Comments on: The vehement defense of prejudicial behavior. https://ballastexistenz.wordpress.com/2006/03/27/the-vehement-defense-of-prejudicial-behavior/ Fri, 13 Apr 2007 04:28:47 +0000 hourly 1 http://wordpress.com/ By: Vivian https://ballastexistenz.wordpress.com/2006/03/27/the-vehement-defense-of-prejudicial-behavior/#comment-10688 Fri, 13 Apr 2007 04:28:47 +0000 http://ballastexistenz.autistics.org/?p=58#comment-10688 Just wondering: should I try to mainstream my son with autism?

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By: Eli's mom https://ballastexistenz.wordpress.com/2006/03/27/the-vehement-defense-of-prejudicial-behavior/#comment-10687 Sun, 30 Apr 2006 20:23:39 +0000 http://ballastexistenz.autistics.org/?p=58#comment-10687 Dear Amanda-
I just recently read your thread filed under inspiration. I know that it seems to you that I over-reacted, I should not have felt scolded, should have just let it go, whatever.
I’d like to give you a little background, if I may take some of your time, to try and explain my knee-jerk reaction.
Before I had my son, I had very little interaction with autistic people. Having him diagnosed with autism was one of the most humbling and frightening experiences ever. Humbling because I have four other children, all of them (reasonably) physically, emotionally, and mentally average–typical. Frightening because autism was an unknown. I knew nothing about it, and still know very little even now. But I am trying to learn.
I started looking online to try and find some answers on how to cope with his differences, and, far more importantly, help him to cope with the world. His has not been an easy childhood thus far, though he is making progress at this point in time. The first place I landed was AutismWeb, and while I found it odd that all these parents were trying to “cure” their kids, there was a degree of emotional support that I needed at the time. I hung around for a few months, getting ideas and offering support to other parents of more recently diagnosed children than my own. I drifted away from the forum when I started figuring out that my son was doing okay with the treatments he had. The only treatments he has ever had are speech and OT through his preschool. No supplements, no vitamins, no chelation, no hyperbaric oxygen treatments, no MB12–none of that. The one thing I had figured out was that there was no cure–only adapting to him and helping him to adapt where he can. I don’t want to change my son–I love him exactly as he is–and I accept him unconditionally.
I had begun to read from Diva’s, Estee’s, kristina’s, neurodiversity, the usual blogs, and realized that there were *gasp* people who shared my views, but with more finesse, more education, more experience.
I headed back over to AutismWeb and tried to let other folks know that autism was not all doom and gloom, that there were GOOD things about autism, if they’d only stop focusing on curing their kids and focus on their kids’ gifts, their uniqueness, their strengths rather than their deficits. You can only imagine the reaction I received. I was repeatedly tag-teamed by other commenters, telling me I was a bad mother because I wasn’t trying to cure my child with the almighty biomedicine. I was accused of being a “pharma shill” because I don’t necessarily agree that vaccinations=autism. I was told I just want to keep all the autistic kids autistic, so that my own son will not be alone. I was ridiculed by a bunch of parents who have the best, if misguided intentions for their children, and they obviously did not want to hear from me.
Fast forward to Ari’s essay—
I was moved to tears by his words. Forgive me, I am very sensitive and very emotional and I adore kids. This is a great kid, and I’ve seen some really rotten ones out there. For me, saying Ari’s essay was inspirational was not done to say, “Oh look what the autistic kid wrote! Isn’t that pretty?” It was me thinking about the potential that can be lost if kids like Ari don’t get the supports and education they are entitled to. It made ME want to affect some change. Yes, things need to change in this country–our approach to education(not just for disabled people, mind you), our acceptance of those who are different, and our treatment of disabled persons. I was SO tempted to post a link to Ari’s essay over at AutismWeb, but did not because I figured they would see who had posted it and assume it was a bunch of “acceptance crap.” Yes, that’s how they viewed me. One commenter went so far as to accuse me of child abuse, because I am not treating my child with supplementss, MB12, et al.
When you pointed out that the my use of the word inspirational was, uh, inappropriate, it hit me SO hard. I had thought I finally found a place that I felt like I belonged, and then I felt like I was being chastised and put down. There I go with those damned “feelings” again. ;) I realize you didn’t intend to put me down, and I sincerely apologize for my reaction. I know now that you had the best of intentions. Please realize that I ALSO have the best intentions, just not always the right choice of words.
Sincerely,
Eli’s mom

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By: Julia https://ballastexistenz.wordpress.com/2006/03/27/the-vehement-defense-of-prejudicial-behavior/#comment-10686 Sat, 01 Apr 2006 02:18:00 +0000 http://ballastexistenz.autistics.org/?p=58#comment-10686 I saw the comment thread on Estee’s blog and I didn’t understand the problem Anonymous had.

On the ‘net, you use words to say exactly what you mean. If anyone reads something into it that is not in the words you use, it’s their own fault. (Conversely, if someone doesn’t use the right words to spell out exactly what they mean, and several people who are very careful about their words interpret them in a way very different from what you meant, that’s the fault of the person who didn’t use the right words in the first place. I have never seen you do that, but I have seen a number of other people do it, some of them chronically, some of them only under certain conditions.)

