Comments on: Why is it okay for the hammered dulcimer, but not for speech or walking? https://ballastexistenz.wordpress.com/2006/02/08/why-is-it-okay-for-the-hammered-dulcimer-but-not-for-speech-or-walking/ Thu, 30 Mar 2006 22:00:00 +0000 hourly 1 http://wordpress.com/ By: Ann https://ballastexistenz.wordpress.com/2006/02/08/why-is-it-okay-for-the-hammered-dulcimer-but-not-for-speech-or-walking/#comment-10458 Thu, 30 Mar 2006 22:00:00 +0000 http://ballastexistenz.autistics.org/?p=33#comment-10458 I think a lot of people can’t see how much they connect physical ability/activity with connecting with people. So that if you cant do (fill in the blank) then you dont have friendships. I found this out years ago ( I was born with a congenital heart problem that meant I probably wouldnt live past my teens) when I read about people with disabilities. What struck me was how much sadness that famlies thought that their kids felt ” they want to be outside running with their friends” My opinion was ” who in their right minds would WANT to run?” Being with friends _yes . Running ??? Who needs it? I have never had the desire to run cross country or track or anything other such nonsense. I could never understand runners who said that “hit the wall and kept on going”. I was always puzzled by that since when I “hit the wall” my body completely stopped there was no keeping on going no matter how much my mind said go.
I think thats why those who are “healthy” have such a problem with anyone who isnt. Their whole self concept is built on ” I can tell my body to do XYZ and it will” The idea that the body has control over what THEY do is simply too threatening for them. So maybe the real issue is control??

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By: Jannalou https://ballastexistenz.wordpress.com/2006/02/08/why-is-it-okay-for-the-hammered-dulcimer-but-not-for-speech-or-walking/#comment-10457 Mon, 27 Feb 2006 23:26:00 +0000 http://ballastexistenz.autistics.org/?p=33#comment-10457 That’s true, Ettina. It took a long time for Joni to get to the point where she was able to accept herself as a quadriplegic. She was depressed and suicidal, and she didn’t feel like a whole person. Eventually, her friends and family helped her to see what she could do, and she began to focus on that instead of what she couldn’t do. And out of that came an amazing career. She’s also married, and has been for a very long time. I’m sure many people didn’t think she would ever get married (herself included), but there you have it.

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By: Ettina https://ballastexistenz.wordpress.com/2006/02/08/why-is-it-okay-for-the-hammered-dulcimer-but-not-for-speech-or-walking/#comment-10456 Wed, 22 Feb 2006 02:22:00 +0000 http://ballastexistenz.autistics.org/?p=33#comment-10456 But if you’re quadriplegic and determined to walk, and are exerting a whole pile of effort, more than walking really is worth, because you don’t see how you could possibly be happy unable to walk, that’s not good. (I believe there is a famous example of that, Christopher Reeve.) And if you’re quadriplegic and have no real desire to walk, it’s not OK for people to say insulting things about you.

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By: Jannalou https://ballastexistenz.wordpress.com/2006/02/08/why-is-it-okay-for-the-hammered-dulcimer-but-not-for-speech-or-walking/#comment-10455 Thu, 09 Feb 2006 15:52:00 +0000 http://ballastexistenz.autistics.org/?p=33#comment-10455 One of my favourite Christian artists played the hammered dulcimer on most of his albums. It always amazed me, the sounds he could get out of that instrument. (It’s Rich Mullins, who died in a car accident many years ago.)

I think, if something is important enough to you, you find a way to do it – or something like it. Joni Erickson Tada broke her neck in a diving accident at 17yoa, and is a quadriplegic. She is now an accomplished singer, author, and artist. She holds the brush (pencil, etc.) in her mouth and paints (or draws) that way.

