Comments on: Taboos and Autism https://ballastexistenz.wordpress.com/2006/05/10/taboos-and-autism/ Thu, 29 Jun 2006 11:35:48 +0000 hourly 1 http://wordpress.com/ By: n. https://ballastexistenz.wordpress.com/2006/05/10/taboos-and-autism/#comment-11379 Thu, 29 Jun 2006 11:35:48 +0000 http://ballastexistenz.autistics.org/?p=98#comment-11379 I just want to say that I have not had this many light-bulbs going off in my head since the things I was reading when I first found out about AS some 10 years ago.

This goes for this post and a bunch of other ones.

I’m sort of ignoring the bit in this post that I didn’t understand, which was the same bit everyone else didn’t understand…
But what got me was the whole section about “Part of our role in society is to notice what other people miss. This is not a better role than the roles of any other kind of people, but it is an essential one.”
… I once tried to tell someone that he had “a beautiful mind”, and this was what I meant deep down, although I had no idea how to explain it, and ended up insulting him because of that movie and because he had inaccurately been called schizophrenic before. But what I meant was this whole idea of seeing things others don’t see. And I meant it in the sense of things that are a lot more useful than if he were seeing people who aren’t there (although who am I to say that those couldn’t be useful too, under some circumstances)… I meant this idea of the other perspective. And just as John Nash couldn’t get rid of his hallucinations without also losing his amazing math thoughts, so it is with us. We can’t see everything every way at once, no more than NTs can.

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By: unnua https://ballastexistenz.wordpress.com/2006/05/10/taboos-and-autism/#comment-11378 Sat, 17 Jun 2006 04:46:04 +0000 http://ballastexistenz.autistics.org/?p=98#comment-11378 I found your post very enlightening. I’m NT, and I haven’t met any autistic people–that I know of. But I have met people whose social behavior was unusual and, to me, unappealing. Now I wonder if some of that was due to taboos that I hold that I am not even aware of. Also, as soon as your post brought up the idea of taboos, I became intensly curious to know what they were. If I am subconsciously following “rules that are so strict that thinking or talking about them or even noticing them is not something most people are willing to do,” then I want to know about it! Self-awareness is something I strive for constantly, even if I rarely achieve much of it. To read that there might be something about me that you know and I don’t, and you are unwilling to say what it is, well… that thought makes me sad and self-doubting, and disappointed that I don’t get to learn what it is. I mean, maybe one day I’ll learn that thing, or maybe I have learned it already, but I can’t know if the thing I’ve learned is the thing you are talking about; I’ll always wonder if there’s some taboo I’m holding that you know about and I don’t. So frustrating! Great post, though.

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By: rocobley https://ballastexistenz.wordpress.com/2006/05/10/taboos-and-autism/#comment-11377 Sun, 14 May 2006 04:31:58 +0000 http://ballastexistenz.autistics.org/?p=98#comment-11377 BTW I like the ‘don’t be alarmed’ moderation comment that’s appeared above my last comment.

“Do not be alarmed. There is nothing wrong with your PC. We are controlling transmission”.

Do-do-do do-do-do

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By: rocobley https://ballastexistenz.wordpress.com/2006/05/10/taboos-and-autism/#comment-11376 Sun, 14 May 2006 04:29:39 +0000 http://ballastexistenz.autistics.org/?p=98#comment-11376 Indeed – should perhaps this kind of autistic-specialist social training be taught to autistic children in schools perhaps? It is surely important to teach those skills that will enable autistics to navigate an overwhelmingly non-autistic world successfully. This sounds to be like a good example of that need.

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By: ballastexistenz https://ballastexistenz.wordpress.com/2006/05/10/taboos-and-autism/#comment-11375 Sat, 13 May 2006 10:36:48 +0000 http://ballastexistenz.autistics.org/?p=98#comment-11375 I do believe that some taboos are there for a reason.

I also think that, whether we like it or not, and whether we try to or not, we’re likely to be violating them right and left, and that’s one reason we can get so hated so easily.

I think, to echo an author I know, that one of the most useful things to me has been learning to manage the risks involved, since there’s no way I could avoid them altogether (and in some areas, no way that I should).

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By: rocobley https://ballastexistenz.wordpress.com/2006/05/10/taboos-and-autism/#comment-11374 Sat, 13 May 2006 05:56:43 +0000 http://ballastexistenz.autistics.org/?p=98#comment-11374 Of course, taboos vary from place to place, and some places are more relaxed than others. Here in Ireland for instance, there are I think rather fewer taboos, with the exception of political ones relating to British rule and the like. You can’t, for instance, go into a bar in some parts in Northern Ireland and ask for a ‘Black and Tan’ because you’ll get a nasty reaction (for anyone who doesn’t get the ref, they were the British special forces during the Irish War of Independence – they murdered large numbers of Irish Catholics and you just don’t joke about those kinds of things). People in general, and not just autistic ones, will make mistakes in those kinds of situations.

