Comments on: Is this really neutral, everyday terminology? https://ballastexistenz.wordpress.com/2006/06/21/is-this-really-neutral-everyday-terminology/ Sun, 10 Feb 2008 21:19:44 +0000 hourly 1 http://wordpress.com/ By: Esther https://ballastexistenz.wordpress.com/2006/06/21/is-this-really-neutral-everyday-terminology/#comment-11942 Sun, 10 Feb 2008 21:19:44 +0000 http://ballastexistenz.autistics.org/?p=122#comment-11942 I was thinking about exactly this today. I remember reading about dyspraxic boy who was sent for “physiotherapy” while other kids had P.E. While the typical kids learned to play football, rugby and hockey, he learned to tie his shoelaces, walk in a straight line, climb stairs and sit on a chair without falling off. I had similar “therapy”. Granted, these are at a lower skill-level. However, I remember a French class where I could conjugate verbs with complete ease and the girl sitting next to me asking me “What’s a verb?”. Was I a “linguistic therapist” for teeling her? The fact that someone has a lower level of skill doesn’t mean that teaching them to do something is a medical treatment.

I’d like to add that I don’t make this comment as an attack on any particular physiotherapist and I’m extremely grateful to the physiotherapists for everything they’ve taught me. I am certainly NOT suggesting that their profession shouldn’t exist – they’ve taught me so much that I’m grateful to know. The things they taught me and the methods they used to teach them were too different from “normal” physical education to have been taught by a “normal” P.E teacher (although I think if ANY type of human being should be excluded from the ranks of “normal” humanity, it should be P.E teachers). There should be people specially trained to teach movement people with co-ordination disorders, people who have had illness or injuries that cause physical impairments and anyone else who has more than usual movement difficulty how to move, just as there are people specially trained in teaching dyslexics to read and spell, teaching people with speech disorders to speak, teaching blind people to read braille etc. But people who teach people to do things should be called teachers or tutors or educators or something along those lines. They should not be called therapists.

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By: Melody https://ballastexistenz.wordpress.com/2006/06/21/is-this-really-neutral-everyday-terminology/#comment-11941 Sun, 10 Feb 2008 06:58:26 +0000 http://ballastexistenz.autistics.org/?p=122#comment-11941 Exactly. When I go to taekwondo class, I do not call it “coordination therapy” or any such thing. It is an activity I enjoy that helps me physically develop fitness and coordination and balance.

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By: Henry Emrich https://ballastexistenz.wordpress.com/2006/06/21/is-this-really-neutral-everyday-terminology/#comment-11940 Mon, 13 Aug 2007 01:39:15 +0000 http://ballastexistenz.autistics.org/?p=122#comment-11940 Brilliant!
This reminds me of my own experiences as the visually-impaired guy in my school.
See, primarily due to the fact that I WAS visually-impaired, I wasn’t very good at gym class (“softballs” are actually pretty goddamn hard!)
This caused me not to have very much in common with my “classmates”, who were usually much more “athletic” in the typical sense, than I was. Add to this various other aspects of my (mis)education which I won’t discuss here, and I pretty much had nothing in common with any of them, other than the fact that I was forced to attend the same public school.

So, one of the things they really liked to do was beat the hell out of me, nearly every day. Now, if a ‘normal’ kid fights back against being bullied, then it’s just considered that — fighting back against the bastards who are bullying you.

HOWEVER, in my case (primarily due to the fact that my school had created an IEP for me, and could conveniently explain everything in terms of my visual problem alone), I was declared to be “acting out”, and fairly extensively subjected to the school shrink.

If you’re not “normal”, then those in power can — and usually will — dismiss you out of hand, and one of their most successful ways of doing this is to view every aspect of you as some sort of pathology related to your particular disability.

Brilliant article, as I said.

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By: Kaitlin https://ballastexistenz.wordpress.com/2006/06/21/is-this-really-neutral-everyday-terminology/#comment-11939 Fri, 01 Jun 2007 08:08:31 +0000 http://ballastexistenz.autistics.org/?p=122#comment-11939 “Childhood largely consists of having your abilities developed, mostly through the efforts of adults. However when a disability is involved, recreational activities like horseback riding or art become medicalized.”

Don’t forget the money! It’s easier to argue for someone else (health insurance, school system, whatever) paying for your kid’s horseback riding or art lessons when they’re called “therapy” than when they’re called “hobbies.”