If you want something written for hammer dulcimer and recorder, I’m a composer by degree. ;)

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By: Justthisguy https://ballastexistenz.wordpress.com/2006/02/08/why-is-it-okay-for-the-hammered-dulcimer-but-not-for-speech-or-walking/#comment-10454 Thu, 09 Feb 2006 02:13:00 +0000 http://ballastexistenz.autistics.org/?p=33#comment-10454 I had to give up the clarinet, due to my clarinet being stolen, and (more importantly) my lower front teeth rotting away. I’m pretty good with the recorder (soprano). I wonder if there’s any music written for hammered dulcimer and recorder.(both at once)
I reckon not.

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By: ballastexistenz https://ballastexistenz.wordpress.com/2006/02/08/why-is-it-okay-for-the-hammered-dulcimer-but-not-for-speech-or-walking/#comment-10453 Wed, 08 Feb 2006 21:49:00 +0000 http://ballastexistenz.autistics.org/?p=33#comment-10453 Oh and regarding the classical guitar, I suppose I would be horrible if judged by those standards too. My hands, by virtue of a combination of size (work-around-able with a small guitar, which I’ve occasionally considered), shape/flexibility (not so work-around-able), and carpal tunnel, are not up to guitars at all. :-)

I was thinking of mentioning that, because I always really have wanted to play guitar, but attempts to do so have resulted in large quantities of hand pain (not just from the carpal tunnel, but from the fact that my fingers just don’t bend that way). So I play things like hammered dulcimer instead.

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By: ballastexistenz https://ballastexistenz.wordpress.com/2006/02/08/why-is-it-okay-for-the-hammered-dulcimer-but-not-for-speech-or-walking/#comment-10452 Wed, 08 Feb 2006 21:45:00 +0000 http://ballastexistenz.autistics.org/?p=33#comment-10452 Actually, there was a time when I thought that if I couldn’t climb trees (or do all those other things I used to enjoy doing but can’t do), I wouldn’t be happy.

Then I started falling out of them and breaking bones and stuff — I’d never even fallen before, let alone broken anything. And even though I kept climbing, it kept getting progressively harder to do all the movements involved, until eventually it was clear that it was too dangerous to continue.

It’s not that I don’t miss climbing trees, actually. But I don’t … how do I describe this? It doesn’t really take over my life, I rarely think about it anymore, and it’s not overly traumatic. I also discovered there’s a lot of things I can do with trees without climbing them, many of which I can do when I’m incapacitated in nearly every other way.

So… yeah, I don’t want to give the impression that not being able to climb them didn’t affect me at all, more that I put it in perspective, and found other things to do, or other ways to do things I’d done before.

Which is actually what most people do when they become disabled, so it’s not all that surprising that I did the same thing. I just find it amazing that there’s this incredible encouragement, from mostly non-disabled people, to wallow about it. When the same people would generally recognize it as wallowing if it was a non-disabled person.

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By: Joel https://ballastexistenz.wordpress.com/2006/02/08/why-is-it-okay-for-the-hammered-dulcimer-but-not-for-speech-or-walking/#comment-10451 Wed, 08 Feb 2006 17:09:00 +0000 http://ballastexistenz.autistics.org/?p=33#comment-10451 I understand what you mean. I’ve noticed people tend to ascribe their values to other people. For example, when I tell people that I don’t care for or about my father, they get terribly upset. I don’t know why; my father is nothing like theirs, so my attitudes about him have no reason to correlate to theirs.

Just like I would lament the loss of ability to climb a tree. It’s important to me. Maybe someday it won’t be. Apparently it isn’t to you. Simmilarily I am curiouse about the dulcimer, but I doubt I’ll ever try playing it. I don’t expect you to be terribly upset by this either.

I feel people need to learn to accept that there’s different ways of being, and there is no overarching value set.

I’m very good at being me, and my value set applies to who I am. I would be terrible at being you, my value set wouldn’t fit at all. I play classical guitar, not the hammered dulcimer! :)

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By: elmindreda https://ballastexistenz.wordpress.com/2006/02/08/why-is-it-okay-for-the-hammered-dulcimer-but-not-for-speech-or-walking/#comment-10450 Wed, 08 Feb 2006 15:05:00 +0000 http://ballastexistenz.autistics.org/?p=33#comment-10450 Hmm, I was just about to ask that you post this on your blog, and you did, only better. Thank you.

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