Comments on: Seeing beyond these things? No, I want something better. https://ballastexistenz.wordpress.com/2006/05/02/seeing-beyond-these-things-no-i-want-something-better/ Wed, 16 Jan 2008 12:18:34 +0000 hourly 1 http://wordpress.com/ By: andreashettle https://ballastexistenz.wordpress.com/2006/05/02/seeing-beyond-these-things-no-i-want-something-better/#comment-11122 Wed, 16 Jan 2008 12:18:34 +0000 http://ballastexistenz.autistics.org/?p=83#comment-11122 Ivan: I think the key issue here is not the LANGUAGE but the ATTITUDE behind it. In this post, for example, the offense is not simply using the term “looking past,” the offense is the IDEA that a disability is necessarily something so shameful or bad that it NEEDS to be overlooked in the first place in order to accept the person as a person.

If I try too hard to interpret what Amanda means when she writes this post then I’ll risk putting words into her mouth. So instead I’ll say what it means to me:

I don’t want people to “look past” the fact that I am Deaf in order to accept me as a person. NOT because I object to the terminology but because I object to the idea that there’s anything wrong with being Deaf that people should have to ignore it in order to accept me. If people can only figure out how to accept me or tolerate me by pretending that I’m basically just a hearing person who “hears differently” or whatever then I just don’t want that brand of “acceptance” because that’s not “acceptance” at all. That’s just dressed up failure to accept who I REALLY am. And, yes, being Deaf is one part of that. It’s not all of who I am, it’s not even the most important part of who I am, but it’s there, and to try to pretend that out of existence is to reject one part of who I am–no matter what synonym you come up with for “looking past.”

There is a time and a place to have dialogue about language. But if you worry too much about terminology then you run the risk that you could end up overlooking far more fundamental issues related to how disability is perceived, or how people with disabilities are treated.

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By: Ivan https://ballastexistenz.wordpress.com/2006/05/02/seeing-beyond-these-things-no-i-want-something-better/#comment-11121 Wed, 16 Jan 2008 05:33:26 +0000 http://ballastexistenz.autistics.org/?p=83#comment-11121 how about a post on better word choice…….what can we say/think other than “seeing past” “learning DIFFERENCE” as opposed to disability……and things like that……I believe that people genuinely don’t know better things to say or think……..and others might think better things but cannot put those things into the right words……..and the phrases I put in quotes are the best verbal approximation……….

I think such a post, if/when you are able/have a desire to do so, will help a lot of people……if there are already such posts in existence…….could you or n or andreashettle or anyone else familiar with them please post them for us?
Thanks

Ivan

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By: Janna’s Thoughts… » Blog Archive » Blogging Against Ableism/Disablism Day :: My Post https://ballastexistenz.wordpress.com/2006/05/02/seeing-beyond-these-things-no-i-want-something-better/#comment-11120 Wed, 24 May 2006 14:05:43 +0000 http://ballastexistenz.autistics.org/?p=83#comment-11120 […] Ballastexistence >> Seeing beyond these things?  No, I want something better. […]

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By: lordalfredhenry https://ballastexistenz.wordpress.com/2006/05/02/seeing-beyond-these-things-no-i-want-something-better/#comment-11119 Wed, 03 May 2006 12:25:06 +0000 http://ballastexistenz.autistics.org/?p=83#comment-11119 I should also say that I’ve seen the poetic rendition of “Black is Beautiful” quite a few times in my sojourns through the military and through school but also in other groups/activites and it makes me feel a lot closer to “my brothers and sisters” on earth. I relate this somewhat to autism and realize that many groups feel arbitrary at some point. I’m my individual self but I happen to share so much experience with a large group of autistics. None of these need to be unscreened. I’m not trying to watch my PC or anything and just saying it how I’ve seen / experienced it so I might not be saying things accurately. PC “eggshells” I am sometimes annoyed with at the same time, I do have to sometimes actively think outside my experiences.

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By: lordalfredhenry https://ballastexistenz.wordpress.com/2006/05/02/seeing-beyond-these-things-no-i-want-something-better/#comment-11118 Wed, 03 May 2006 12:15:29 +0000 http://ballastexistenz.autistics.org/?p=83#comment-11118 I think this relates to something I discovered years ago while working with those who are of black/brown culture and that is that they would prefer instead of “color blindness”, “color appreciation”. Appreciation for what the background and influences and experiences bring a person and not ignorance of it or looking the other way. The ‘blindness’ is perhaps more of an egalitarian aspect which has it’s own validity but in a different context of being equal as a group amongst other groups. It is also not so important in terms of actual “color”.

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By: Jannalou https://ballastexistenz.wordpress.com/2006/05/02/seeing-beyond-these-things-no-i-want-something-better/#comment-11117 Tue, 02 May 2006 09:23:06 +0000 http://ballastexistenz.autistics.org/?p=83#comment-11117 *nod*

I don’t want people to “look past” my ADHD, either. It’s shaped my personality, my outlook on life – it’s part of me, for better or for worse, for richer or for poorer, in sickness and in health…

Of course, I “pass” for normal more often than not, and have all my life. The oddities I have can be brushed off by those around me as little quirks that are just part of “Janna”. But my best friend, who’s known me for over twenty-five years, told me a couple of weeks ago that in the last six months I’ve seemed the most “normal” to her. I attribute that “normalcy” to a few things: finding the right meds; finally landing a job that allows me the freedom to work within my ADHD instead of constantly pushing myself to “overcome” it; and an overall lessening of stressors in my life.

The positive changes I’ve made in my life are, I think, an example of what life *can* and *should* be able to be like for everyone. I still have interesting “ADHD moments” (I left my car lights on twice in less than two weeks and drained the battery, for example; I now have a sign on my passenger seat that says ‘Turn off the lights, you silly silly girl!’) because medication doesn’t eliminate ADHD – and I wouldn’t want it to.

Don’t “look past” my ADHD; it’s impossible to do so. It’s wrapped up within my very being.

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By: Kristina Chew https://ballastexistenz.wordpress.com/2006/05/02/seeing-beyond-these-things-no-i-want-something-better/#comment-11116 Tue, 02 May 2006 08:22:21 +0000 http://ballastexistenz.autistics.org/?p=83#comment-11116 This rings true on many counts. When Charlie has had a tough moment in public—an experience in which I had to phang onto him while he tried to hit his head on a manhole cover on a train platform stands out–people often do not stare. Their faces and body posture suggest that they do “not” see us–that we’re invisible—not something they are willing to look at.

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By: Book Girl https://ballastexistenz.wordpress.com/2006/05/02/seeing-beyond-these-things-no-i-want-something-better/#comment-11115 Tue, 02 May 2006 07:42:00 +0000 http://ballastexistenz.autistics.org/?p=83#comment-11115 Spot on!!! Absolutely! I came to this realisation a few years ago (finally!) but haven’t yet managed to put it into writing. Thank you for doing so. I don’t want people to ignore my CP – I’m *not* normal, and I don’t want to be. It’s dangerous for people to pretend I don’t have CP, it means I don’t get the help I need and I spent years in incredibly dangerous (physically and emotionally) situations because I bought in to the `look past my disability’ myth.

I never comment here enough, but every one of your posts resonates with me so deeply and puts into words what I can’t or don’t have the energy to write about.

Thanks so much. :-)

I’ve linked to a couple of your posts for BADD, BTW.

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