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By: Kristina Chew https://ballastexistenz.wordpress.com/2006/03/27/the-vehement-defense-of-prejudicial-behavior/#comment-10685 Mon, 27 Mar 2006 23:15:00 +0000 http://ballastexistenz.autistics.org/?p=58#comment-10685 It’s indefensible, and too often so deeply rooted that people have no idea how they are stumbling when they engage in it. (As when someone asked my husband if I were “Asiatic on both sides”; “uh, actually,” he replied, “both of her parents are from California.)

Thanks for your extended translation of my attempted translation of Charlie and his head.

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By: Camille https://ballastexistenz.wordpress.com/2006/03/27/the-vehement-defense-of-prejudicial-behavior/#comment-10684 Mon, 27 Mar 2006 19:43:00 +0000 http://ballastexistenz.autistics.org/?p=58#comment-10684 Hi,

I’m sorry that that comment thread went belly up like it did. Your comment was entirely appropriate and not hurtful at all.

I’m sorry if I didn’t make it clear that you comment was fine. The person who took offense seems to me to be very sensitive.

I don’t think she reacted to you because you are autistic or otherwise disabled, though. I doubt she knew or cared who you were when she read your comment, but I could be wrong about that.

I guess since she says she rarely comments, she must be afraid of negative feedback and so when she got some she felt like, “SEE! this always happens to me.” Your feedback was negative in the sense that you didn’t agree, it wasn’t hostile or anything vaguely hostile.

I hope you don’t feel like you were too beat up over there. I think that communication is hard to manage sometimes with just words. Well, it’s next to impossible to manage no matter what method is used, and we are strangers, basically, or partial strangers so we can’t always tell the other’s motives or why they are feeling sensitive on a particular day.

I’ve seen my family member who uses a wheelchair go ballistic over having the wheelchair moved without permission. I can still remember the incidents, probably once where I moved it and once where one of my kids moved it. We moved the wheelchair like an inch to the side by picking up the big wheels off the floor and moving the chair sideways (not rolling it) like you would move any piece of furniture to the side. Without warning.

Like I said, the person in the wheelchair (who was quite little) went berzerk with anger (to the extent that that person does, which is pretty minor compared to me) and taught us that that was NOT OK! As far as I know, neither of us ever did it again. The kid who moved the wheelchair might have talked back and said, “what’s your problem?”, but I made sure that the kid who moved the wheelchair learned that it was wrong to do that. It wasn’t a problem after we learned not to do it.

When I thought about it, I realized how horrific it would be if someone just lifted me off the ground and moved me like a chess piece without asking. I mean you can do that to a baby… but you don’t do that to people who can move themselves at request.

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By: ballastexistenz https://ballastexistenz.wordpress.com/2006/03/27/the-vehement-defense-of-prejudicial-behavior/#comment-10683 Mon, 27 Mar 2006 17:46:00 +0000 http://ballastexistenz.autistics.org/?p=58#comment-10683 Estee: Saw it, and responded.

And believe me, I’ve heard that kind of crap before that you were getting from that person. I’ve even heard that caregivers should be allowed to kill us whenever they want to if we get too “difficult” for them, and that this is not the same as killing someone else. I mean, that’s toward the extreme end, but I’ve heard it, and that’s the level of disturbing that some people think is polite conversation.

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By: Estee Klar https://ballastexistenz.wordpress.com/2006/03/27/the-vehement-defense-of-prejudicial-behavior/#comment-10682 Mon, 27 Mar 2006 17:12:00 +0000 http://ballastexistenz.autistics.org/?p=58#comment-10682 Whoa…read my post today. That sychronicity thing is happening again!

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By: Jannalou https://ballastexistenz.wordpress.com/2006/03/27/the-vehement-defense-of-prejudicial-behavior/#comment-10681 Mon, 27 Mar 2006 15:27:00 +0000 http://ballastexistenz.autistics.org/?p=58#comment-10681 I wrote about this on Friday.

(Synchronicity raises its head once more.)

This “inspiration”, I think, comes from disabled people being presented as disabled, as if that were the only thing that mattered.

I recently shared, on a.s.a, a conversation I had with the 11yo autistic boy I do respite for twice a month. I shared it because it was funny, and very cute. If I were to choose to share it with someplace that collects anecdotes about children, I probably wouldn’t say that the child in question was autistic. Why? Because his autism isn’t an important part of the story. Not really.

People seem to think that a person’s diagnosis or disability is all there is that matters about them. I think that’s what leads to the attitudes you’re talking about here. NTs are victims of “overgeneralisation”, to use a term from my ABA therapist past. I fail to understand how it’s good when they do it and bad when autistic people do it.

One person who is in a wheelchair is not the same as the next. One autistic person is not the same as another. One “ADDer” is not the same as anyone else.

I think it’s much like the latent racism that lurks within most people. It’s probably not malicious racism, but “all oriental people look the same” is a very good example of that. Taking pride in having a friend of a different ethnicity is another example of it. It works out to the same thing as disability discrimination – it’s not generally malicious, but “everyone in a wheelchair looks the same”, and there’s pride to be found in befriending someone who has a disability. (Even if it’s not real friendship.)

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