Breaking taboos in general in my view is always potentially dangerous and needs careful judgement. It is good to be honest but it is never good in my view to just walk all over someone’s finer feelings. Making off-the-cuff comments about an acquaintance being ‘nuts’ in the presence of a recovering schizophrenic, for instance, is surely an absolute no-no. Sometimes there are very good reasons why the elephant in the room *should* be ignored. I’m not convinced that autistics aren’t at a real disadvantage in this regard.

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By: Alison Cummins https://ballastexistenz.wordpress.com/2006/05/10/taboos-and-autism/#comment-11373 Fri, 12 May 2006 12:37:47 +0000 http://ballastexistenz.autistics.org/?p=98#comment-11373 I say some things that most people are too discreet to say, like how much money I make and how much I pay in rent. In my circles this is a major taboo but I think this kind of information is crucial. So I deliberately violate the taboo. Yes, I know it is one but it doesn’t feel like one to me, so I can make a decision that I will violate it anyway.

I am also blunt and direct when asked for advice. This one is harder to decide how to deal with, but I eventually figured out that anyone asking for my advice is specifically looking for the kind of advice that I will offer. If they want someone more sensitive and less direct, they will go to someone else. And maybe they will do both, but I don’t have to feel responsible for figuring out what is appropriate to say. If they want appropriate they go somewhere else.

In my previous job my supervisor and I split up the people we were supporting. She dealt with most of them because she was tactful and most people appreciate that. But some of them were up to me to talk to because they weren’t particularly subtle and needed to be whacked over the head with a 2″ * 4″ in order to get the message. My supervisor was too tender-hearted to be that direct and assertive, so I got that job. Because I’m not subtle either, 2″ * 4″ whacking is my natural mode of communication. I need to be kept away from most people, but for a significant minority I speak their language.

And no, I’m not talking about assault or cruelty, but about communicating directly rather than suggestively. Most very socialised people prefer suggestive communication (“Don’t you feel warm?”) and feel assaulted by very direct communication (“Won’t you take off your sweater so I can look at your tits?”) which is why I use the whacking analogy. But un-subtle people like me feel mind-fucked by suggestive communication because we can tell that someone is trying to tell us something but we can’t figure out what. Or we have no idea that someone is trying to tell us something and thus have no idea why they are so frustrated that we haven’t understood. When someone says exactly what they mean, we’re very appreciative even if the message isn’t one we find agreeable. So I don’t make all that much effort learning to respect the taboo against directness, because I know someone out there *appreciates* directness.

So I think I know what you’re talking about, ballastexistenz, and I’m NT! Taboo-breaking must be a much more dominant theme in your life than it is in mine, and I feel it all the time.

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By: ballastexistenz https://ballastexistenz.wordpress.com/2006/05/10/taboos-and-autism/#comment-11372 Fri, 12 May 2006 10:12:53 +0000 http://ballastexistenz.autistics.org/?p=98#comment-11372 Yes, enjoying what is not supposed to be enjoyable actually is a taboo of sorts. And enjoying being autistic, among other things, is to the point of being “unheard of” by a lot of people’s prejudices, and will provoke shock and anger in many people.

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By: M https://ballastexistenz.wordpress.com/2006/05/10/taboos-and-autism/#comment-11371 Fri, 12 May 2006 03:03:54 +0000 http://ballastexistenz.autistics.org/?p=98#comment-11371 “You must not enjoy being different”

That hits home. I’m not autistic, but geeky, and having so much trouble with this at the moment. Um. Can’t really find the words, but you described it so well.

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By: ballastexistenz https://ballastexistenz.wordpress.com/2006/05/10/taboos-and-autism/#comment-11370 Thu, 11 May 2006 20:15:06 +0000 http://ballastexistenz.autistics.org/?p=98#comment-11370 You’re not likely to guess what they are. I never discuss them.

But it’s not what those particular things are that’s the point, really, although I do wish I’d been able to be more detailed in other parts of it. It’s that we do seem to violate various taboos (not limited to the ones I refuse to discuss, and not limited just to major or minor ones but spanning the whole range), just as a matter of course, and that this probably contributes to the vehemence of some of the responses we get.

I’m unfortunately trying and failing to think of other examples. I know the shape of what I’m looking at, but I can’t remember the precise words for all of them. I mean, there’s the obvious nudity taboos (in American culture, at least) and stuff that a lot of autistic people violate, but there’s things a lot more subtle and important than that too.

For some of them, to use the usual metaphor, if there’s an elephant in the living room, then when everyone else is carefully avoiding looking at it or mentioning it, some autistic people are going to be staring straight at the thing constantly, and others are going to be saying “Why is there an elephant here?” or “Get that elephant out of here” or “There’s an elephant here,” while fewer will be joining other people in studiously avoiding looking at it. Both of which (the verbal and non-verbal responses) call attention to the presence of the elephant that everyone has agreed not to discuss or even necessarily perceive. Which is going to scare or anger most of the people who are trying not to perceive it, and intrigue some others. Not that autistic people are the only ones to do this, or that non-autistic people never do this, but I do think autistic people are more likely to do this.

I don’t know why my mind is failing me so badly on concrete examples of this right now.

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