13091 Well… compared to the stuff some people have said to me in person, that’s not the worst they could’ve done.

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