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By: andreashettle https://ballastexistenz.wordpress.com/2006/06/21/is-this-really-neutral-everyday-terminology/#comment-11938 Sun, 11 Feb 2007 15:58:14 +0000 http://ballastexistenz.autistics.org/?p=122#comment-11938 This makes me think of an article I read some years ago (don’t remember where) by I think it was a kindergarten teacher who happened to be working with a class of predominantly middle-class 5 year old kids, many of whom happened to live in apartment buildings in a middle class part of their city. At the start of the year, this teacher discovered that a lot of the kids just didn’t know how to climb stairs — a skill that most 5 year olds have mastered. Apparently they were too accustomed to taking the elevator or perhaps escalators. So she ended up doing a few practice sessions with these children to help them learn how to navigate stairs at their school. In the article, the author speculated that if these had been poor children from an impoverished neighborhood, all this would have been pathologized in some way — the children would have been presumed to be lacking the basic skill of stair climbing due to their “deprived” background and therefore in need of “remediation training” or some such thing. But because it was a class of mostly middle class kids, there weren’t all these labels involved, it was just, “Oh, they haven’t got this skill yet, let’s work on this.”

(DISCLAIMER: I read this YEARS ago. I’m probably mis-remembering or fuzzing over a lot of key details. But this should be the general gist, at least in spirit and tone.)

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By: autiemom https://ballastexistenz.wordpress.com/2006/06/21/is-this-really-neutral-everyday-terminology/#comment-11937 Fri, 18 Aug 2006 19:04:09 +0000 http://ballastexistenz.autistics.org/?p=122#comment-11937 Just found this and thought it would go nicely here.

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By: natalia https://ballastexistenz.wordpress.com/2006/06/21/is-this-really-neutral-everyday-terminology/#comment-11936 Wed, 28 Jun 2006 21:22:15 +0000 http://ballastexistenz.autistics.org/?p=122#comment-11936 Looked at in this terminology, I have no longer “passed” for NT all my life, rather have lived the “special ed.” life that I was meant to all along.

In high school I didn’t understand why, but I felt comfortable hanging out in the special ed. room. I found out about AS in the 90’s and thought, huh… maybe I was one of “them”, one of “those disabled people” after all. I thought that hanging out with them or not rejecting them was, at very least “the right thing to do”, if not some sort of good deed… and turns out I was one of them, only staying with “my own kind”. The irony.

And then with this post you illustrate that it’s just PEOPLE, none of whom are completely ABLE, that would be ridiculous. Which is not something we think about every day…

Not sure this makes sense, and pls. excuse the overuse of quote marks, but … what I mean is, thanks, and this was a very clever idea.

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By: Baba Yaga https://ballastexistenz.wordpress.com/2006/06/21/is-this-really-neutral-everyday-terminology/#comment-11935 Thu, 22 Jun 2006 08:13:51 +0000 http://ballastexistenz.autistics.org/?p=122#comment-11935 ¿Presumably? terminologisers would call things what they actually are, if only they/we (I try to avoid jargons, but that doesn’t equate to succeeding, especially where one has to climb through a thicket of assumptions to say *anything meaningful) … if only they/we could *see* what things actually are. That perception seems to be something to do with whether or not an ‘expert’ is involved; and currently, expertise resides in medicalising and psychlogising. [I almost typed ‘pathologising’ for ‘psychologising’; my fingers know a thing.]

And, of course, whether one is subject to medical/psedomedical pathologising has to do with whether one’s seen as equal or not (“equal to what” is always unasked). Here we go round the Mulberry Bush.

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By: ballastexistenz https://ballastexistenz.wordpress.com/2006/06/21/is-this-really-neutral-everyday-terminology/#comment-11934 Thu, 22 Jun 2006 06:20:23 +0000 http://ballastexistenz.autistics.org/?p=122#comment-11934 Kristina: I don’t know how to answer anything about alternatives, really. Because it’s hard for me to understand how or why people even use the terminology I use in this entry. I keep wanting to say “Call things what they actually are, not what the process of medicalization warps them into.”

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By: Bluejay Young https://ballastexistenz.wordpress.com/2006/06/21/is-this-really-neutral-everyday-terminology/#comment-11933 Wed, 21 Jun 2006 21:23:25 +0000 http://ballastexistenz.autistics.org/?p=122#comment-11933 I can’t even remember where we said it now, but just a couple of days ago one of us (probably myself) wrote a brief paragraph complaining about uses of words like treatment, therapy and especially intervention in educating autistic children. I think I suggested “autistic children need to be educated differently from non-autistic” or something.

Language shapes thought, people get most of their ideas about life from the media, and the media need to stop using those words. Even “working with” is better. And I’d like to get five minutes alone in a room with whoever on the Tribune used the word “reverse”, as in “working with autistic kids early helps to reverse the condition.” I also find myself correcting people who insist on using the word “improve” to mean “stop behaving in an overtly autistic manner”.

Treatment and therapy suggest that autism is a mental illness, decades after it’s been proved to not be. Intervention sounds as if the kids have been getting into the liquor cabinet.

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